Literature DB >> 10553384

Prenatal diagnosis and selective abortion: a challenge to practice and policy.

A Asch1.   

Abstract

Professionals should reexamine negative assumptions about the quality of life with prenatally detectable impairments and should reform clinical practice and public policy to improve informed decision making and genuine reproductive choice. Current data on children and families affected by disabilities indicate that disability does not preclude a satisfying life. Many problems attributed to the existence of a disability actually stem from inadequate social arrangements that public health professionals should work to change. This article assumes a pro-choice perspective but suggests that unreflective uses of prenatal testing could diminish, rather than expand, women's choices. This critique challenges the view of disability that lies behind the social endorsement of such testing and the conviction that women will or should end their pregnancies if they discover that the fetus has a disabling trait.

Entities:  

Keywords:  Americans with Disabilities Act 1990; Analytical Approach; Genetics and Reproduction

Mesh:

Year:  1999        PMID: 10553384      PMCID: PMC1508970          DOI: 10.2105/ajph.89.11.1649

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  21 in total

1.  A critique of some feminist challenges to prenatal diagnosis.

Authors:  Dorothy C Wertz; John C Fletcher
Journal:  J Womens Health       Date:  1993       Impact factor: 2.681

2.  Killing "the handicapped" -- before and after birth.

Authors:  Martha A Field
Journal:  Harv Women's Law J       Date:  1993

Review 3.  Making responsible decisions. An interpretive ethic for genetic decisionmaking.

Authors:  M T White
Journal:  Hastings Cent Rep       Date:  1999 Jan-Feb       Impact factor: 2.683

4.  A parental perspective on stress and coping.

Authors:  Dorothy Kerzner Lipsky
Journal:  Am J Orthopsychiatry       Date:  1985-10

5.  Presidential address. To be or not to be? That is the question.

Authors:  M W Shaw
Journal:  Am J Hum Genet       Date:  1984-01       Impact factor: 11.025

6.  Social, sexual and personal implications of paraplegia.

Authors:  C Ray; J West
Journal:  Paraplegia       Date:  1984-04

7.  Parental autonomy and the obligation not to harm one's child genetically.

Authors:  R M Green
Journal:  J Law Med Ethics       Date:  1997       Impact factor: 1.718

8.  Reactions of mothers and medical professionals to a film about Down syndrome.

Authors:  W C Cooley; E S Graham; J B Moeschler; J M Graham
Journal:  Am J Dis Child       Date:  1990-10

9.  Cystic fibrosis and family stress: effects of age and severity of illness.

Authors:  L S Walker; M B Ford; W D Donald
Journal:  Pediatrics       Date:  1987-02       Impact factor: 7.124

10.  A child with cystic fibrosis: II. Subsequent family planning decisions, reproduction and use of prenatal diagnosis.

Authors:  G Evers-Kiebooms; L Denayer; H Van den Berghe
Journal:  Clin Genet       Date:  1990-03       Impact factor: 4.438

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  29 in total

1.  Information and decision support needs of parents considering amniocentesis: interviews with pregnant women and health professionals.

Authors:  Marie-Anne Durand; Mareike Stiel; Jacky Boivin; Glyn Elwyn
Journal:  Health Expect       Date:  2010-06       Impact factor: 3.377

2.  A population-based evaluation of the impact of antenatal screening for Down's syndrome in France, 1981-2000.

Authors:  Babak Khoshnood; Catherine De Vigan; Véronique Vodovar; Janine Goujard; François Goffinet
Journal:  BJOG       Date:  2004-05       Impact factor: 6.531

3.  Socioeconomic barriers to informed decisionmaking regarding maternal serum screening for down syndrome: results of the French National Perinatal Survey of 1998.

Authors:  Babak Khoshnood; Béatrice Blondel; Catherine de Vigan; Gérard Bréart
Journal:  Am J Public Health       Date:  2004-03       Impact factor: 9.308

4.  Disability advocacy and reproductive choice: engaging with the expressivist objection.

Authors:  Madelyn Peterson
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

5.  Commentary: how individual and profession-level factors influence discussion of disability in prenatal genetic counseling.

Authors:  Jan Hodgson; Jon Weil
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

6.  "This lifetime commitment": Public conceptions of disability and noninvasive prenatal genetic screening.

Authors:  Rosemary J Steinbach; Megan Allyse; Marsha Michie; Emily Y Liu; Mildred K Cho
Journal:  Am J Med Genet A       Date:  2015-11-14       Impact factor: 2.802

7.  Why "public health matters".

Authors:  B W Levin; M E Northridge
Journal:  Am J Public Health       Date:  1999-11       Impact factor: 9.308

8.  Community involvement in developing policies for genetic testing: assessing the interests and experiences of individuals affected by genetic conditions.

Authors:  Sarah E Gollust; Kira Apse; Barbara P Fuller; Paul Steven Miller; Barbara B Biesecker
Journal:  Am J Public Health       Date:  2005-01       Impact factor: 9.308

9.  Birthing ethics: what mothers, families, childbirth educators, nurses, and physicians should know about the ethics of childbirth.

Authors:  Jennifer M Torres; Raymond G De Vries
Journal:  J Perinat Educ       Date:  2009

10.  Advances in medical technology and creation of disparities: the case of Down syndrome.

Authors:  Babak Khoshnood; Catherine De Vigan; Véronique Vodovar; Gérard Bréart; François Goffinet; Béatrice Blondel
Journal:  Am J Public Health       Date:  2006-10-31       Impact factor: 9.308

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