Literature DB >> 22958905

Questioning the limits of genomic privacy.

Bartha M Knoppers, Edward S Dove, Jan-Eric Litton, J J Nietfeld.   

Abstract

Mesh：

Year:  2012        PMID： 22958905      PMCID： PMC3511988          DOI： 10.1016/j.ajhg.2012.05.027

Source DB:  PubMed          Journal:  Am J Hum Genet        ISSN： 0002-9297            Impact factor:   11.025


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  13 in total

1.  iDASH: integrating data for analysis, anonymization, and sharing.

Authors:  Lucila Ohno-Machado; Vineet Bafna; Aziz A Boxwala; Brian E Chapman; Wendy W Chapman; Kamalika Chaudhuri; Michele E Day; Claudiu Farcas; Nathaniel D Heintzman; Xiaoqian Jiang; Hyeoneui Kim; Jihoon Kim; Michael E Matheny; Frederic S Resnic; Staal A Vinterbo
Journal:  J Am Med Inform Assoc       Date:  2011-11-10       Impact factor: 4.497

2.  The Babel of genetic data terminology.

Authors:  Bartha Maria Knoppers; Madelaine Saginur
Journal:  Nat Biotechnol       Date:  2005-08       Impact factor: 54.908

3.  What is anonymous?

Authors:  J Jaap Nietfeld
Journal:  EMBO Rep       Date:  2007-06       Impact factor: 8.807

Review 4.  The Bio-PIN: a concept to improve biobanking.

Authors:  J J Nietfeld; Jeremy Sugarman; Jan-Eric Litton
Journal:  Nat Rev Cancer       Date:  2011-03-17       Impact factor: 60.716

Review 5.  Identifiability in biobanks: models, measures, and mitigation strategies.

Authors:  Bradley Malin; Grigorios Loukides; Kathleen Benitez; Ellen Wright Clayton
Journal:  Hum Genet       Date:  2011-07-08       Impact factor: 4.132

Review 6.  Assessing and managing risk when sharing aggregate genetic variant data.

Authors:  David W Craig; Robert M Goor; Zhenyuan Wang; Justin Paschall; Jim Ostell; Michael Feolo; Stephen T Sherry; Teri A Manolio
Journal:  Nat Rev Genet       Date:  2011-09-16       Impact factor: 53.242

7.  On sharing quantitative trait GWAS results in an era of multiple-omics data and the limits of genomic privacy.

Authors:  Hae Kyung Im; Eric R Gamazon; Dan L Nicolae; Nancy J Cox
Journal:  Am J Hum Genet       Date:  2012-03-28       Impact factor: 11.025

8.  Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational research.

Authors:  Bradley Malin; David Karp; Richard H Scheuermann
Journal:  J Investig Med       Date:  2010-01       Impact factor: 2.895

9.  Assessing the privacy risks of data sharing in genomics.

Authors:  C Heeney; N Hawkins; J de Vries; P Boddington; J Kaye
Journal:  Public Health Genomics       Date:  2010-03-29       Impact factor: 2.000

10.  A systematic review of re-identification attacks on health data.

Authors:  Khaled El Emam; Elizabeth Jonker; Luk Arbuckle; Bradley Malin
Journal:  PLoS One       Date:  2011-12-02       Impact factor: 3.240
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  8 in total

1.  It is time to take timing seriously in clinical genetics.

Authors:  György Kosztolányi
Journal:  Eur J Hum Genet       Date:  2014-12-24       Impact factor: 4.246

2.  The International Cancer Genome Consortium's evolving data-protection policies.

Authors:  Djims Milius; Edward S Dove; Donald Chalmers; Stephanie O M Dyke; Kazuto Kato; Pilar Nicolás; B F Francis Ouellette; Brad Ozenberger; Laura L Rodriguez; Nikolajs Zeps; Yann Joly
Journal:  Nat Biotechnol       Date:  2014-06       Impact factor: 54.908

3.  Quality control and conduct of genome-wide association meta-analyses.

Authors:  Thomas W Winkler; Felix R Day; Damien C Croteau-Chonka; Andrew R Wood; Adam E Locke; Reedik Mägi; Teresa Ferreira; Tove Fall; Mariaelisa Graff; Anne E Justice; Jian'an Luan; Stefan Gustafsson; Joshua C Randall; Sailaja Vedantam; Tsegaselassie Workalemahu; Tuomas O Kilpeläinen; André Scherag; Tonu Esko; Zoltán Kutalik; Iris M Heid; Ruth J F Loos
Journal:  Nat Protoc       Date:  2014-04-24       Impact factor: 13.491

4.  The ethics weathervane.

Authors:  Bartha Maria Knoppers; Ruth Chadwick
Journal:  BMC Med Ethics       Date:  2015-09-04       Impact factor: 2.652

5.  Revisiting respect for persons in genomic research.

Authors:  Debra J H Mathews; Leila Jamal
Journal:  Genes (Basel)       Date:  2014-01-22       Impact factor: 4.096

6.  Data sharing in large research consortia: experiences and recommendations from ENGAGE.

Authors:  Isabelle Budin-Ljøsne; Julia Isaeva; Bartha Maria Knoppers; Anne Marie Tassé; Huei-yi Shen; Mark I McCarthy; Jennifer R Harris
Journal:  Eur J Hum Genet       Date:  2013-06-19       Impact factor: 4.246

7.  A human rights approach to an international code of conduct for genomic and clinical data sharing.

Authors:  Bartha M Knoppers; Jennifer R Harris; Isabelle Budin-Ljøsne; Edward S Dove
Journal:  Hum Genet       Date:  2014-02-27       Impact factor: 4.132

Review 8.  Translational Informatics for Parkinson's Disease: from Big Biomedical Data to Small Actionable Alterations.

Authors:  Bairong Shen; Yuxin Lin; Cheng Bi; Shengrong Zhou; Zhongchen Bai; Guangmin Zheng; Jing Zhou
Journal:  Genomics Proteomics Bioinformatics       Date:  2019-11-28       Impact factor: 7.691
  8 in total

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