Literature DB >> 18987719

Personal genomes: when consent gets in the way.

Patrick Taylor1.   

Abstract

Mesh：

Year:  2008        PMID： 18987719     DOI： 10.1038/456032a

Source DB:  PubMed          Journal:  Nature        ISSN： 0028-0836            Impact factor:   49.962


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  19 in total

1.  Genetic records threaten patients' privacy.

Authors:  Tom Goffman
Journal:  Nature       Date:  2009-01-15       Impact factor: 49.962

Review 2.  Informed consent in genomics and genetic research.

Authors:  Amy L McGuire; Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2010       Impact factor: 8.929

Review 3.  The Bio-PIN: a concept to improve biobanking.

Authors:  J J Nietfeld; Jeremy Sugarman; Jan-Eric Litton
Journal:  Nat Rev Cancer       Date:  2011-03-17       Impact factor: 60.716

Review 4.  Using electronic health records to drive discovery in disease genomics.

Authors:  Isaac S Kohane
Journal:  Nat Rev Genet       Date:  2011-05-18       Impact factor: 53.242

5.  SecureMA: protecting participant privacy in genetic association meta-analysis.

Authors:  Wei Xie; Murat Kantarcioglu; William S Bush; Dana Crawford; Joshua C Denny; Raymond Heatherly; Bradley A Malin
Journal:  Bioinformatics       Date:  2014-08-21       Impact factor: 6.937

6.  Leaping the Data Chasm: Structuring Donation of Clinical Data for Healthcare Innovation and Modeling.

Authors:  Patrick L Taylor; Kenneth D Mandl
Journal:  Harvard Health Policy Rev       Date:  2015

7.  Assessing the privacy risks of data sharing in genomics.

Authors:  C Heeney; N Hawkins; J de Vries; P Boddington; J Kaye
Journal:  Public Health Genomics       Date:  2010-03-29       Impact factor: 2.000

8.  Practical guidelines addressing ethical issues pertaining to the curation of human locus-specific variation databases (LSDBs).

Authors:  Sue Povey; Aida I Al Aqeel; Anne Cambon-Thomsen; Raymond Dalgleish; Johan T den Dunnen; Helen V Firth; Marc S Greenblatt; Carol Isaacson Barash; Michael Parker; George P Patrinos; Judith Savige; Maria-Jesus Sobrido; Ingrid Winship; Richard G H Cotton
Journal:  Hum Mutat       Date:  2010-11       Impact factor: 4.878

9.  Public access to genome-wide data: five views on balancing research with privacy and protection.

Authors:  George Church; Catherine Heeney; Naomi Hawkins; Jantina de Vries; Paula Boddington; Jane Kaye; Martin Bobrow; Bruce Weir
Journal:  PLoS Genet       Date:  2009-10-02       Impact factor: 5.917

10.  Planning for translational research in genomics.

Authors:  Naomi Hawkins; Jantina de Vries; Paula Boddington; Jane Kaye; Catherine Heeney
Journal:  Genome Med       Date:  2009-09-29       Impact factor: 11.117
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