Literature DB >> 19061110

Public expectations for return of results--time to stop being paternalistic?

Conrad Fernandez1.   

Abstract

Mesh：

Year:  2008        PMID： 19061110     DOI： 10.1080/15265160802513127

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  17 in total

1.  Ethical challenges in genotype-driven research recruitment.

Authors:  Laura M Beskow; Kristen N Linney; Rodney A Radtke; Erin L Heinzen; David B Goldstein
Journal:  Genome Res       Date:  2010-04-23       Impact factor: 9.043

2.  Ethical considerations when making exceptions to "rules" in psychiatry.

Authors:  Edmund Howe
Journal:  Innov Clin Neurosci       Date:  2014-01

Review 3.  Informed consent in genomics and genetic research.

Authors:  Amy L McGuire; Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2010       Impact factor: 8.929

4.  Timing and context: important considerations in the return of genetic results to research participants.

Authors:  Kate A McBride; Nina Hallowell; Martin H N Tattersall; Judy Kirk; Mandy L Ballinger; David M Thomas; Gillian Mitchell; Mary-Anne Young
Journal:  J Community Genet       Date:  2015-05-26

Review 5.  Population biobanks and returning individual research results: mission impossible or new directions?

Authors:  Susan E Wallace; Alastair Kent
Journal:  Hum Genet       Date:  2011-06-05       Impact factor: 4.132

6.  Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles.

Authors:  Laurence Baret; Beatrice Godard
Journal:  Eur J Hum Genet       Date:  2011-06-15       Impact factor: 4.246

7.  Recommendations for ethical approaches to genotype-driven research recruitment.

Authors:  Laura M Beskow; Stephanie M Fullerton; Emily E Namey; Daniel K Nelson; Arlene M Davis; Benjamin S Wilfond
Journal:  Hum Genet       Date:  2012-05-24       Impact factor: 4.132

8.  Return of individual results in epilepsy genomic research: A view from the field.

Authors:  Ruth Ottman; Catharine Freyer; Heather C Mefford; Annapurna Poduri; Daniel H Lowenstein
Journal:  Epilepsia       Date:  2018-08-10       Impact factor: 5.864

9.  Return of individual genomic research results: what do consent forms tell participants?

Authors:  Stacey Pereira; Jill Oliver Robinson; Amy L McGuire
Journal:  Eur J Hum Genet       Date:  2016-06-22       Impact factor: 4.246

10.  'Information is information': a public perspective on incidental findings in clinical and research genome-based testing.

Authors:  S Daack-Hirsch; M Driessnack; A Hanish; V A Johnson; L L Shah; C M Simon; J K Williams
Journal:  Clin Genet       Date:  2013-05-03       Impact factor: 4.438
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