Literature DB >> 12530456

Attitudes toward genetic counseling and prenatal diagnosis among a group of individuals with physical disabilities.

E A Chen1, J F Schiffman.   

Abstract

Few studies have been published on the attitudes of people with physical disabilities toward genetic counseling and prenatal diagnosis. Articles in the lay press and social science literature on this topic, mainly written by disability rights activists and advocates, imply opposition to prenatal diagnosis and the field of clinical genetics by the physically disabled population. In this study, 15 adults with physical disabilities were interviewed regarding their attitudes toward genetic counseling and prenatal diagnosis. Genetic counseling and prenatal diagnosis were generally viewed favorably by this sample of the disability community. Only a small percentage of the sample perceived genetics to be eugenic. Implications for genetic counseling and future research are discussed.

Entities:  

Keywords:  Empirical Approach; Genetics and Reproduction

Mesh:

Year:  2000        PMID: 12530456     DOI: 10.1023/a:1009412025722

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  14 in total

1.  Up against eugenics: disabled women's challenge to receive reproductive health services.

Authors:  Barbara Faye Waxman
Journal:  Sex Disabil       Date:  1994

Review 2.  Prenatal genetic testing and screening: constructing needs and reinforcing inequities.

Authors:  A Lippman
Journal:  Am J Law Med       Date:  1991

3.  Attitudes to carrier screening for cystic fibrosis: a survey of health care professionals, relatives of sufferers and other members of the public.

Authors:  E K Watson; R Williamson; J Chapple
Journal:  Br J Gen Pract       Date:  1991-06       Impact factor: 5.386

4.  Cystic fibrosis: community knowledge and attitudes towards carrier screening and prenatal diagnosis.

Authors:  M Decruyenaere; G Evers-Kiebooms; L Denayer; H Van den Berghe
Journal:  Clin Genet       Date:  1992-04       Impact factor: 4.438

5.  Women's opinions on the offer and use of prenatal diagnosis.

Authors:  T J Tymstra; C Bajema; J R Beekhuis; A Mantingh
Journal:  Prenat Diagn       Date:  1991-12       Impact factor: 3.050

6.  How the magnitude of clinical severity and recurrence risk affects reproductive decisions in adult males with different forms of progressive muscular dystrophy.

Authors:  S Eggers; M Zatz
Journal:  J Med Genet       Date:  1998-03       Impact factor: 6.318

7.  Neurofibromatosis type 1 (NF1): knowledge, experience, and reproductive decisions of affected patients and families.

Authors:  C M Benjamin; A Colley; D Donnai; H Kingston; R Harris; L Kerzin-Storrar
Journal:  J Med Genet       Date:  1993-07       Impact factor: 6.318

8.  Prenatal screening and discriminatory attitudes about disability.

Authors:  M Saxton
Journal:  Women Health       Date:  1987

9.  Reproductive decision making of aunts and uncles of a child with cystic fibrosis: genetic risk perception and attitudes toward carrier identification and prenatal diagnosis.

Authors:  L Denayer; G Evers-Kiebooms; K De Boeck; H Van den Berghe
Journal:  Am J Med Genet       Date:  1992-09-01

10.  Cesarean section before the onset of labor and subsequent motor function in infants with meningomyelocele diagnosed antenatally.

Authors:  D A Luthy; T Wardinsky; D B Shurtleff; K A Hollenbach; D E Hickok; D A Nyberg; T J Benedetti
Journal:  N Engl J Med       Date:  1991-03-07       Impact factor: 91.245

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  12 in total

1.  "This lifetime commitment": Public conceptions of disability and noninvasive prenatal genetic screening.

Authors:  Rosemary J Steinbach; Megan Allyse; Marsha Michie; Emily Y Liu; Mildred K Cho
Journal:  Am J Med Genet A       Date:  2015-11-14       Impact factor: 2.802

Review 2.  The relationship between the genetic counseling profession and the disability community: a commentary.

Authors:  Anne C Madeo; Barbara B Biesecker; Campbell Brasington; Lori H Erby; Kathryn F Peters
Journal:  Am J Med Genet A       Date:  2011-05-12       Impact factor: 2.802

3.  Disability rights, prenatal diagnosis and eugenics: a cross-cultural view.

Authors:  Aviad E Raz
Journal:  J Genet Couns       Date:  2005-06       Impact factor: 2.537

4.  Exploring the Issues Surrounding Clinical Exome Sequencing in the Prenatal Setting.

Authors:  Swetha Narayanan; Bruce Blumberg; Marla L Clayman; Vivian Pan; Catherine Wicklund
Journal:  J Genet Couns       Date:  2018-03-10       Impact factor: 2.537

5.  Disability Experiences and Perspectives Regarding Reproductive Decisions, Parenting, and the Utility of Genetic Services: a Qualitative Study.

Authors:  C Roadhouse; C Shuman; K Anstey; K Sappleton; D Chitayat; E Ignagni
Journal:  J Genet Couns       Date:  2018-06-16       Impact factor: 2.537

6.  Is preparation a good reason for prenatal genetic testing? Ethical and critical questions.

Authors:  Marsha Michie
Journal:  Birth Defects Res       Date:  2020-03-01       Impact factor: 2.344

7.  Imagined futures: how experiential knowledge of disability affects parents' decision making about fetal abnormality.

Authors:  Emma F France; Louise Locock; Kate Hunt; Sue Ziebland; Kate Field; Sally Wyke
Journal:  Health Expect       Date:  2011-05-30       Impact factor: 3.377

8.  Impairment Experiences, Identity and Attitudes Towards Genetic Screening: the Views of People with Spinal Muscular Atrophy.

Authors:  Felicity K Boardman; Philip J Young; Frances E Griffiths
Journal:  J Genet Couns       Date:  2017-06-30       Impact factor: 2.537

9.  Preventing lives affected by hemophilia: A mixed methods study of the views of adults with hemophilia and their families toward genetic screening.

Authors:  Felicity K Boardman; Rachel Hale; Raksha Gohel; Philip J Young
Journal:  Mol Genet Genomic Med       Date:  2019-03-05       Impact factor: 2.183

10.  How do genetically disabled adults view selective reproduction? Impairment, identity, and genetic screening.

Authors:  Felicity K Boardman; Rachel Hale
Journal:  Mol Genet Genomic Med       Date:  2018-09-09       Impact factor: 2.183

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