Literature DB >> 12587137

Disability rights critique of prenatal genetic testing: reflections and recommendations.

Erik Parens1, Adrienne Asch.   

Abstract

Using prenatal tests to prevent the birth of babies with disabilities seems to be self-evidently good to many people. Even if the testing will not help bring a healthy baby to term this time, it gives prospective parents a chance to try again to conceive. To others, however, prenatal testing looks rather different. If one thinks about the history of our society's treatment of people with disabilities, it is not hard to see why people identified with the disability rights movement might regard such testing as dangerous. For the members of this movement, living with disabling traits need not be detrimental to an individual's prospects of leading a worthwhile life, or to the families in which they grow up, or to society at large. Although the movement has no one position on prenatal diagnosis, many of its adherents believe that public support for prenatal diagnosis and abortion based on disability contravenes the movement's basic philosophy and goals. Copyright 2003 Wiley-Liss, Inc.

Entities:  

Keywords:  Genetics and Reproduction

Mesh:

Year:  2003        PMID: 12587137     DOI: 10.1002/mrdd.10056

Source DB:  PubMed          Journal:  Ment Retard Dev Disabil Res Rev        ISSN: 1080-4013


  35 in total

1.  Disability advocacy and reproductive choice: engaging with the expressivist objection.

Authors:  Madelyn Peterson
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

2.  Ethical, legal, and social issues in health technology assessment for prenatal/preconceptional and newborn screening: a workshop report.

Authors:  B K Potter; D Avard; V Entwistle; C Kennedy; P Chakraborty; M McGuire; B J Wilson
Journal:  Public Health Genomics       Date:  2008-09-03       Impact factor: 2.000

3.  "Don't Want No Risk and Don't Want No Problems": Public Understandings of the Risks and Benefits of Non-Invasive Prenatal Testing in the United States.

Authors:  Megan Allyse; Lauren Carter Sayres; Taylor Goodspeed; Marsha Michie; Mildred K Cho
Journal:  AJOB Empir Bioeth       Date:  2015

4.  Correlates of genetic counseling and testing among Orthodox Jews.

Authors:  Shulamis Juni Pollak
Journal:  J Relig Health       Date:  2009-08-11

5.  "The Top Priority Is a Healthy Baby": Narratives of Health, Disability, and Abortion in Online Pregnancy Forum Discussions in the US and China.

Authors:  Grace Li; Subhashini Chandrasekharan; Megan Allyse
Journal:  J Genet Couns       Date:  2016-06-09       Impact factor: 2.537

Review 6.  Genetic screening.

Authors:  Wylie Burke; Beth Tarini; Nancy A Press; James P Evans
Journal:  Epidemiol Rev       Date:  2011-06-27       Impact factor: 6.222

Review 7.  The relationship between the genetic counseling profession and the disability community: a commentary.

Authors:  Anne C Madeo; Barbara B Biesecker; Campbell Brasington; Lori H Erby; Kathryn F Peters
Journal:  Am J Med Genet A       Date:  2011-05-12       Impact factor: 2.802

8.  Informed choice of pregnant women in prenatal screening tests for Down's syndrome.

Authors:  H-H Chiang; Y-M Yu Chao; Y-S Yuh
Journal:  J Med Ethics       Date:  2006-05       Impact factor: 2.903

9.  Disability rights, prenatal diagnosis and eugenics: a cross-cultural view.

Authors:  Aviad E Raz
Journal:  J Genet Couns       Date:  2005-06       Impact factor: 2.537

10.  Disability Experiences and Perspectives Regarding Reproductive Decisions, Parenting, and the Utility of Genetic Services: a Qualitative Study.

Authors:  C Roadhouse; C Shuman; K Anstey; K Sappleton; D Chitayat; E Ignagni
Journal:  J Genet Couns       Date:  2018-06-16       Impact factor: 2.537

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