Literature DB >> 30460185

Pediatric palliative care in the intensive care unit and questions of quality: a review of the determinants and mechanisms of high-quality palliative care in the pediatric intensive care unit (PICU).

Sara Rhodes Short1, Rachel Thienprayoon1.   

Abstract

This article reviews the state and practice of pediatric palliative care (PC) within the pediatric intensive care unit (PICU) with specific consideration of quality issues. This includes defining PC and end of life (EOL) care. We will also describe PC as it pertains to alleviating children's suffering through the provision of "concurrent care" in the ICU environment. Modes of care, and attendant strengths, of both the consultant and integrated models will be presented. We will review salient issues related to the provision of PC in the PICU, barriers to optimal practice, parental, and staff perceptions. Opportunity areas for quality improvement and the role of initiatives and measures such as education, family-based initiatives, staff needs, symptom recognition, grief, and communication follow. To conclude, we will look to the literature for PC resources for pediatric intensivists and future directions of study.

Entities:  

Keywords:  Pediatric palliative care; end of life (EOL); hospice; pediatric intensive care; quality

Year:  2018        PMID: 30460185      PMCID: PMC6212394          DOI: 10.21037/tp.2018.09.11

Source DB:  PubMed          Journal:  Transl Pediatr        ISSN: 2224-4336


  87 in total

1.  Barriers to palliative care for children: perceptions of pediatric health care providers.

Authors:  Betty Davies; Sally A Sehring; J Colin Partridge; Bruce A Cooper; Anne Hughes; Julie C Philp; Aara Amidi-Nouri; Robin F Kramer
Journal:  Pediatrics       Date:  2008-02       Impact factor: 7.124

2.  Guidance for clinicians involved in end-of-life care of children.

Authors: 
Journal:  Lancet       Date:  2015-04-04       Impact factor: 79.321

3.  Talking with parents about end-of-life decisions for their children.

Authors:  Mirjam A de Vos; Albert P Bos; Frans B Plötz; Marc van Heerde; Bert M de Graaff; Kiek Tates; Robert D Truog; Dick L Willems
Journal:  Pediatrics       Date:  2015-01-05       Impact factor: 7.124

4.  Increasing Access to the Benefits of Palliative Care in the PICU.

Authors:  Marcia Levetown
Journal:  Pediatr Crit Care Med       Date:  2016-08       Impact factor: 3.624

5.  Proposed quality measures for palliative care in the critically ill: a consensus from the Robert Wood Johnson Foundation Critical Care Workgroup.

Authors:  Richard A Mularski; J Randall Curtis; J Andrew Billings; Robert Burt; Ira Byock; Cathy Fuhrman; Anne C Mosenthal; Justine Medina; Daniel E Ray; Gordon D Rubenfeld; Lawrence J Schneiderman; Patsy D Treece; Robert D Truog; Mitchell M Levy
Journal:  Crit Care Med       Date:  2006-11       Impact factor: 7.598

6.  Effect of a quality-improvement intervention on end-of-life care in the intensive care unit: a randomized trial.

Authors:  J Randall Curtis; Elizabeth L Nielsen; Patsy D Treece; Lois Downey; Danae Dotolo; Sarah E Shannon; Anthony L Back; Gordon D Rubenfeld; Ruth A Engelberg
Journal:  Am J Respir Crit Care Med       Date:  2010-09-10       Impact factor: 21.405

7.  Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death.

Authors:  Mary Ellen Macdonald; Stephen Liben; Franco A Carnevale; Janet E Rennick; Susan L Wolf; Donald Meloche; S Robin Cohen
Journal:  Pediatrics       Date:  2005-10       Impact factor: 7.124

8.  Examining the needs of bereaved parents in the pediatric intensive care unit: a qualitative study.

Authors:  Kathleen L Meert; Sherylyn H Briller; Stephanie Myers Schim; Celia Thurston; Allison Kabel
Journal:  Death Stud       Date:  2009-09

9.  A Retrospective Review of Resuscitation Planning at a Children's Hospital.

Authors:  Jean Kelly; Jo Ritchie; Leigh Donovan; Carol Graham; Anthony Herbert
Journal:  Children (Basel)       Date:  2018-01-04

10.  General paediatric inpatient deaths over a 15-year period.

Authors:  Amanda Roth; Adam Rapoport; Kimberley Widger; Jeremy N Friedman
Journal:  Paediatr Child Health       Date:  2017-04-17       Impact factor: 2.253

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