Literature DB >> 28425980

Possible barriers for genetic counselors returning actionable genetic research results across state lines.

Megan C Roberts1, Elisabeth M Wood2, Jill Bennett Gaieski3, Angela R Bradbury2,4.   

Abstract

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Year:  2017        PMID： 28425980     DOI： 10.1038/gim.2017.34

Source DB:  PubMed          Journal:  Genet Med        ISSN： 1098-3600            Impact factor:   8.822


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  12 in total

1.  Clinically Significant Germline Mutations in Cancer-Causing Genes Identified Through Research Studies Should Be Offered to Research Participants by Genetic Counselors.

Authors:  Laura E Forrest; Mary-Anne Young
Journal:  J Clin Oncol       Date:  2016-01-19       Impact factor: 44.544

2.  Genetic counselor licensure proponents call for more states to adopt licensing laws: Benefits of licensure extend to geneticists, counselors, and patients.

Authors: 
Journal:  Am J Med Genet A       Date:  2016-01       Impact factor: 2.802

3.  Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).

Authors:  Christine Weiner
Journal:  Am J Epidemiol       Date:  2014-08-22       Impact factor: 4.897

4.  A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report.

Authors:  Robert Resta; Barbara Bowles Biesecker; Robin L Bennett; Sandra Blum; Susan Estabrooks Hahn; Michelle N Strecker; Janet L Williams
Journal:  J Genet Couns       Date:  2006-04       Impact factor: 2.537

5.  Randomized Noninferiority Trial of Telephone Delivery of BRCA1/2 Genetic Counseling Compared With In-Person Counseling: 1-Year Follow-Up.

Authors:  Anita Y Kinney; Laurie E Steffen; Barbara H Brumbach; Wendy Kohlmann; Ruofei Du; Ji-Hyun Lee; Amanda Gammon; Karin Butler; Saundra S Buys; Antoinette M Stroup; Rebecca A Campo; Kristina G Flores; Jeanne S Mandelblatt; Marc D Schwartz
Journal:  J Clin Oncol       Date:  2016-06-20       Impact factor: 44.544

6.  Finding Fault? Exploring Legal Duties to Return Incidental Findings in Genomic Research.

Authors:  Elizabeth R Pike; Karen H Rothenberg; Benjamin E Berkman
Journal:  Georgetown Law J       Date:  2014

7.  Analysis of Advantages, Limitations, and Barriers of Genetic Counseling Service Delivery Models.

Authors:  Stephanie A Cohen; Rachelle C Huziak; Shanna Gustafson; Robin E Grubs
Journal:  J Genet Couns       Date:  2016-01-14       Impact factor: 2.537

8.  Genetic testing and cancer risk management recommendations by physicians for at-risk relatives.

Authors:  Sharon E Plon; H Paul Cooper; Bethany Parks; Shweta U Dhar; P Adam Kelly; Armin D Weinberg; Stephanie Staggs; Tao Wang; Susan Hilsenbeck
Journal:  Genet Med       Date:  2011-02       Impact factor: 8.822

9.  My46: a Web-based tool for self-guided management of genomic test results in research and clinical settings.

Authors:  Holly K Tabor; Seema M Jamal; Joon-Ho Yu; Julia M Crouch; Aditi G Shankar; Karin M Dent; Nick Anderson; Damon A Miller; Brett T Futral; Michael J Bamshad
Journal:  Genet Med       Date:  2016-09-15       Impact factor: 8.822

10.  Utilizing Remote Real-Time Videoconferencing to Expand Access to Cancer Genetic Services in Community Practices: A Multicenter Feasibility Study.

Authors:  Angela Bradbury; Linda Patrick-Miller; Diana Harris; Evelyn Stevens; Brian Egleston; Kyle Smith; Rebecca Mueller; Amanda Brandt; Jill Stopfer; Shea Rauch; Andrea Forman; Rebecca Kim; Dominique Fetzer; Linda Fleisher; Mary Daly; Susan Domchek
Journal:  J Med Internet Res       Date:  2016-02-01       Impact factor: 5.428
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  6 in total

1.  Attitudes and interest in incorporating BRCA1/2 cancer susceptibility testing into reproductive carrier screening for Ashkenazi Jewish men and women.

Authors:  Melanie W Hardy; Beth N Peshkin; Esther Rose; Mary Kathleen Ladd; Savannah Binion; Mara Tynan; Colleen M McBride; Karen A Grinzaid; Marc D Schwartz
Journal:  J Community Genet       Date:  2022-04-29

2.  Researchers' perspectives on return of individual genetics results to research participants: a qualitative study.

Authors:  Erisa Sabakaki Mwaka; Deborah Ekusai Sebatta; Joseph Ochieng; Ian Guyton Munabi; Godfrey Bagenda; Deborah Ainembabazi; David Kaawa-Mafigiri
Journal:  Glob Bioeth       Date:  2021-03-09

3.  The use of telemedicine in cardiogenetics clinical practice during the COVID-19 pandemic.

Authors:  Lusha W Liang; Isha Kalia; Farhana Latif; Marc P Waase; Yuichi J Shimada; Gabriel Sayer; Muredach P Reilly; Nir Uriel
Journal:  Mol Genet Genomic Med       Date:  2022-04-07       Impact factor: 2.473

4.  Perspectives and experiences of researchers regarding feedback of incidental genomic research findings: A qualitative study.

Authors:  Joseph Ochieng; Betty Kwagala; John Barugahare; Erisa Mwaka; Deborah Ekusai-Sebatta; Joseph Ali; Nelson K Sewankambo
Journal:  PLoS One       Date:  2022-08-29       Impact factor: 3.752

5.  Returning Individual Genetic Research Results to Research Participants: Uptake and Outcomes Among Patients With Breast Cancer.

Authors:  Angela R Bradbury; Linda Patrick-Miller; Brian L Egleston; Kara N Maxwell; Laura DiGiovanni; Jamie Brower; Dominique Fetzer; Jill Bennett Gaieski; Amanda Brandt; Danielle McKenna; Jessica Long; Jacquelyn Powers; Jill E Stopfer; Katherine L Nathanson; Susan M Domchek
Journal:  JCO Precis Oncol       Date:  2018-04-16

6.  Research participants' experiences with return of genetic research results and preferences for web-based alternatives.

Authors:  Jill B Gaieski; Linda Patrick-Miller; Brian L Egleston; Kara N Maxwell; Sarah Walser; Laura DiGiovanni; Jamie Brower; Dominique Fetzer; Amanda Ganzak; Danielle McKenna; Jessica M Long; Jacquelyn Powers; Jill E Stopfer; Katherine L Nathanson; Susan M Domchek; Angela R Bradbury
Journal:  Mol Genet Genomic Med       Date:  2019-08-03       Impact factor: 2.183
  6 in total

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