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Literature DB >> 24592837

The "right not to know" in the genomic era: time to break from tradition?

Benjamin E Berkman¹, Sara Chandros Hull.

Abstract

Entities: Disease Gene Species

Mesh：

Year: 2014 PMID： 24592837 PMCID： PMC4144176 DOI： 10.1080/15265161.2014.880313

Source DB: PubMed Journal: Am J Bioeth ISSN： 1526-5161 Impact factor: 11.229

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19 in total

1. Predictive testing for Huntington's disease: a universal model?

Authors: Michael R Hayden
Journal: Lancet Neurol Date: 2003-03 Impact factor: 44.182

2. Genetic research involving human biological materials: a need to tailor current consent forms.

Authors: Sara Chandros Hull; Holly Gooding; Alison P Klein; Esther Warshauer-Baker; Susan Metosky; Benjamin S Wilfond
Journal: IRB Date: 2004 May-Jun

Review 3. Disclosure of incidental findings from next-generation sequencing in pediatric genomic research.

Authors: Ruqayyah Abdul-Karim; Benjamin E Berkman; David Wendler; Annette Rid; Javed Khan; Tom Badgett; Sara Chandros Hull
Journal: Pediatrics Date: 2013-02-11 Impact factor: 7.124

4. Consent for genetic research in the Framingham Heart Study.

Authors: Daniel Levy; Greta Lee Splansky; Nicolle K Strand; Larry D Atwood; Emelia J Benjamin; Susan Blease; L Adrienne Cupples; Ralph B D'Agostino; Caroline S Fox; Margaret Kelly-Hayes; Greg Koski; Martin G Larson; Karen M Mutalik; Elizabeth Oberacker; Christopher J O'Donnell; Patrice Sutherland; Maureen Valentino; Ramachandran S Vasan; Philip A Wolf; Joanne M Murabito
Journal: Am J Med Genet A Date: 2010-05 Impact factor: 2.802

Review 5. To know or not to know: a review of behaviour and suicidal ideation in preclinical Huntington's disease.

Authors: Tarja-Brita Robins Wahlin
Journal: Patient Educ Couns Date: 2006-09-26

6. Problems assessing uptake of Huntington disease predictive testing and a proposed solution.

Authors: Roslyn J Tassicker; Betty Teltscher; M Kaye Trembath; Veronica Collins; Leslie J Sheffield; Edmond Chiu; Lyle Gurrin; Martin B Delatycki
Journal: Eur J Hum Genet Date: 2008-07-30 Impact factor: 4.246

7. Ethical and policy issues in genetic testing and screening of children.

Authors:
Journal: Pediatrics Date: 2013-02-21 Impact factor: 7.124

8. Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing.

Authors: Megan Allyse; Marsha Michie
Journal: Trends Biotechnol Date: 2013-05-09 Impact factor: 19.536

9. Incidental findings in clinical genomics: a clarification.

Authors:
Journal: Genet Med Date: 2013-07-04 Impact factor: 8.822

10. Technical report: Ethical and policy issues in genetic testing and screening of children.

Authors: Lainie Friedman Ross; Laine Friedman Ross; Howard M Saal; Karen L David; Rebecca R Anderson
Journal: Genet Med Date: 2013-02-21 Impact factor: 8.822

14 in total

Review 1. Genetic Basis for Congenital Heart Disease: Revisited: A Scientific Statement From the American Heart Association.

Authors: Mary Ella Pierpont; Martina Brueckner; Wendy K Chung; Vidu Garg; Ronald V Lacro; Amy L McGuire; Seema Mital; James R Priest; William T Pu; Amy Roberts; Stephanie M Ware; Bruce D Gelb; Mark W Russell
Journal: Circulation Date: 2018-11-20 Impact factor: 29.690

The "right not to know" in the genomic era: time to break from tradition?

1. Predictive testing for Huntington's disease: a universal model?

2. Genetic research involving human biological materials: a need to tailor current consent forms.

Review 3. Disclosure of incidental findings from next-generation sequencing in pediatric genomic research.

4. Consent for genetic research in the Framingham Heart Study.

Review 5. To know or not to know: a review of behaviour and suicidal ideation in preclinical Huntington's disease.

6. Problems assessing uptake of Huntington disease predictive testing and a proposed solution.

7. Ethical and policy issues in genetic testing and screening of children.

8. Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing.

9. Incidental findings in clinical genomics: a clarification.

10. Technical report: Ethical and policy issues in genetic testing and screening of children.

Review 1. Genetic Basis for Congenital Heart Disease: Revisited: A Scientific Statement From the American Heart Association.

2. Ethical signposts for clinical geneticists in secondary variant and incidental finding disclosure discussions.

Review 3. Ethical considerations in genomic testing for hematologic disorders.

4. Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice.

5. Ethical and counseling challenges in prenatal exome sequencing.

Review 6. How does the genomic naive public perceive whole genomic testing for health purposes? A scoping review.

Review 7. Behavioral Genetics in Criminal and Civil Courts.

8. Incidental findings of uncertain significance: To know or not to know--that is not the question.

Review 9. Ethical Issues in Care and Treatment of Neuronal Ceroid Lipofuscinoses (NCL)-A Personal View.

10. A novel MLH1 mutation in a Japanese family with Lynch syndrome associated with small bowel cancer.