Literature DB >> 29485138

Counselling and management for anticipated extremely preterm birth.

Brigitte Lemyre1, Gregory Moore1.   

Abstract

Counselling couples facing the birth of an extremely preterm infant is a complex and delicate task, entailing both challenges and opportunities. This revised position statement proposes using a prognosis-based approach that takes the best estimate of gestational age into account, along with additional factors, including estimated fetal weight, receipt of antenatal corticosteroids, singleton versus multiple pregnancy, fetal status and anomalies on ultrasound and place of birth. This statement updates data on survival in Canada, long-term neurodevelopmental disability at school age and quality of life, with focus on strategies to communicate effectively with parents. It also proposes a framework for determining the prognosis-based management option(s) to present to parents when initiating the decision-making process. This statement replaces the 2012 position statement.

Entities:  

Keywords:  ANCS; Decision making; Extremely preterm infant; NDD; QOL; SDM

Year:  2017        PMID: 29485138      PMCID: PMC5804811          DOI: 10.1093/pch/pxx058

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN: 1205-7088            Impact factor:   2.253


  86 in total

1.  Deciding for imperilled newborns: medical authority or parental autonomy?

Authors:  H E McHaffie; I A Laing; M Parker; J McMillan
Journal:  J Med Ethics       Date:  2001-04       Impact factor: 2.903

2.  Longitudinal changes in family outcomes of very low birth weight.

Authors:  Melisa Moore; H Gerry Taylor; Nancy Klein; Nori Minich; Maureen Hack
Journal:  J Pediatr Psychol       Date:  2005-09-08

3.  Family functioning, burden and parenting stress 2 years after very preterm birth.

Authors:  Karli Treyvaud; Lex W Doyle; Katherine J Lee; Gehan Roberts; Jeanie L Y Cheong; Terrie E Inder; Peter J Anderson
Journal:  Early Hum Dev       Date:  2011-04-14       Impact factor: 2.079

Review 4.  Survival rates in extremely low birthweight infants depend on the denominator: avoiding potential for bias by specifying denominators.

Authors:  Ursula Guillen; Sara DeMauro; Li Ma; John Zupancic; Eileen Wang; Amiram Gafni; Haresh Kirpalani
Journal:  Am J Obstet Gynecol       Date:  2011-05-20       Impact factor: 8.661

5.  ACOG Obstetric Care Consensus No. 3: Periviable Birth.

Authors: 
Journal:  Obstet Gynecol       Date:  2015-11       Impact factor: 7.661

6.  Deciding to resuscitate extremely premature babies: how do parents and neonatologists engage in the decision?

Authors:  Antoine Payot; Sylvie Gendron; Francine Lefebvre; Hubert Doucet
Journal:  Soc Sci Med       Date:  2006-12-28       Impact factor: 4.634

7.  Prediction of survival without morbidity for infants born at under 33 weeks gestational age: a user-friendly graphical tool.

Authors:  Prakesh S Shah; Xiang Y Ye; Anne Synnes; Nicole Rouvinez-Bouali; Wendy Yee; Shoo K Lee
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2011-09-06       Impact factor: 5.747

8.  Supplemental written information improves prenatal counseling: a randomized trial.

Authors:  Anbu Durai Muthusamy; Steven Leuthner; Charlene Gaebler-Uhing; Raymond G Hoffmann; Shun-Hwa Li; Mir Abdul Basir
Journal:  Pediatrics       Date:  2012-04-09       Impact factor: 7.124

9.  Effect of antenatal corticosteroids on survival for neonates born at 23 weeks of gestation.

Authors:  Edward J Hayes; David A Paul; Gary E Stahl; Jolene Seibel-Seamon; Kevin Dysart; Benjamin E Leiby; Amy B Mackley; Vincenzo Berghella
Journal:  Obstet Gynecol       Date:  2008-04       Impact factor: 7.661

10.  The interrelationships among parenting stress and quality of life of the caregiver and preschool child with very low birth weight.

Authors:  Ching-Fang Lee; Fang-Ming Hwang; Chwen-Jen Chen; Li-Yin Chien
Journal:  Fam Community Health       Date:  2009 Jul-Sep
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  15 in total

1.  Clinical risk models for preterm birth less than 28 weeks and less than 32 weeks of gestation using a large retrospective cohort.

Authors:  Reza Arabi Belaghi; Joseph Beyene; Sarah D McDonald
Journal:  J Perinatol       Date:  2021-06-10       Impact factor: 2.521

2.  Outcomes of neonates born at <26 weeks gestational age who receive extensive cardiopulmonary resuscitation compared with airway and breathing support.

Authors:  Vivek Shukla; Omar Elkhateeb; Prakesh S Shah; Junmin Yang; Kyong-Soon Lee
Journal:  J Perinatol       Date:  2020-01-07       Impact factor: 2.521

3.  Diverse perspectives on death, disability, and quality of life: an exploratory study of racial differences in periviable decision-making.

Authors:  Brownsyne Tucker Edmonds; Shelley M Hoffman; Tatiana Laitano; Erin Jeffries; Shannon Jager; Karen Kavanaugh
Journal:  J Perinatol       Date:  2020-07-23       Impact factor: 2.521

4.  Evaluating the Use of a Decision Aid for Parents Facing Extremely Premature Delivery: A Randomized Trial.

Authors:  Úrsula Guillén; Amy Mackley; Naomi Laventhal; Stephanie Kukora; Lori Christ; Matthew Derrick; Jennifer Batza; Sarvin Ghavam; Haresh Kirpalani
Journal:  J Pediatr       Date:  2019-04-02       Impact factor: 4.406

5.  Singapore Neonatal Resuscitation Guidelines 2021.

Authors:  Agnihotri Biswas; Selina Kah Ying Ho; Wai Yan Yip; Khadijah Binti Abdul Kader; Juin Yee Kong; Kenny Teong Tai Ee; Vijayendra Ranjan Baral; Amutha Chinnadurai; Bin Huey Quek; Cheo Lian Yeo
Journal:  Singapore Med J       Date:  2021-08       Impact factor: 1.858

6.  Natural evolution of the patent ductus arteriosus in the extremely premature newborn and respiratory outcomes.

Authors:  Gabriela de Carvalho Nunes; Punnanee Wutthigate; Jessica Simoneau; Marc Beltempo; Guilherme Mendes Sant'Anna; Gabriel Altit
Journal:  J Perinatol       Date:  2021-11-23       Impact factor: 2.521

Review 7.  Historical Perspectives: Shared Decision Making in the NICU.

Authors:  Anne Sullivan; Christy Cummings
Journal:  Neoreviews       Date:  2020-04

8.  Shared decision making during antenatal counselling for anticipated extremely preterm birth.

Authors:  Conor Barker; Sandra Dunn; Gregory P Moore; Jessica Reszel; Brigitte Lemyre; Thierry Daboval
Journal:  Paediatr Child Health       Date:  2018-12-03       Impact factor: 2.253

9.  Cost-effectiveness Analysis of Screening Extremely Low Birth Weight Children for Hepatoblastoma Using Serum Alpha-fetoprotein.

Authors:  Rebecca MacDonell-Yilmaz; Kelly Anderson; Bradley DeNardo; Philippa Sprinz; William V Padula
Journal:  J Pediatr       Date:  2020-05-26       Impact factor: 4.406

10.  Neurodevelopmental outcomes of very low birth weight infants in the Neonatal Research Network of Japan: importance of neonatal intensive care unit graduate follow-up.

Authors:  Yumi Kono
Journal:  Clin Exp Pediatr       Date:  2020-11-09
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