Literature DB >> 21412253

The Bio-PIN: a concept to improve biobanking.

J J Nietfeld1, Jeremy Sugarman, Jan-Eric Litton.   

Abstract

A new biobanking method is proposed, wherein samples and associated data would be deposited anonymously and labelled using a PIN code that is produced on the basis of personal biological characteristics, such as single nucleotide polymorphisms. The code would be the 'Bio-PIN' to uniquely distinguish the sample depositors, plus their samples and data. This method could help to diminish several long-discussed ethical, legal and societal problems in biobanking regarding privacy, informed consent, autonomy, data security and public trust.

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Mesh：

Year:  2011        PMID： 21412253     DOI： 10.1038/nrc3022

Source DB:  PubMed          Journal:  Nat Rev Cancer        ISSN： 1474-175X            Impact factor:   60.716


  54 in total

1.  Biobanks: simplifying consent.

Authors:  Bartha M Knoppers
Journal:  Nat Rev Genet       Date:  2004-07       Impact factor: 53.242

2.  The ethics of research using biobanks: reason to question the importance attributed to informed consent.

Authors:  Klaus Hoeyer; Bert-Ove Olofsson; Tom Mjörndal; Niels Lynöe
Journal:  Arch Intern Med       Date:  2005-01-10

3.  Alternative consent models for biobanks: the new Spanish law on biomedical research.

Authors:  Antonio Casado da Rocha; José Antonio Seoane
Journal:  Bioethics       Date:  2008-07-17       Impact factor: 1.898

4.  Personal genomes: when consent gets in the way.

Authors:  Patrick Taylor
Journal:  Nature       Date:  2008-11-06       Impact factor: 49.962

5.  The case for public ownership of patient data.

Authors:  Marc A Rodwin
Journal:  JAMA       Date:  2009-07-01       Impact factor: 56.272

6.  Banking together. A unified model of informed consent for biobanking.

Authors:  Elena Salvaterra; Lucilla Lecchi; Silvia Giovanelli; Barbara Butti; Maria Teresa Bardella; Pier Alberto Bertazzi; Silvano Bosari; Guido Coggi; Domenico A Coviello; Faustina Lalatta; Maurizio Moggio; Mario Nosotti; Alberto Zanella; Paolo Rebulla
Journal:  EMBO Rep       Date:  2008-04       Impact factor: 8.807

7.  Research ethics. Children and population biobanks.

Authors:  David Gurwitz; Isabel Fortier; Jeantine E Lunshof; Bartha Maria Knoppers
Journal:  Science       Date:  2009-08-14       Impact factor: 47.728

8.  Biobanks: oversight offers protection.

Authors:  Kristien Hens; John Wright; Kris Dierickx
Journal:  Science       Date:  2009-11-06       Impact factor: 47.728

9.  Public opinion about the importance of privacy in biobank research.

Authors:  David J Kaufman; Juli Murphy-Bollinger; Joan Scott; Kathy L Hudson
Journal:  Am J Hum Genet       Date:  2009-10-29       Impact factor: 11.025

10.  Regulatory aspects of genetic research with residual human tissue: effective and efficient data coding.

Authors:  Marjanka K Schmidt; Eric Vermeulen; Rob A E M Tollenaar; Laura J Van't Veer; Flora E van Leeuwen
Journal:  Eur J Cancer       Date:  2009-04-10       Impact factor: 9.162
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  11 in total

1.  The BIO-PIN paradigm: 'access to' or 'return of' results?

Authors:  Eric Vermeulen; Paul van der Valk; José J M Koevoets; Martina C Cornel; Marjanka K Schmidt
Journal:  Nat Rev Cancer       Date:  2011-11-04       Impact factor: 60.716

2.  Bio-PIN could cut biobanking risks.

Authors:  J J Nietfeld; Jan-Eric Litton
Journal:  Nature       Date:  2011-04-28       Impact factor: 49.962

Review 3.  Biobanking residual tissues.

Authors:  Peter H J Riegman; Evert-Ben van Veen
Journal:  Hum Genet       Date:  2011-08-04       Impact factor: 4.132

4.  Questioning the limits of genomic privacy.

Authors:  Bartha M Knoppers; Edward S Dove; Jan-Eric Litton; J J Nietfeld
Journal:  Am J Hum Genet       Date:  2012-09-07       Impact factor: 11.025

5.  Biobanking, consent, and certificates of confidentiality: does the ANPRM muddy the water?

Authors:  Brett A Williams; Leslie E Wolf
Journal:  J Law Med Ethics       Date:  2013       Impact factor: 1.718

6.  The International Cancer Genome Consortium's evolving data-protection policies.

Authors:  Djims Milius; Edward S Dove; Donald Chalmers; Stephanie O M Dyke; Kazuto Kato; Pilar Nicolás; B F Francis Ouellette; Brad Ozenberger; Laura L Rodriguez; Nikolajs Zeps; Yann Joly
Journal:  Nat Biotechnol       Date:  2014-06       Impact factor: 54.908

7.  DataSHIELD: taking the analysis to the data, not the data to the analysis.

Authors:  Amadou Gaye; Yannick Marcon; Julia Isaeva; Philippe LaFlamme; Andrew Turner; Elinor M Jones; Joel Minion; Andrew W Boyd; Christopher J Newby; Marja-Liisa Nuotio; Rebecca Wilson; Oliver Butters; Barnaby Murtagh; Ipek Demir; Dany Doiron; Lisette Giepmans; Susan E Wallace; Isabelle Budin-Ljøsne; Carsten Oliver Schmidt; Paolo Boffetta; Mathieu Boniol; Maria Bota; Kim W Carter; Nick deKlerk; Chris Dibben; Richard W Francis; Tero Hiekkalinna; Kristian Hveem; Kirsti Kvaløy; Sean Millar; Ivan J Perry; Annette Peters; Catherine M Phillips; Frank Popham; Gillian Raab; Eva Reischl; Nuala Sheehan; Melanie Waldenberger; Markus Perola; Edwin van den Heuvel; John Macleod; Bartha M Knoppers; Ronald P Stolk; Isabel Fortier; Jennifer R Harris; Bruce H R Woffenbuttel; Madeleine J Murtagh; Vincent Ferretti; Paul R Burton
Journal:  Int J Epidemiol       Date:  2014-09-26       Impact factor: 7.196

8.  Epigenome data release: a participant-centered approach to privacy protection.

Authors:  Stephanie O M Dyke; Warren A Cheung; Yann Joly; Ole Ammerpohl; Pavlo Lutsik; Mark A Rothstein; Maxime Caron; Stephan Busche; Guillaume Bourque; Lars Rönnblom; Paul Flicek; Stephan Beck; Martin Hirst; Henk Stunnenberg; Reiner Siebert; Jörn Walter; Tomi Pastinen
Journal:  Genome Biol       Date:  2015-07-17       Impact factor: 13.583

9.  Standardization developments for large scale biobanks in smoking related diseases - a model system for blood sample processing and storage.

Authors:  Johan Malm; Thomas E Fehniger; Pia Danmyr; Ákos Végvári; Charlotte Welinder; Henrik Lindberg; Paul Upton; Stephanie Carter; Roger Appelqvist; Karin Sjödin; Elisabet Wieslander; Magnus Dahlbäck; Melinda Rezeli; David Erlinge; György Marko-Varga
Journal:  Transl Respir Med       Date:  2013-08-30

10.  Genomic cloud computing: legal and ethical points to consider.

Authors:  Edward S Dove; Yann Joly; Anne-Marie Tassé; Bartha M Knoppers
Journal:  Eur J Hum Genet       Date:  2014-09-24       Impact factor: 4.246
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