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Literature DB >> 31489571

Human genome editing and the identity politics of genetic disability.

Felicity Boardman¹.

Abstract

Entities: Disease Species

Year: 2019 PMID： 31489571 PMCID： PMC7062953 DOI： 10.1007/s12687-019-00437-4

Source DB: PubMed Journal: J Community Genet ISSN： 1868-310X

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29 in total

1. Choosing who will be disabled: genetic intervention and the morality of inclusion.

Authors: Allen Buchanan
Journal: Soc Philos Policy Date: 1996

2. Living with achondroplasia: attitudes toward population screening and correlation with quality of life.

Authors: Sarah E Gollust; Richard E Thompson; Holly C Gooding; Barbara B Biesecker
Journal: Prenat Diagn Date: 2003-12-15 Impact factor: 3.050

3. Is non-directive genetic counselling possible?

Authors: A Clarke
Journal: Lancet Date: 1991-10-19 Impact factor: 79.321

4. The best experts: the narratives of those who have a genetic condition.

Authors: Alan Petersen
Journal: Soc Sci Med Date: 2006-01-23 Impact factor: 4.634

5. Bespoke Babies: Genome Editing in Cystic Fibrosis Embryos.

Authors: Kyle B Brothers; Mary Devereaux; Robert M Sade
Journal: Ann Thorac Surg Date: 2019-05-29 Impact factor: 4.330

6. Perceptions of population cystic fibrosis prenatal and preconception carrier screening among individuals with cystic fibrosis and their family members.

Authors: Susannah J Maxwell; Gaenor Kyne; Caron Molster; Nigel M Barker; Jacqueline Ormsby; Peter O'Leary
Journal: Genet Test Mol Biomarkers Date: 2011-01-04

7. Perspectives on Spinraza (Nusinersen) Treatment Study: Views of Individuals and Parents of Children Diagnosed with Spinal Muscular Atrophy.

Authors: Michelle Pacione; Carly E Siskind; John W Day; Holly K Tabor
Journal: J Neuromuscul Dis Date: 2019

8. Preventing lives affected by hemophilia: A mixed methods study of the views of adults with hemophilia and their families toward genetic screening.

Authors: Felicity K Boardman; Rachel Hale; Raksha Gohel; Philip J Young
Journal: Mol Genet Genomic Med Date: 2019-03-05 Impact factor: 2.183

Human genome editing and the identity politics of genetic disability.

1. Choosing who will be disabled: genetic intervention and the morality of inclusion.

2. Living with achondroplasia: attitudes toward population screening and correlation with quality of life.

3. Is non-directive genetic counselling possible?

4. The best experts: the narratives of those who have a genetic condition.

5. Bespoke Babies: Genome Editing in Cystic Fibrosis Embryos.

6. Perceptions of population cystic fibrosis prenatal and preconception carrier screening among individuals with cystic fibrosis and their family members.

7. Perspectives on Spinraza (Nusinersen) Treatment Study: Views of Individuals and Parents of Children Diagnosed with Spinal Muscular Atrophy.

8. Preventing lives affected by hemophilia: A mixed methods study of the views of adults with hemophilia and their families toward genetic screening.

9. Genome editing and assisted reproduction: curing embryos, society or prospective parents?

Review 10. CRISPR to the Rescue: Advances in Gene Editing for the FMR1 Gene.

1. Inadequate reporting quality of registered genome editing trials: an observational study.

2. Gene editing and disabled people: a response to Felicity Boardman.

3. Letter to the editor. Gene editing and disabled people: a response to Iñigo de Miguel Beriain.