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Literature DB >> 21097566

Delivery of Internet-based cancer genetic counselling services to patients' homes: a feasibility study.

Neal J Meropol¹, Mary B Daly, Hetal S Vig, Frank J Manion, Sharon L Manne, Carla Mazar, Camara Murphy, Nicholas Solarino, Vadim Zubarev.

Abstract

We examined the feasibility of home videoconferencing for providing cancer genetic education and risk information to people at risk. Adults with possible hereditary colon or breast and ovarian cancer syndromes were offered Internet-based counselling. Participants were sent web cameras and software to install on their home PCs. They watched a prerecorded educational video and then took part in a live counselling session with a genetic counsellor. A total of 31 participants took part in Internet counselling sessions. Satisfaction with counselling was high in all domains studied, including technical (mean 4.3 on a 1-5 scale), education (mean 4.7), communication (mean 4.8), psychosocial (mean 4.1) and overall (mean 4.2). Qualitative data identified technical aspects that could be improved. All participants reported that they would recommend Internet-based counselling to others. Internet-based genetic counselling is feasible and associated with a high level of satisfaction among participants.

Entities: Disease Gene Species

Mesh：

Year: 2010 PMID： 21097566 PMCID： PMC3263376 DOI： 10.1258/jtt.2010.100116

Source DB: PubMed Journal: J Telemed Telecare ISSN： 1357-633X Impact factor: 6.184

15 in total

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25 in total

1. Telegenetics use in presymptomatic genetic counselling: patient evaluations on satisfaction and quality of care.

Authors: Ellen Otten; Erwin Birnie; Adelita V Ranchor; Irene M van Langen
Journal: Eur J Hum Genet Date: 2015-07-15 Impact factor: 4.246

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Authors: Eileen McDonald; Amanda Lamb; Barbara Grillo; Lee Lucas; Susan Miesfeldt
Journal: J Genet Couns Date: 2013-09-08 Impact factor: 2.537

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Authors: H T Lynch; C Snyder; M Stacey; B Olson; S K Peterson; S Buxbaum; T Shaw; P M Lynch
Journal: Clin Genet Date: 2013-12-20 Impact factor: 4.438

4. Operationalizing the Reciprocal Engagement Model of Genetic Counseling Practice: a Framework for the Scalable Delivery of Genomic Counseling and Testing.

Authors: Tara Schmidlen; Amy C Sturm; Shelly Hovick; Laura Scheinfeldt; J Scott Roberts; Lindsey Morr; Joseph McElroy; Amanda E Toland; Michael Christman; Julianne M O'Daniel; Erynn S Gordon; Barbara A Bernhardt; Kelly E Ormond; Kevin Sweet
Journal: J Genet Couns Date: 2018-02-19 Impact factor: 2.537