Literature DB >> 15959649

Disability rights, prenatal diagnosis and eugenics: a cross-cultural view.

Aviad E Raz1.   

Abstract

This paper considers the disability rights critique of genetic testing in the context of different communities and the issue of nondirectiveness. Despite the wide usage of genetic diagnosis in Israel, no public debate has emerged there concerning disability rights and prenatal testing. The common attitude that emerged from interviews with Israeli representatives of organizations "of'' and "for'' people with genetic diseases and congenital disabilities can be described as a two-fold view of disability: support of genetic testing during pregnancy, and support of the disabled person after birth. This two-fold view is explained as a secular construction situated in legal, economic and cultural contexts. The paper concludes by considering the implications of the "two-fold view'' of disability for the profession of genetic counseling. It is argued that awareness of the existence of conflicting views among clients--such as the view of the 'disability critique' as well as of the "two-fold view of disability''--should strengthen the significance of nondirectiveness.

Entities:  

Keywords:  Empirical Approach; Genetics and Reproduction

Mesh:

Year:  2005        PMID: 15959649     DOI: 10.1007/s10897-005-0573-0

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  12 in total

1.  The disability rights critique of prenatal genetic testing. Reflections and Recommendations.

Authors:  E Parens; A Asch
Journal:  Hastings Cent Rep       Date:  1999 Sep-Oct       Impact factor: 2.683

2.  Choosing who will be disabled: genetic intervention and the morality of inclusion.

Authors:  Allen Buchanan
Journal:  Soc Philos Policy       Date:  1996

3.  Disability rights critique of prenatal genetic testing: reflections and recommendations.

Authors:  Erik Parens; Adrienne Asch
Journal:  Ment Retard Dev Disabil Res Rev       Date:  2003

4.  Attitudes toward genetic counseling and prenatal diagnosis among a group of individuals with physical disabilities.

Authors:  E A Chen; J F Schiffman
Journal:  J Genet Couns       Date:  2000-04       Impact factor: 2.537

5.  Prenatal diagnosis of Down syndrome: ten year experience in the Israeli population.

Authors:  Mordechai Shohat; Helena Frimer; Vered Shohat-Levy; Hormoz Esmailzadeh; Zvi Appelman; Ziva Ben-Neriah; Hanna Dar; Avi Orr-Urtreger; Aliza Amiel; Ruth Gershoni; Esther Manor; Gad Barkai; Stavit Shalev; Zully Gelman-Kohen; Orit Reish; Dorit Lev; Bella Davidov; Boleslaw Goldman
Journal:  Am J Med Genet A       Date:  2003-10-15       Impact factor: 2.802

6.  Eugenics is alive and well: a survey of genetic professionals around the world.

Authors:  D Wertz
Journal:  Sci Context       Date:  1998 Autumn-Winter       Impact factor: 0.425

7.  "Important to test, important to support": attitudes toward disability rights and prenatal diagnosis among leaders of support groups for genetic disorders in Israel.

Authors:  Aviad Raz
Journal:  Soc Sci Med       Date:  2004-11       Impact factor: 4.634

8.  Screening for genetic disorders among Jews: how should the Tay-Sachs screening program be continued?

Authors:  J Zlotogora; A Leventhal
Journal:  Isr Med Assoc J       Date:  2000-09       Impact factor: 0.892

9.  Factors affecting performance of prenatal genetic testing by Israeli Jewish women.

Authors:  Carron Sher; Orly Romano-Zelekha; Manfred S Green; Tamy Shohat
Journal:  Am J Med Genet A       Date:  2003-07-30       Impact factor: 2.802

10.  Neurofibromatosis type 1 (NF1): knowledge, experience, and reproductive decisions of affected patients and families.

Authors:  C M Benjamin; A Colley; D Donnai; H Kingston; R Harris; L Kerzin-Storrar
Journal:  J Med Genet       Date:  1993-07       Impact factor: 6.318

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  8 in total

1.  Disability advocacy and reproductive choice: engaging with the expressivist objection.

Authors:  Madelyn Peterson
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

2.  Genetic counseling for prenatal testing: where is the discussion about disability?

Authors:  Ellyn Farrelly; Mildred K Cho; Lori Erby; Debra Roter; Anabel Stenzel; Kelly Ormond
Journal:  J Genet Couns       Date:  2012-08-17       Impact factor: 2.537

3.  Best ethical practices for clinicians and laboratories in the provision of noninvasive prenatal testing.

Authors:  M A Allyse; L C Sayres; M Havard; J S King; H T Greely; L Hudgins; J Taylor; M E Norton; M K Cho; D Magnus; K E Ormond
Journal:  Prenat Diagn       Date:  2013-05-21       Impact factor: 3.050

4.  "To perpetuate blindness!": attitudes of UK patients with inherited retinal disease towards genetic testing.

Authors:  Barbara Potrata; Martin McKibbin; Jennifer Nw Lim; Jenny Hewison
Journal:  J Community Genet       Date:  2013-12-24

5.  Attitudes of cystic fibrosis patients and parents toward carrier screening and related reproductive issues.

Authors:  Sandra Janssens; Davit Chokoshvilli; Carmen Binst; Inge Mahieu; Lidewij Henneman; Anne De Paepe; Pascal Borry
Journal:  Eur J Hum Genet       Date:  2015-07-29       Impact factor: 4.246

6.  State-offered ethnically targeted reproductive genetic testing.

Authors:  Ellen Wright Clayton; Kyle B Brothers
Journal:  Genet Med       Date:  2015-06-04       Impact factor: 8.822

7.  Attitudes to genetic testing for deafness: the importance of informed choice.

Authors:  Marilys Guillemin; Lynn Gillam
Journal:  J Genet Couns       Date:  2006-02       Impact factor: 2.717

8.  Pre- and post-testing counseling considerations for the provision of expanded carrier screening: exploration of European geneticists' views.

Authors:  Sandra Janssens; Davit Chokoshvili; Danya F Vears; Anne De Paepe; Pascal Borry
Journal:  BMC Med Ethics       Date:  2017-08-01       Impact factor: 2.652

  8 in total

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