Literature DB >> 28771252

Precision medicine, health disparities, and ethics: the case for disability inclusion.

Maya Sabatello1.   

Abstract

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Year:  2017        PMID: 28771252      PMCID: PMC5797520          DOI: 10.1038/gim.2017.120

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


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  9 in total

1.  Physical accessibility in primary health care settings: results from California on-site reviews.

Authors:  Nancy R Mudrick; Mary Lou Breslin; Mengke Liang; Silvia Yee
Journal:  Disabil Health J       Date:  2012-05-24       Impact factor: 2.554

Review 2.  Disability and genetics in the era of genomic medicine.

Authors:  Jackie Leach Scully
Journal:  Nat Rev Genet       Date:  2008-10       Impact factor: 53.242

Review 3.  Health disparities between women with and without disabilities: a review of the research.

Authors:  Jennifer P Wisdom; Marjorie G McGee; Willi Horner-Johnson; Yvonne L Michael; Elizabeth Adams; Michelle Berlin
Journal:  Soc Work Public Health       Date:  2010-05

4.  Universal design of research: inclusion of persons with disabilities in mainstream biomedical studies.

Authors:  Ann S Williams; Shirley M Moore
Journal:  Sci Transl Med       Date:  2011-05-11       Impact factor: 17.956

5.  Persons with disabilities as an unrecognized health disparity population.

Authors:  Gloria L Krahn; Deborah Klein Walker; Rosaly Correa-De-Araujo
Journal:  Am J Public Health       Date:  2015-02-17       Impact factor: 9.308

6.  Ethical challenges and complexities of including people with intellectual disability as participants in research.

Authors:  Teresa Iacono
Journal:  J Intellect Dev Disabil       Date:  2006-09

7.  Distributive justice, diversity, and inclusion in precision medicine: what will success look like?

Authors:  Elizabeth G Cohn; Gail E Henderson; Paul S Appelbaum
Journal:  Genet Med       Date:  2016-08-04       Impact factor: 8.822

Review 8.  The success of pharmacogenomics in moving genetic association studies from bench to bedside: study design and implementation of precision medicine in the post-GWAS era.

Authors:  Marylyn D Ritchie
Journal:  Hum Genet       Date:  2012-08-25       Impact factor: 4.132

9.  Prevalence of Disability and Disability Type Among Adults--United States, 2013.

Authors:  Elizabeth A Courtney-Long; Dianna D Carroll; Qing C Zhang; Alissa C Stevens; Shannon Griffin-Blake; Brian S Armour; Vincent A Campbell
Journal:  MMWR Morb Mortal Wkly Rep       Date:  2015-07-31       Impact factor: 17.586

  9 in total
  9 in total

1.  Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations.

Authors:  Maya Sabatello; Shawneequa Callier; Nanibaa' A Garrison; Elizabeth G Cohn
Journal:  Am J Bioeth       Date:  2018-04       Impact factor: 11.229

2.  "Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record.

Authors:  Sara M Andrews; Melissa Raspa; Anne Edwards; Rebecca Moultrie; Lauren Turner-Brown; Laura Wagner; Alexandra Alvarez Rivas; Mary Katherine Frisch; Anne C Wheeler
Journal:  J Am Med Inform Assoc       Date:  2020-03-01       Impact factor: 4.497

3.  Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement.

Authors:  Katherine E McDonald; Colleen Gibbons; Nicole Conroy; Robert S Olick
Journal:  J Appl Res Intellect Disabil       Date:  2021-09-24

4.  In Different Voices: The Views of People with Disabilities about Return of Results from Precision Medicine Research.

Authors:  Maya Sabatello; Yuan Zhang; Ying Chen; Paul S Appelbaum
Journal:  Public Health Genomics       Date:  2020-04-15       Impact factor: 2.000

5.  Disability inclusion in precision medicine research: a first national survey.

Authors:  Maya Sabatello; Ying Chen; Yuan Zhang; Paul S Appelbaum
Journal:  Genet Med       Date:  2019-03-22       Impact factor: 8.822

Review 6.  Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review.

Authors:  Melissa Raspa; Rebecca Moultrie; Laura Wagner; Anne Edwards; Sara Andrews; Mary Katherine Frisch; Lauren Turner-Brown; Anne Wheeler
Journal:  J Med Internet Res       Date:  2020-05-21       Impact factor: 5.428

7.  Is There a Place for Responsible Artificial Intelligence in Pandemics? A Tale of Two Countries.

Authors:  Ramzi El-Haddadeh; Adam Fadlalla; Nitham M Hindi
Journal:  Inf Syst Front       Date:  2021-05-06       Impact factor: 5.261

8.  Fourth year intellectual disability student nurses' journey and future work intention: a qualitative study.

Authors:  Owen Doody; Pauline Meskell; Sylvia Murphy-Tighe; Maria Noonan; Liz Kingston
Journal:  BMC Nurs       Date:  2022-08-08

9.  Reasonable adjustments for people with intellectual disability in acute care: a scoping review of the evidence.

Authors:  Mairead Moloney; Therese Hennessy; Owen Doody
Journal:  BMJ Open       Date:  2021-02-22       Impact factor: 2.692

  9 in total

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