Literature DB >> 16391213

Implications of disclosing individual results of clinical research.

Ellen Wright Clayton, Lainie Friedman Ross.   

Abstract

Keywords:  Biomedical and Behavioral Research

Mesh：

Year:  2006        PMID： 16391213     DOI： 10.1001/jama.295.1.37-a

Source DB:  PubMed          Journal:  JAMA        ISSN： 0098-7484            Impact factor:   56.272


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  47 in total

1.  Ethical challenges in genotype-driven research recruitment.

Authors:  Laura M Beskow; Kristen N Linney; Rodney A Radtke; Erin L Heinzen; David B Goldstein
Journal:  Genome Res       Date:  2010-04-23       Impact factor: 9.043

2.  Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results.

Authors:  Joanna Stjernschantz Forsberg; Mats G Hansson; Stefan Eriksson
Journal:  Eur J Hum Genet       Date:  2009-05-27       Impact factor: 4.246

Review 3.  Informed consent in genomics and genetic research.

Authors:  Amy L McGuire; Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2010       Impact factor: 8.929

4.  Disclosure of individualized research results: a precautionary approach.

Authors:  David B Resnik
Journal:  Account Res       Date:  2011-11       Impact factor: 2.622

5.  Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles.

Authors:  Laurence Baret; Beatrice Godard
Journal:  Eur J Hum Genet       Date:  2011-06-15       Impact factor: 4.246

6.  Return of individual results in epilepsy genomic research: A view from the field.

Authors:  Ruth Ottman; Catharine Freyer; Heather C Mefford; Annapurna Poduri; Daniel H Lowenstein
Journal:  Epilepsia       Date:  2018-08-10       Impact factor: 5.864

7.  Personal genome research : what should the participant be told?

Authors:  Amy L McGuire; James R Lupski
Journal:  Trends Genet       Date:  2010-04-08       Impact factor: 11.639

8.  Return of individual genomic research results: what do consent forms tell participants?

Authors:  Stacey Pereira; Jill Oliver Robinson; Amy L McGuire
Journal:  Eur J Hum Genet       Date:  2016-06-22       Impact factor: 4.246

9.  Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.

Authors:  Amy A Lemke; Colin Halverson; Lainie Friedman Ross
Journal:  Am J Med Genet A       Date:  2012-03-21       Impact factor: 2.802

10.  Prospective biorepository participants' perspectives on access to research results.

Authors:  Laura M Beskow; Sondra J Smolek
Journal:  J Empir Res Hum Res Ethics       Date:  2009-09       Impact factor: 1.742
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