Literature DB >> 15312920

"Important to test, important to support": attitudes toward disability rights and prenatal diagnosis among leaders of support groups for genetic disorders in Israel.

Aviad Raz1.   

Abstract

To situate the North American, and to some extent, European debate regarding disability rights and prenatal diagnosis in a social and cross-cultural context, this pilot study explored the views of leaders of organizations for disability rights and support groups for people with genetic conditions in Israel, where a similar debate has not emerged. Unlike many of their counterparts in North America, Israeli respondents were generally in favor of prenatal genetic testing as well as selective abortion, while at the same time expressing their commitment for already-born disabled individuals. The religious, legal, economic and socio-cultural context of this two-fold view of disability--which separates prenatal (preventive testing) and postnatal (supporting disability)--is discussed in order to further situate the debate in cross-cultural perspective. It is hypothesized that prenatal diagnosis and selective abortion are supported in secular Israeli society independently of the rabbinical stance, which forbids selective abortion, and in a way that reflects society's non-acceptance of congenital disability, veneration of the healthy body, and medical directiveness.

Entities:  

Keywords:  Empirical Approach; Genetics and Reproduction

Mesh:

Year:  2004        PMID: 15312920     DOI: 10.1016/j.socscimed.2004.02.016

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  14 in total

1.  The Moral Reasoning of Genetic Dilemmas Amongst Jewish Israeli Undergraduate Students with Different Religious Affiliations and Scientific Backgrounds.

Authors:  Merav Siani; Orit Ben-Zvi Assaraf
Journal:  J Genet Couns       Date:  2015-12-07       Impact factor: 2.537

2.  Socializing the public: invoking Hannah Arendt's critique of modernity to evaluate reproductive technologies.

Authors:  Daniel Sperling
Journal:  Med Health Care Philos       Date:  2012-02

3.  A Qualitative Look into Israeli Genetic Experts' Insights Regarding Culturally Competent Genetic Counseling and Recommendations for Its Enhancement.

Authors:  Merav Siani; Orit Ben-Zvi Assaraf
Journal:  J Genet Couns       Date:  2017-04-25       Impact factor: 2.537

4.  Benefits, challenges and ethical principles associated with implementing noninvasive prenatal testing: a Delphi study.

Authors:  Charles Dupras; Stanislav Birko; Aliya Affdal; Hazar Haidar; Marie-Eve Lemoine; Vardit Ravitsky
Journal:  CMAJ Open       Date:  2018-10-31

Review 5.  The relationship between the genetic counseling profession and the disability community: a commentary.

Authors:  Anne C Madeo; Barbara B Biesecker; Campbell Brasington; Lori H Erby; Kathryn F Peters
Journal:  Am J Med Genet A       Date:  2011-05-12       Impact factor: 2.802

6.  Disability rights, prenatal diagnosis and eugenics: a cross-cultural view.

Authors:  Aviad E Raz
Journal:  J Genet Couns       Date:  2005-06       Impact factor: 2.537

7.  Genetic testing of children for familial cancers: a comparative legal perspective on consent, communication of information and confidentiality.

Authors:  Roy Gilbar
Journal:  Fam Cancer       Date:  2009-07-17       Impact factor: 2.375

8.  Acceptable applications of preimplantation genetic diagnosis (PGD) among Israeli PGD users.

Authors:  Shachar Zuckerman; David A Zeevi; Sigal Gooldin; Gheona Altarescu
Journal:  Eur J Hum Genet       Date:  2017-07-26       Impact factor: 4.246

9.  Should I Perform Genetic Testing? A Qualitative Look into the Decision Making Considerations of Religious Israeli Undergraduate Students.

Authors:  Merav Siani; Orit Ben-Zvi Assaraf
Journal:  J Genet Couns       Date:  2016-03-15       Impact factor: 2.537

10.  Diversity and uniformity in genetic responsibility: moral attitudes of patients, relatives and lay people in Germany and Israel.

Authors:  Aviad E Raz; Silke Schicktanz
Journal:  Med Health Care Philos       Date:  2009-07-24
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