Literature DB >> 28938289

Discussing Benefits and Risks of Tracheostomy: What Physicians Actually Say.

Lauren M Hebert1,2, Anne C Watson3, Vanessa Madrigal3,4, Tessie W October3,4.   

Abstract

OBJECTIVES: When contemplating tracheostomy placement in a pediatric patient, a family-physician conference is often the setting for the disclosure of risks and benefits of the procedure. Our objective was to compare benefits and risks of tracheostomy presented during family-physician conferences to an expert panel's recommendations for what should be presented.
DESIGN: We conducted a retrospective review of 19 transcripts of audio-recorded family-physician conferences regarding tracheostomy placement in children. A multicenter, multidisciplinary expert panel of clinicians was surveyed to generate a list of recommended benefits and risks for comparison. Primary analysis of statements by clinicians was qualitative.
SETTING: Single-center PICU of a tertiary medical center.
SUBJECTS: Family members who participated in family-physician conferences regarding tracheostomy placement for a critically ill child from April 2012 to August 2014.
MEASUREMENTS AND MAIN RESULTS: We identified 300 physician statements describing benefits and risks of tracheostomy. Physicians were more likely to discuss benefits than risks (72% vs 28%). Three broad categories of benefits were identified: 1) tracheostomy would limit the impact of being in the PICU (46%); 2) perceived obstacles of tracheostomy can be overcome (34%); and 3) tracheostomy optimizes respiratory health (20%). Risks fell into two categories: tracheostomy involves a big commitment (71%), and it has complications (29%). The expert panel's recommendations were similar to risks and benefits discussed during family conferences; however, they suggested physicians present an equal balance of discussion of risks and benefits.
CONCLUSIONS: When discussing tracheostomy placement, physicians emphasized benefits that are shared by physicians and families while minimizing the risks. The expert panel recommended a balanced approach by equally weighing risks and benefits. To facilitate educated decision making, physicians should present a more extensive range of risks and benefits to families making this critical decision.

Entities:  

Mesh:

Year:  2017        PMID: 28938289      PMCID: PMC5716895          DOI: 10.1097/PCC.0000000000001341

Source DB:  PubMed          Journal:  Pediatr Crit Care Med        ISSN: 1529-7535            Impact factor:   3.624


  37 in total

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Authors:  Mona L McPherson; Lara Shekerdemian; Michelle Goldsworthy; Charles G Minard; Cynthia S Nelson; Fernando Stein; Jeanine M Graf
Journal:  Pediatr Pulmonol       Date:  2017-03-06

2.  Talking with parents about end-of-life decisions for their children.

Authors:  Mirjam A de Vos; Albert P Bos; Frans B Plötz; Marc van Heerde; Bert M de Graaff; Kiek Tates; Robert D Truog; Dick L Willems
Journal:  Pediatrics       Date:  2015-01-05       Impact factor: 7.124

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Journal:  J Child Neurol       Date:  2007-08       Impact factor: 1.987

4.  Parental quality of life: caring for an infant or toddler with a tracheostomy at home.

Authors:  Rachel A Joseph; Linda M Goodfellow; Lynn M Simko
Journal:  Neonatal Netw       Date:  2014 Mar-Apr

5.  Pediatric tracheotomy: indications and decannulation outcomes.

Authors:  Jamie L Funamura; Blythe Durbin-Johnson; Travis T Tollefson; Jeanette Harrison; Craig W Senders
Journal:  Laryngoscope       Date:  2014-02-20       Impact factor: 3.325

6.  Sending children home on tracheostomy dependent ventilation: pitfalls and outcomes.

Authors:  E A Edwards; M O'Toole; C Wallis
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7.  Pediatric tracheotomies: a 37-year experience in 282 children.

Authors:  Suay Ozmen; Omer Afsin Ozmen; Omer Faruk Unal
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8.  Tracheostomy for infants requiring prolonged mechanical ventilation: 10 years' experience.

Authors:  Alison E Overman; Meixia Liu; Stephen C Kurachek; Michael R Shreve; Roy C Maynard; Mark C Mammel; Brooke M Moore
Journal:  Pediatrics       Date:  2013-04-08       Impact factor: 7.124

9.  Inappropriate care in European ICUs: confronting views from nurses and junior and senior physicians.

Authors:  Ruth D Piers; Elie Azoulay; Bara Ricou; Freda DeKeyser Ganz; Adeline Max; Andrej Michalsen; Paulo Azevedo Maia; Radoslaw Owczuk; Francesca Rubulotta; Anne-Pascale Meert; Anna K Reyners; Johan Decruyenaere; Dominique D Benoit
Journal:  Chest       Date:  2014-08       Impact factor: 9.410

10.  Tracheostomy Placement in Children Younger Than 2 Years: 30-Day Outcomes Using the National Surgical Quality Improvement Program Pediatric.

Authors:  Justin B Mahida; Lindsey Asti; Emily F Boss; Rahul K Shah; Katherine J Deans; Peter C Minneci; Kris R Jatana
Journal:  JAMA Otolaryngol Head Neck Surg       Date:  2016-03       Impact factor: 6.223

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  11 in total

Review 1.  Pediatric palliative care in the intensive care unit and questions of quality: a review of the determinants and mechanisms of high-quality palliative care in the pediatric intensive care unit (PICU).

Authors:  Sara Rhodes Short; Rachel Thienprayoon
Journal:  Transl Pediatr       Date:  2018-10

2.  Caregiver Perceptions about their Decision to Pursue Tracheostomy for Children with Medical Complexity.

Authors:  Savithri Nageswaran; Shannon L Golden; W Adam Gower; Nancy M P King
Journal:  J Pediatr       Date:  2018-09-17       Impact factor: 4.406

3.  Decisions for Long-Term Ventilation for Children. Perspectives of Family Members.

Authors:  Jeffrey D Edwards; Howard B Panitch; Judith E Nelson; Rachel L Miller; Marilyn C Morris
Journal:  Ann Am Thorac Soc       Date:  2020-01

4.  Clinical Proof of Concept for Stabilization of Tracheostomy Tubes Using Novel DYNAtraq Device.

Authors:  Mauricio Orozco-Levi; Carlos Reyes; Neikel Quintero; Diana Tiga-Loza; Mabel Reyes; Sandra Sanabria; Camilo Pizarro; Juan De Hoyos; Norma Serrano; Victor Castillo; Alba Ramírez-Sarmiento
Journal:  Med Devices (Auckl)       Date:  2022-07-13

5.  Tracheostomy Practices and Outcomes in Children During Respiratory Extracorporeal Membrane Oxygenation.

Authors:  Joseph G Kohne; Graeme MacLaren; Erica Rider; Benjamin D Carr; Palen Mallory; Acham Gebremariam; Matthew L Friedman; Ryan P Barbaro
Journal:  Pediatr Crit Care Med       Date:  2022-01-26       Impact factor: 3.971

6.  Parental Conflict, Regret, and Short-term Impact on Quality of Life in Tracheostomy Decision-Making.

Authors:  Tessie W October; Amy H Jones; Hannah Greenlick Michals; Lauren M Hebert; Jiji Jiang; Jichuan Wang
Journal:  Pediatr Crit Care Med       Date:  2020-02       Impact factor: 3.624

7.  "This Is How Hard It Is". Family Experience of Hospital-to-Home Transition with a Tracheostomy.

Authors:  Laura G Amar-Dolan; Mary H Horn; Brianna O'Connell; Susan K Parsons; Christopher J Roussin; Peter H Weinstock; Robert J Graham
Journal:  Ann Am Thorac Soc       Date:  2020-07

8.  Development and validation of a novel informational booklet for pediatric long-term ventilation decision support.

Authors:  Jeffrey D Edwards; Howard B Panitch; Maureen George; Anne-Marie Cirrilla; Eli Grunstein; Joanne Wolfe; Judith E Nelson; Rachel L Miller
Journal:  Pediatr Pulmonol       Date:  2020-12-23

9.  Pediatric Long-Term Endotracheal Intubation and Role for Tracheostomy: Patient and Provider Factors.

Authors:  Kassi Ackerman; Taylor P Saley; Nasir Mushtaq; Timothy Carroll
Journal:  J Pediatr Intensive Care       Date:  2018-11-26

10.  Using Narratives to Correct Forecasting Errors in Pediatric Tracheostomy Decision Making.

Authors:  Haoyang Yan; Patricia J Deldin; Stephanie K Kukora; Cynthia Arslanian-Engoren; Kenneth Pituch; Brian J Zikmund-Fisher
Journal:  Med Decis Making       Date:  2021-02-09       Impact factor: 2.749

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