Literature DB >> 15281193

Genetic research involving human biological materials: a need to tailor current consent forms.

Sara Chandros Hull1, Holly Gooding, Alison P Klein, Esther Warshauer-Baker, Susan Metosky, Benjamin S Wilfond.   

Abstract

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach; Genetics and Reproduction

Mesh：

Year:  2004        PMID： 15281193

Source DB:  PubMed          Journal:  IRB        ISSN： 0193-7758


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  11 in total

1.  Quality improvement ethics: lessons from the SUPPORT study.

Authors:  Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2013       Impact factor: 11.229

2.  Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research.

Authors:  Holly K Tabor; Benjamin E Berkman; Sara Chandros Hull; Michael J Bamshad
Journal:  Am J Med Genet A       Date:  2011-10-28       Impact factor: 2.802

3.  Genetic research with stored biological materials: ethics and practice.

Authors:  Leslie E Wolf; Timothy A Bouley; Charles E McCulloch
Journal:  IRB       Date:  2010 Mar-Apr

Review 4.  Evolving approaches to the ethical management of genomic data.

Authors:  Jean E McEwen; Joy T Boyer; Kathie Y Sun
Journal:  Trends Genet       Date:  2013-02-28       Impact factor: 11.639

5.  Biobanking, consent, and commercialization in international genetics research: the Type 1 Diabetes Genetics Consortium.

Authors:  Mark A Hall; Nancy M P King; Letitia H Perdue; Joan E Hilner; Beena Akolkar; Carla J Greenbaum; Catherine McKeon
Journal:  Clin Trials       Date:  2010       Impact factor: 2.486

6.  The "right not to know" in the genomic era: time to break from tradition?

Authors:  Benjamin E Berkman; Sara Chandros Hull
Journal:  Am J Bioeth       Date:  2014       Impact factor: 11.229

7.  Specimen collection for induced pluripotent stem cell research: harmonizing the approach to informed consent.

Authors:  Justin Lowenthal; Scott Lipnick; Mahendra Rao; Sara Chandros Hull
Journal:  Stem Cells Transl Med       Date:  2012-05-08       Impact factor: 6.940

8.  Patients' views on identifiability of samples and informed consent for genetic research.

Authors:  Sara Chandros Hull; Richard R Sharp; Jeffrey R Botkin; Mark Brown; Mark Hughes; Jeremy Sugarman; Debra Schwinn; Pamela Sankar; Dragana Bolcic-Jankovic; Brian R Clarridge; Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2008-10       Impact factor: 11.229

9.  Engaging children in genomics research: decoding the meaning of assent in research.

Authors:  Benjamin S Wilfond; Douglas S Diekema
Journal:  Genet Med       Date:  2012-02-09       Impact factor: 8.822

10.  Social and Communicative Functions of Informed Consent Forms in East Asia and Beyond.

Authors:  Go Yoshizawa; Teguh H Sasongko; Chih-Hsing Ho; Kazuto Kato
Journal:  Front Genet       Date:  2017-07-20       Impact factor: 4.599
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