Literature DB >> 24589900

Parental quality of life: caring for an infant or toddler with a tracheostomy at home.

Rachel A Joseph, Linda M Goodfellow, Lynn M Simko.   

Abstract

PURPOSE: To explore the relationships between stress, coping, duration of tracheostomy, and quality of life (QOL) of parental caregivers who care for a child with a tracheostomy at home.
DESIGN: A cross-sectional correlational design was used to study parents who care for a child with a tracheostomy at home. Family Inventory of Life Events, Family Crisis Oriented Personal Evaluation Scale, and Psychological General Well-Being Index were used to measure stress, coping, and QOL, respectively. Data were collected using both online and paper-pencil format. MAIN OUTCOME VARIABLE: quality of life.
RESULTS: Parents who care for their infants/toddlers with a tracheostomy at home were found to be in moderate distress. Mean age of the participants was 33 years (N = 71), and the average duration of the child's tracheotomy was 18.22 (SD = 9.59) months. Multivariate analysis showed a significant inverse relationship between QOL and stress. QOL was significantly associated with coping, B = 19.91, β = .43, p <.001.

Entities:  

Keywords:  QOL; coping; parental caregivers; quality of life; stress

Mesh:

Year:  2014        PMID: 24589900     DOI: 10.1891/0730-0832.33.2.86

Source DB:  PubMed          Journal:  Neonatal Netw        ISSN: 0730-0832


  5 in total

1.  Discussing Benefits and Risks of Tracheostomy: What Physicians Actually Say.

Authors:  Lauren M Hebert; Anne C Watson; Vanessa Madrigal; Tessie W October
Journal:  Pediatr Crit Care Med       Date:  2017-12       Impact factor: 3.624

2.  Quality of life of working and non-working Jordanian mothers caring for chronically ill child and its associated factors.

Authors:  Huda F Gharaibeh; Muntaha K Gharaibeh
Journal:  Heliyon       Date:  2021-03-08

3.  Translational cultural adaptation and psychometric study of the Persian version of pediatric inventory for parents.

Authors:  Sedigheh Khanjari; Fereshteh Javaheri Tehrani; Shabnam Shariat Panahi; Ahmad Saidee
Journal:  J Educ Health Promot       Date:  2021-02-27

4.  2021 American Thyroid Association Guidelines for Management of Patients with Anaplastic Thyroid Cancer.

Authors:  Keith C Bible; Electron Kebebew; James Brierley; Juan P Brito; Maria E Cabanillas; Thomas J Clark; Antonio Di Cristofano; Robert Foote; Thomas Giordano; Jan Kasperbauer; Kate Newbold; Yuri E Nikiforov; Gregory Randolph; M Sara Rosenthal; Anna M Sawka; Manisha Shah; Ashok Shaha; Robert Smallridge; Carol K Wong-Clark
Journal:  Thyroid       Date:  2021-03       Impact factor: 6.568

5.  Outcomes of neonates with tracheostomy secondary to bronchopulmonary dysplasia.

Authors:  Kirtikumar Upadhyay; Dario Antonio Vallarino; Ajay J Talati
Journal:  BMC Pediatr       Date:  2020-09-01       Impact factor: 2.125

  5 in total

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