Literature DB >> 14682342

Genetic counseling and the disabled: feminism examines the stance of those who stand at the gate.

Annette Patterson, Martha Satz.   

Abstract

This essay examines the possible systematic bias against the disabled in the structure and practice of genetic counseling. Finding that the profession's "nondirective" imperative remains problematic, the authors recommend that methodology developed by feminist standpoint epistemology be used to incorporate the perspective of disabled individuals in genetic counselors' education and practice, thereby reforming society's view of the disabled and preventing possible negative effects of genetic counseling on the self-concept and material circumstance of disabled individuals.

Keywords:  Analytical Approach; Genetics and Reproduction

Mesh:

Year:  2002        PMID: 14682342

Source DB:  PubMed          Journal:  Hypatia        ISSN: 0887-5367


  7 in total

1.  Disability advocacy and reproductive choice: engaging with the expressivist objection.

Authors:  Madelyn Peterson
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

Review 2.  The relationship between the genetic counseling profession and the disability community: a commentary.

Authors:  Anne C Madeo; Barbara B Biesecker; Campbell Brasington; Lori H Erby; Kathryn F Peters
Journal:  Am J Med Genet A       Date:  2011-05-12       Impact factor: 2.802

3.  Genetic Counseling, Professional Values, and Habitus: An Analysis of Disability Narratives in Textbooks.

Authors:  Amy R Reed
Journal:  J Med Humanit       Date:  2018-12

4.  Epistemic Virtue, Prospective Parents and Disability Abortion.

Authors:  James B Gould
Journal:  J Bioeth Inq       Date:  2019-08-01       Impact factor: 1.352

5.  Disability Experiences and Perspectives Regarding Reproductive Decisions, Parenting, and the Utility of Genetic Services: a Qualitative Study.

Authors:  C Roadhouse; C Shuman; K Anstey; K Sappleton; D Chitayat; E Ignagni
Journal:  J Genet Couns       Date:  2018-06-16       Impact factor: 2.537

Review 6.  Controlling Sickle Cell Disease in Ghana--ethics and options.

Authors:  Ama Kyerewaa Edwin; Frank Edwin; Victor Etwire
Journal:  Pan Afr Med J       Date:  2011-10-03

7.  Attitudes of people with inherited retinal conditions toward gene editing technology.

Authors:  Lily Hoffman-Andrews; Ronit Mazzoni; Michelle Pacione; Rosemarie Garland-Thomson; Kelly E Ormond
Journal:  Mol Genet Genomic Med       Date:  2019-06-12       Impact factor: 2.183

  7 in total

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