Literature DB >> 26762366

Analysis of Advantages, Limitations, and Barriers of Genetic Counseling Service Delivery Models.

Stephanie A Cohen1, Rachelle C Huziak2, Shanna Gustafson3, Robin E Grubs4.   

Abstract

Previous studies on genetic counseling service delivery models (SDMs) have shown that genetic counselors (GCs) are incorporating alternate models to address growing service demand and improve access to genetic services. This study sought to identify barriers, limitations and advantages to previously identified genetic counseling SDMs. A qualitative research design was employed, in which 20 practicing GCs who utilize a variety of SDMs were interviewed using an email interview format. Interview transcripts were analyzed using a thematic analysis to identify themes related to implementation and utilization of SDMs. Factors that led GCs to implement SDMs other than in-person genetic counseling included: 1) travel distance, 2) wait time and 3) convenience. Logistical issues such as billing and reimbursement, equipment set up, making arrangements for genetic testing and the inability to see the patient are major limitations to alternative genetic counseling SDMs in clinical practice. However, GCs interviewed stated that the convenience to the patient and genetic counselor of alternative SDMs outweighed these limitations. More research is needed to assess the outcomes of SDMs in practice to demonstrate an impact on the identified barriers of travel distance, wait time and convenience.

Entities:  

Keywords:  Access; Genetic counseling; Service delivery models

Mesh:

Year:  2016        PMID: 26762366     DOI: 10.1007/s10897-016-9932-2

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  29 in total

1.  The virtual consultation: practitioners' experiences of genetic counseling by videoconferencing in Australia.

Authors:  Elvira Zilliacus; Bettina Meiser; Elizabeth Lobb; Tracey E Dudding; Kristine Barlow-Stewart; Katherine Tucker
Journal:  Telemed J E Health       Date:  2010-04       Impact factor: 3.536

2.  Delivery of Internet-based cancer genetic counselling services to patients' homes: a feasibility study.

Authors:  Neal J Meropol; Mary B Daly; Hetal S Vig; Frank J Manion; Sharon L Manne; Carla Mazar; Camara Murphy; Nicholas Solarino; Vadim Zubarev
Journal:  J Telemed Telecare       Date:  2010-11-19       Impact factor: 6.184

3.  Attitudes of genetic clinicians in Wales to the future development of cancer genetics services.

Authors:  Rachel Iredale; Glyn Elwyn; Adrian Edwards; Jonathon Gray
Journal:  J Eval Clin Pract       Date:  2007-02       Impact factor: 2.431

4.  Recommendations for Telephone Counseling.

Authors:  K E Ormond; J Haun; L Cook; D Duquette; C Ludowese; A L Matthews
Journal:  J Genet Couns       Date:  2000-02       Impact factor: 2.537

5.  Telegenetics in Maine: Successful clinical and educational service delivery model developed from a 3-year pilot project.

Authors:  Dale Halsey Lea; Judith L Johnson; Sara Ellingwood; Walter Allan; Arvind Patel; Rosemarie Smith
Journal:  Genet Med       Date:  2005-01       Impact factor: 8.822

6.  A comparison of patient satisfaction with telehealth and on-site consultations: a pilot study for prenatal genetic counseling.

Authors:  Debra J Abrams; Mark R Geier
Journal:  J Genet Couns       Date:  2006-06       Impact factor: 2.537

7.  The evolution of personalized cancer genetic counseling in the era of personalized medicine.

Authors:  Hetal S Vig; Catharine Wang
Journal:  Fam Cancer       Date:  2012-09       Impact factor: 2.375

8.  A large health system's approach to utilization of the genetic counselor CPT® 96040 code.

Authors:  Shanna L Gustafson; Gail Pfeiffer; Charis Eng
Journal:  Genet Med       Date:  2011-12       Impact factor: 8.822

9.  Telephone genetic counseling for high-risk women undergoing BRCA1 and BRCA2 testing: rationale and development of a randomized controlled trial.

Authors:  Beth N Peshkin; Tiffani A Demarco; Kristi D Graves; Karen Brown; Rachel H Nusbaum; Diana Moglia; Andrea Forman; Heiddis Valdimarsdottir; Marc D Schwartz
Journal:  Genet Test       Date:  2008-03

10.  Report from the National Society of Genetic Counselors service delivery model task force: a proposal to define models, components, and modes of referral.

Authors:  Stephanie A Cohen; Shanna L Gustafson; Monica L Marvin; Bronson D Riley; Wendy R Uhlmann; S Bonnie Liebers; Julie A Rousseau
Journal:  J Genet Couns       Date:  2012-05-08       Impact factor: 2.537

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  16 in total

1.  Counselees' Perspectives of Genomic Counseling Following Online Receipt of Multiple Actionable Complex Disease and Pharmacogenomic Results: a Qualitative Research Study.

Authors:  Kevin Sweet; Shelly Hovick; Amy C Sturm; Tara Schmidlen; Erynn Gordon; Barbara Bernhardt; Lisa Wawak; Karen Wernke; Joseph McElroy; Laura Scheinfeldt; Amanda E Toland; J S Roberts; Michael Christman
Journal:  J Genet Couns       Date:  2016-12-05       Impact factor: 2.537

2.  Operationalizing the Reciprocal Engagement Model of Genetic Counseling Practice: a Framework for the Scalable Delivery of Genomic Counseling and Testing.

Authors:  Tara Schmidlen; Amy C Sturm; Shelly Hovick; Laura Scheinfeldt; J Scott Roberts; Lindsey Morr; Joseph McElroy; Amanda E Toland; Michael Christman; Julianne M O'Daniel; Erynn S Gordon; Barbara A Bernhardt; Kelly E Ormond; Kevin Sweet
Journal:  J Genet Couns       Date:  2018-02-19       Impact factor: 2.537

3.  Experiences of Genetic Counselors Practicing in Rural Areas.

Authors:  Margaret Emmet; Quinn Stein; Erin Thorpe; MaryAnn Campion
Journal:  J Genet Couns       Date:  2017-08-22       Impact factor: 2.537

4.  Analysis of Reimbursement of Genetic Counseling Services at a Single Institution in a State Requiring Licensure.

Authors:  Jennifer R Leonhard; Paul J Munson; Jason D Flanagan; Kristen L De Berg; Paul A Thompson; Lori W Dean; Quinn P Stein
Journal:  J Genet Couns       Date:  2017-02-08       Impact factor: 2.537

5.  Universal Versus Targeted Screening for Lynch Syndrome: Comparing Ascertainment and Costs Based on Clinical Experience.

Authors:  Mujde Z Erten; Luca P Fernandez; Hank K Ng; Wendy C McKinnon; Brandie Heald; Christopher J Koliba; Marc S Greenblatt
Journal:  Dig Dis Sci       Date:  2016-07-06       Impact factor: 3.199

6.  Possible barriers for genetic counselors returning actionable genetic research results across state lines.

Authors:  Megan C Roberts; Elisabeth M Wood; Jill Bennett Gaieski; Angela R Bradbury
Journal:  Genet Med       Date:  2017-04-20       Impact factor: 8.822

Review 7.  The composition and capacity of the clinical genetics workforce in high-income countries: a scoping review.

Authors:  Nick Dragojlovic; Kennedy Borle; Nicola Kopac; Ursula Ellis; Patricia Birch; Shelin Adam; Jan M Friedman; Amy Nisselle; Alison M Elliott; Larry D Lynd
Journal:  Genet Med       Date:  2020-06-24       Impact factor: 8.822

Review 8.  A systematic review of geographical inequities for accessing clinical genomic and genetic services for non-cancer related rare disease.

Authors:  Stephanie Best; Nada Vidic; Kim An; Felicity Collins; Susan M White
Journal:  Eur J Hum Genet       Date:  2022-01-20       Impact factor: 5.351

9.  Predictors of genetic beliefs toward cancer risk perceptions among adults in the United States: Implications for prevention or early detection.

Authors:  Lawrence P McKinney; Gemechu B Gerbi; Lee S Caplan; Mechelle D Claridy; Brian M Rivers
Journal:  J Genet Couns       Date:  2020-02-27       Impact factor: 2.717

10.  Comparing models of delivery for cancer genetics services among patients receiving primary care who meet criteria for genetic evaluation in two healthcare systems: BRIDGE randomized controlled trial.

Authors:  Kimberly A Kaphingst; Wendy Kohlmann; Rachelle Lorenz Chambers; Melody S Goodman; Richard Bradshaw; Priscilla A Chan; Daniel Chavez-Yenter; Sarah V Colonna; Whitney F Espinel; Jessica N Everett; Amanda Gammon; Eric R Goldberg; Javier Gonzalez; Kelsi J Hagerty; Rachel Hess; Kelsey Kehoe; Cecilia Kessler; Kadyn E Kimball; Shane Loomis; Tiffany R Martinez; Rachel Monahan; Joshua D Schiffman; Dani Temares; Katie Tobik; David W Wetter; Devin M Mann; Kensaku Kawamoto; Guilherme Del Fiol; Saundra S Buys; Ophira Ginsburg
Journal:  BMC Health Serv Res       Date:  2021-06-02       Impact factor: 2.655

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