Literature DB >> 22037896

Disability advocacy and reproductive choice: engaging with the expressivist objection.

Madelyn Peterson1.   

Abstract

This professional issues paper outlines the experience and value of engagement with disability advocates, philosophy scholars and bioethicists for spirited debate of issues such as modern eugenics, the expressivist objection and reproductive choice. This process for one group of individuals, undoubtedly prompted deeper examination and questioning of some long held personal and professional views, for all participants. For this author, engagement in the "Disability Rights-Genetic Counseling Interest Group" over a full year resulted in several positive changes in genetic counselling practice as well as the development of meaningful, robust philosophical defence of the dual roles in genetic counseling; advocacy for those with disabilities, and facilitation of a full range of reproductive choices.

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Year:  2011        PMID: 22037896     DOI: 10.1007/s10897-011-9412-7

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  11 in total

1.  Choices and rights: eugenics, genetics and disability equality.

Authors:  Tom Shakespeare
Journal:  Disabil Soc       Date:  1998-11

2.  Disability rights critique of prenatal genetic testing: reflections and recommendations.

Authors:  Erik Parens; Adrienne Asch
Journal:  Ment Retard Dev Disabil Res Rev       Date:  2003

3.  Genetic counselling: ethical mediation of eugenic futures?

Authors:  D Turnbull
Journal:  Futures       Date:  2000 Nov-Dec

4.  Genetic counseling and the disabled: feminism examines the stance of those who stand at the gate.

Authors:  Annette Patterson; Martha Satz
Journal:  Hypatia       Date:  2002

5.  Debating disability.

Authors:  T Shakespeare
Journal:  J Med Ethics       Date:  2008-01       Impact factor: 2.903

Review 6.  The relationship between the genetic counseling profession and the disability community: a commentary.

Authors:  Anne C Madeo; Barbara B Biesecker; Campbell Brasington; Lori H Erby; Kathryn F Peters
Journal:  Am J Med Genet A       Date:  2011-05-12       Impact factor: 2.802

7.  Disability rights, prenatal diagnosis and eugenics: a cross-cultural view.

Authors:  Aviad E Raz
Journal:  J Genet Couns       Date:  2005-06       Impact factor: 2.537

Review 8.  Prenatal diagnosis and selective abortion: a challenge to practice and policy.

Authors:  A Asch
Journal:  Am J Public Health       Date:  1999-11       Impact factor: 9.308

9.  Tragedy and catastrophe: contentious discourses of ethics and disability.

Authors:  J Clapton
Journal:  J Intellect Disabil Res       Date:  2003-10

10.  Disability, identity and the "expressivist objection".

Authors:  S D Edwards
Journal:  J Med Ethics       Date:  2004-08       Impact factor: 2.903

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  4 in total

1.  Human genome editing and the identity politics of genetic disability.

Authors:  Felicity Boardman
Journal:  J Community Genet       Date:  2019-09-06

2.  Disability Experiences and Perspectives Regarding Reproductive Decisions, Parenting, and the Utility of Genetic Services: a Qualitative Study.

Authors:  C Roadhouse; C Shuman; K Anstey; K Sappleton; D Chitayat; E Ignagni
Journal:  J Genet Couns       Date:  2018-06-16       Impact factor: 2.537

3.  Generating a taxonomy for genetic conditions relevant to reproductive planning.

Authors:  Diane M Korngiebel; Carmit K McMullen; Laura M Amendola; Jonathan S Berg; James V Davis; Marian J Gilmore; Cary O Harding; Patricia Himes; Gail P Jarvik; Tia L Kauffman; Kathleen A Kennedy; Dana Kostiner Simpson; Michael C Leo; Frances L Lynch; Denise I Quigley; Jacob A Reiss; C Sue Richards; Alan F Rope; Jennifer L Schneider; Katrina A B Goddard; Benjamin S Wilfond
Journal:  Am J Med Genet A       Date:  2016-03       Impact factor: 2.802

4.  Impairment Experiences, Identity and Attitudes Towards Genetic Screening: the Views of People with Spinal Muscular Atrophy.

Authors:  Felicity K Boardman; Philip J Young; Frances E Griffiths
Journal:  J Genet Couns       Date:  2017-06-30       Impact factor: 2.537

  4 in total

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