Literature DB >> 32238484

Historical Perspectives: Shared Decision Making in the NICU.

Anne Sullivan1, Christy Cummings1.   

Abstract

The ethical dilemmas and predominant frameworks surrounding decision making for critically ill newborns have evolved substantially over the last 40 years. A shared decision-making approach is now favored, involving an exchange of information between parents and clinicians that emphasizes parental values and preferences, resulting in a personalized approach to decision making. In this review, we summarize the history of clinical decision making with a focus on the NICU, highlight different models of decision making, describe the advantages and current limitations of shared decision making, and discuss the ongoing and future challenges of decision making in the NICU amidst medical innovations and emerging technologies.
Copyright © 2020 by the American Academy of Pediatrics.

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Mesh:

Year:  2020        PMID: 32238484      PMCID: PMC8049458          DOI: 10.1542/neo.21-4-e217

Source DB:  PubMed          Journal:  Neoreviews        ISSN: 1526-9906


  40 in total

1.  Has the emphasis on autonomy gone too far? Insights from Dostoevsky on parental decisionmaking in the NICU.

Authors:  John J Paris; Neil Graham; Michael D Schreiber; Michele Goodwin
Journal:  Camb Q Healthc Ethics       Date:  2006       Impact factor: 1.284

2.  Ethical framework for shared decision making in the neonatal intensive care unit: Communicative ethics.

Authors:  Thierry Daboval; Sarah Shidler
Journal:  Paediatr Child Health       Date:  2014-06       Impact factor: 2.253

3.  Perceived role in end-of-life decision making in the NICU affects long-term parental grief response.

Authors:  Laurence Caeymaex; Catherine Jousselme; Caroline Vasilescu; Claude Danan; Bruno Falissard; Marie-Michèle Bourrat; Micheline Garel; Mario Speranza
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2012-06-25       Impact factor: 5.747

Review 4.  Values-based shared decision-making in the antenatal period.

Authors:  Stephanie K Kukora; Renee D Boss
Journal:  Semin Fetal Neonatal Med       Date:  2017-09-13       Impact factor: 3.926

5.  Implicit Physician Biases in Periviability Counseling.

Authors:  Natasha Shapiro; Elena V Wachtel; Sean M Bailey; Michael M Espiritu
Journal:  J Pediatr       Date:  2018-03-20       Impact factor: 4.406

6.  Is the best interest standard good for pediatrics?

Authors:  Rosamond Rhodes; Ian R Holzman
Journal:  Pediatrics       Date:  2014-10       Impact factor: 7.124

7.  Evaluating the Use of a Decision Aid for Parents Facing Extremely Premature Delivery: A Randomized Trial.

Authors:  Úrsula Guillén; Amy Mackley; Naomi Laventhal; Stephanie Kukora; Lori Christ; Matthew Derrick; Jennifer Batza; Sarvin Ghavam; Haresh Kirpalani
Journal:  J Pediatr       Date:  2019-04-02       Impact factor: 4.406

Review 8.  Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology.

Authors:  Annie Janvier; Keith Barrington; Barbara Farlow
Journal:  Semin Perinatol       Date:  2014-02       Impact factor: 3.300

9.  Antenatal Counseling Regarding Resuscitation and Intensive Care Before 25 Weeks of Gestation.

Authors:  James Cummings
Journal:  Pediatrics       Date:  2015-09       Impact factor: 7.124

10.  Message framing and perinatal decisions.

Authors:  Marlyse F Haward; Ryan O Murphy; John M Lorenz
Journal:  Pediatrics       Date:  2008-07       Impact factor: 7.124

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  5 in total

1.  Decision making at extreme prematurity: Innovation in clinician education.

Authors:  Anne Sullivan; Christy L Cummings
Journal:  Semin Perinatol       Date:  2021-11-09       Impact factor: 3.311

2.  Catholic Perspective on Decision-Making for Critically Ill Newborns and Infants.

Authors:  Annie B Friedrich; Jason T Eberl
Journal:  Children (Basel)       Date:  2022-02-06

3.  Conversations About End-of-Life Decisions in Neonatology: Do Doctors and Parents Implement Shared Decision-Making?

Authors:  Esther S Schouten; Maria F Beyer; Andreas W Flemmer; Mirjam A de Vos; Katja Kuehlmeyer
Journal:  Front Pediatr       Date:  2022-05-23       Impact factor: 3.569

4.  Exploring implicit bias in the perceived consequences of prematurity amongst health care providers in North Queensland - a constructivist grounded theory study.

Authors:  Susan Ireland; Robin Ray; Sarah Larkins; Lynn Woodward
Journal:  BMC Pregnancy Childbirth       Date:  2021-01-13       Impact factor: 3.007

5.  Ethical considerations in the care of encephalopathic neonates treated with therapeutic hypothermia.

Authors:  Monica E Lemmon; Courtney J Wusthoff; Renee D Boss; Lisa Anne Rasmussen
Journal:  Semin Fetal Neonatal Med       Date:  2021-06-12       Impact factor: 3.726

  5 in total

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