Literature DB >> 29621444

Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations.

Maya Sabatello1, Shawneequa Callier2, Nanibaa' A Garrison3, Elizabeth G Cohn4.   

Abstract

Entities:  

Mesh：

Year:  2018        PMID： 29621444      PMCID： PMC5890957          DOI： 10.1080/15265161.2018.1431328

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  8 in total

1.  Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research.

Authors:  Nanibaa' A Garrison
Journal:  Sci Technol Human Values       Date:  2012-12-21

2.  Diversity and inclusion in genomic research: why the uneven progress?

Authors:  Amy R Bentley; Shawneequa Callier; Charles N Rotimi
Journal:  J Community Genet       Date:  2017-07-18

3.  Racial and Ethnic Disparities in Health Insurance Coverage: Dynamics of Gaining and Losing Coverage over the Life-Course.

Authors:  Heeju Sohn
Journal:  Popul Res Policy Rev       Date:  2016-10-15

4.  Attitudes of African Americans toward return of results from exome and whole genome sequencing.

Authors:  Joon-Ho Yu; Julia Crouch; Seema M Jamal; Holly K Tabor; Michael J Bamshad
Journal:  Am J Med Genet A       Date:  2013-05       Impact factor: 2.802

5.  Increasing participation in genomic research and biobanking through community-based capacity building.

Authors:  Elizabeth Gross Cohn; Maryam Husamudeen; Elaine L Larson; Janet K Williams
Journal:  J Genet Couns       Date:  2014-09-18       Impact factor: 2.537

6.  Precision medicine, health disparities, and ethics: the case for disability inclusion.

Authors:  Maya Sabatello
Journal:  Genet Med       Date:  2017-08-03       Impact factor: 8.822

Review 7.  Primary-care providers' perceived barriers to integration of genetics services: a systematic review of the literature.

Authors:  Natalie A Mikat-Stevens; Ingrid A Larson; Beth A Tarini
Journal:  Genet Med       Date:  2014-09-11       Impact factor: 8.822

8.  Conducting Precision Medicine Research with African Americans.

Authors:  Chanita Hughes Halbert; Jasmine McDonald; Susan Vadaparampil; LaShanta Rice; Melanie Jefferson
Journal:  PLoS One       Date:  2016-07-21       Impact factor: 3.240
  8 in total
  6 in total

Review 1.  African genetic diversity and adaptation inform a precision medicine agenda.

Authors:  Luisa Pereira; Leon Mutesa; Paulina Tindana; Michèle Ramsay
Journal:  Nat Rev Genet       Date:  2021-01-11       Impact factor: 53.242

Review 2.  International Society of Psychiatric Genetics Ethics Committee: Issues facing us.

Authors:  Gabriel Lázaro-Muñoz; Maya Sabatello; Laura Huckins; Holly Peay; Franziska Degenhardt; Bettina Meiser; Todd Lencz; Takahiro Soda; Anna Docherty; David Crepaz-Keay; Jehannine Austin; Roseann E Peterson; Lea K Davis
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2019-05-23       Impact factor: 3.568

3.  Advocacy and actions to address disparities in access to genomic health care: A report on a National Academies workshop.

Authors:  Janet K Williams; Vence L Bonham; Catherine Wicklund; Bernice Coleman; Jacquelyn Y Taylor; Ann K Cashion
Journal:  Nurs Outlook       Date:  2019-06-18       Impact factor: 3.315

4.  The validity of self-reported SARS-CoV-2 results among postpartum respondents.

Authors:  Katharine McCarthy; Sheela Maru; Sarah Nowlin; Payal Ram; Kimberly B Glazer; Teresa Janevic
Journal:  Paediatr Perinat Epidemiol       Date:  2022-03-07       Impact factor: 3.103

5.  Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.

Authors:  Stephanie A Kraft; Erin Rothwell; Seema K Shah; Devan M Duenas; Hannah Lewis; Kristin Muessig; Douglas J Opel; Katrina A B Goddard; Benjamin S Wilfond
Journal:  J Med Ethics       Date:  2020-10-06       Impact factor: 2.903

6.  Factors Associated with Declining to Participate in a Pediatric Oncology Next Generation Sequencing Study.

Authors:  Katianne M Howard Sharp; Niki Jurbergs; Annastasia Ouma; Lynn Harrison; Elsie Gerhardt; Leslie Taylor; Kayla Hamilton; Rose B McGee; Regina Nuccio; Emily Quinn; Stacy Hines-Dowell; Chimene Kesserwan; Anusha Sunkara; Jami S Gattuso; Michelle Pritchard; Belinda Mandrell; Mary V Relling; Cyrine E Haidar; Guolian Kang; Liza M Johnson; Kim E Nichols
Journal:  JCO Precis Oncol       Date:  2020-03-24
  6 in total

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