Literature DB >> 28831644

Experiences of Genetic Counselors Practicing in Rural Areas.

Margaret Emmet1,2, Quinn Stein3, Erin Thorpe4, MaryAnn Campion5,6.   

Abstract

In-person genetic counseling clinics in rural areas are likely to improve access to genetic counseling in underserved regions, but studies have not previously examined how these clinics function or described the experience of practicing in a rural setting. The present mixed-methods study explored the professional experiences of clinical genetic counselors who practice in rural areas, including the benefits and challenges of practicing in these settings and the counselors' motivations for doing so. The authors surveyed 20 genetic counselors who self-reported working in rural areas and conducted interviews with six individuals whose workplaces were confirmed as rural per RUCA code. Major obstacles to the provision of genetics services in rural areas included travel distance and low referral rates due to lack of awareness or skepticism. Facilitating factors included relying on resources such as professional networks and prioritizing outreach and education. Participants reported high professional satisfaction and were motivated to work in rural areas by personal experiences and qualities of the job such as being a generalist and having greater professional autonomy. These data demonstrate the feasibility of practicing in rural settings and suggest that in-person rural genetic counseling clinics may complement other strategies such as alternative service delivery models in increasing access for rural residents.

Entities:  

Keywords:  Access to genetic counseling; Mixed methods; Professional issues; Rural genetic counseling; Service delivery models

Mesh:

Year:  2017        PMID: 28831644     DOI: 10.1007/s10897-017-0131-6

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  25 in total

1.  Critical factors for designing programs to increase the supply and retention of rural primary care physicians.

Authors:  H K Rabinowitz; J J Diamond; F W Markham; N P Paynter
Journal:  JAMA       Date:  2001-09-05       Impact factor: 56.272

2.  Modeling travel impedance to medical care for children with birth defects using Geographic Information Systems.

Authors:  Eric M Delmelle; Cynthia H Cassell; Coline Dony; Elizabeth Radcliff; Jean Paul Tanner; Csaba Siffel; Russell S Kirby
Journal:  Birth Defects Res A Clin Mol Teratol       Date:  2013-09-02

3.  Randomized Trial of Telegenetics vs. In-Person Cancer Genetic Counseling: Cost, Patient Satisfaction and Attendance.

Authors:  Adam H Buchanan; Santanu K Datta; Celette Sugg Skinner; Gail P Hollowell; Henry F Beresford; Thomas Freeland; Benjamin Rogers; John Boling; P Kelly Marcom; Martha B Adams
Journal:  J Genet Couns       Date:  2015-04-03       Impact factor: 2.537

4.  Rural genetic counseling: working in the field.

Authors:  E Gettig; V Hannig; J Westphal-Fitzgerald
Journal:  Birth Defects Orig Artic Ser       Date:  1987

5.  'The edge effect': an exploratory study of some factors affecting referrals to cancer genetic services in rural Wales.

Authors:  Rachel Iredale; Lesley Jones; Jonathon Gray; Jenny Deaville
Journal:  Health Place       Date:  2005-09       Impact factor: 4.078

6.  Perceptions and Attitudes About Genetic Counseling Among Residents of a Midwestern Rural Area.

Authors:  Rachel J Riesgraf; Patricia McCarthy Veach; Ian M MacFarlane; Bonnie S LeRoy
Journal:  J Genet Couns       Date:  2014-10-08       Impact factor: 2.537

7.  A grand challenge: providing benefits of clinical genetics to those in need.

Authors:  Alice K Hawkins; Michael R Hayden
Journal:  Genet Med       Date:  2011-03       Impact factor: 8.822

8.  Proximity of pediatric genetic services to children with birth defects in Texas.

Authors:  Amy P Case; Mark A Canfield; Ann Barnett; Patricia Raimondo; Margaret Drummond-Borg; Judith Livingston; Jenifer Kowalik
Journal:  Birth Defects Res A Clin Mol Teratol       Date:  2008-11

9.  Analysis of Advantages, Limitations, and Barriers of Genetic Counseling Service Delivery Models.

Authors:  Stephanie A Cohen; Rachelle C Huziak; Shanna Gustafson; Robin E Grubs
Journal:  J Genet Couns       Date:  2016-01-14       Impact factor: 2.537

10.  A novel approach in pediatric telegenetic services: geneticist, pediatrician and genetic counselor team.

Authors:  Shobana Kubendran; Siddharthan Sivamurthy; Gerald Bradley Schaefer
Journal:  Genet Med       Date:  2017-04-27       Impact factor: 8.822

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  4 in total

1.  Public perception of predictive cancer genetic testing and research in Oregon.

Authors:  Teala W Alvord; Lisa K Marriott; Phuc T Nguyen; Autumn Shafer; Kim Brown; Wesley Stoller; Jennifer L Volpi; Jill Vandehey-Guerrero; Laura K Ferrara; Steven Blakesley; Erin Solomon; Hannah Kuehl; Amy J Palma; Paige E Farris; Kelly J Hamman; Madisen Cotter; Jackilen Shannon
Journal:  J Genet Couns       Date:  2020-03-27       Impact factor: 2.537

2.  Advocacy and actions to address disparities in access to genomic health care: A report on a National Academies workshop.

Authors:  Janet K Williams; Vence L Bonham; Catherine Wicklund; Bernice Coleman; Jacquelyn Y Taylor; Ann K Cashion
Journal:  Nurs Outlook       Date:  2019-06-18       Impact factor: 3.315

3.  Access to Genetic Counselors in the Southern United States.

Authors:  Catalina Villegas; Susanne B Haga
Journal:  J Pers Med       Date:  2019-07-01

4.  Self-reported vs RUCA rural-urban classification among North Carolina pharmacists.

Authors:  Micah E Castle; Casey R Tak
Journal:  Pharm Pract (Granada)       Date:  2021-08-21
  4 in total

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