Literature DB >> 22830177

IRB chairs' perspectives on genotype-driven research recruitment.

Laura M Beskow1, Emily E Namey, Patrick R Miller, Daniel K Nelson, Alexandra Cooper.   

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Year:  2012        PMID: 22830177      PMCID: PMC3632007     

Source DB:  PubMed          Journal:  IRB        ISSN: 0193-7758


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  25 in total

1.  Financial relationships between institutional review board members and industry.

Authors:  Eric G Campbell; Joel S Weissman; Christine Vogeli; Brian R Clarridge; Melissa Abraham; Jessica E Marder; Greg Koski
Journal:  N Engl J Med       Date:  2006-11-30       Impact factor: 91.245

2.  Implications of disclosing individual results of clinical research.

Authors:  Ellen Wright Clayton; Lainie Friedman Ross
Journal:  JAMA       Date:  2006-01-04       Impact factor: 56.272

3.  Offering results to research subjects: U.S. Institutional Review Board policy.

Authors:  Christa Kozanczyn; Katie Collins; Conrad V Fernandez
Journal:  Account Res       Date:  2007 Oct-Dec       Impact factor: 2.622

4.  Public expectations for return of results--time to stop being paternalistic?

Authors:  Conrad Fernandez
Journal:  Am J Bioeth       Date:  2008-11       Impact factor: 11.229

5.  Broad data sharing in genetic research: views of institutional review board professionals.

Authors:  Amy A Lemke; Maureen E Smith; Wendy A Wolf; Susan Brown Trinidad
Journal:  IRB       Date:  2011 May-Jun

6.  Offering individual genetic research results: context matters.

Authors:  Laura M Beskow; Wylie Burke
Journal:  Sci Transl Med       Date:  2010-06-30       Impact factor: 17.956

7.  Research recruitment through US central cancer registries: balancing privacy and scientific issues.

Authors:  Laura M Beskow; Robert S Sandler; Morris Weinberger
Journal:  Am J Public Health       Date:  2006-03-29       Impact factor: 9.308

8.  Ethical issues in identifying and recruiting participants for familial genetic research.

Authors:  Laura M Beskow; Jeffrey R Botkin; Mary Daly; Eric T Juengst; Lisa Soleymani Lehmann; Jon F Merz; Rebecca Pentz; Nancy A Press; Lainie Friedman Ross; Jeremy Sugarman; Lisa R Susswein; Sharon F Terry; Melissa A Austin; Wylie Burke
Journal:  Am J Med Genet A       Date:  2004-11-01       Impact factor: 2.802

9.  The Environmental Polymorphisms Registry: a DNA resource to study genetic susceptibility loci.

Authors:  Patricia C Chulada; Heather L Vahdat; Richard R Sharp; Tracy C DeLozier; Paul B Watkins; Susan N Pusek; Perry J Blackshear
Journal:  Hum Genet       Date:  2008-01-10       Impact factor: 4.132

10.  Duty to disclose what? Querying the putative obligation to return research results to participants.

Authors:  F A Miller; R Christensen; M Giacomini; J S Robert
Journal:  J Med Ethics       Date:  2008-03       Impact factor: 2.903

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  9 in total

1.  Research participants' perspectives on genotype-driven research recruitment.

Authors:  Laura M Beskow; Emily E Namey; R Jean Cadigan; Tracy Brazg; Julia Crouch; Gail E Henderson; Marsha Michie; Daniel K Nelson; Holly K Tabor; Benjamin S Wilfond
Journal:  J Empir Res Hum Res Ethics       Date:  2011-12       Impact factor: 1.742

2.  Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles.

Authors:  Laura M Beskow; P Pearl O'Rourke
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

3.  Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families.

Authors:  Conrad V Fernandez; P Pearl O'Rourke; Laura M Beskow
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

4.  Recommendations for ethical approaches to genotype-driven research recruitment.

Authors:  Laura M Beskow; Stephanie M Fullerton; Emily E Namey; Daniel K Nelson; Arlene M Davis; Benjamin S Wilfond
Journal:  Hum Genet       Date:  2012-05-24       Impact factor: 4.132

5.  Those Responsible for Approving Research Studies Have Poor Knowledge of Research Study Design: a Knowledge Assessment of Institutional Review Board Members.

Authors:  Rahul Mhaskar; Elizabeth Barnett Pathak; Sarah Wieten; Thomas M Guterbock; Ambuj Kumar; Benjamin Djulbegovic
Journal:  Acta Inform Med       Date:  2015-07-30

6.  Impact of Next Generation Sequencing on the Organization and Funding of Returning Research Results: Survey of Canadian Research Ethics Boards Members.

Authors:  Iris Jaitovich Groisman; Beatrice Godard
Journal:  PLoS One       Date:  2016-05-11       Impact factor: 3.240

Review 7.  Ethical, legal and social/societal implications (ELSI) of recall-by-genotype (RbG) and genotype-driven-research (GDR) approaches: a scoping review.

Authors:  Katharina Tschigg; Luca Consoli; Roberta Biasiotto; Deborah Mascalzoni
Journal:  Eur J Hum Genet       Date:  2022-06-15       Impact factor: 5.351

8.  Balancing scientific interests and the rights of participants in designing a recall by genotype study.

Authors:  Deborah Mascalzoni; Roberta Biasiotto; Max Borsche; Norbert Brüggemann; Alessandro De Grandi; Martin Goegele; Sara Frygner-Holm; Christine Klein; Maria Kösters; Ciara Staunton; Peter P Pramstaller; Michael Krawczak; Andrew A Hicks
Journal:  Eur J Hum Genet       Date:  2021-05-13       Impact factor: 4.246

9.  Genotype-driven recruitment: a strategy whose time has come?

Authors:  Isabelle Budin-Ljøsne; Kaitlin J Soye; Anne Marie Tassé; Bartha Maria Knoppers; Jennifer R Harris
Journal:  BMC Med Genomics       Date:  2013-05-23       Impact factor: 3.063

  9 in total

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