Literature DB >> 19679798

Research ethics. Children and population biobanks.

David Gurwitz1, Isabel Fortier, Jeantine E Lunshof, Bartha Maria Knoppers.   

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Year:  2009        PMID： 19679798     DOI： 10.1126/science.1173284

Source DB:  PubMed          Journal:  Science        ISSN： 0036-8075            Impact factor:   47.728


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  36 in total

1.  Retrospective access to data: the ENGAGE consent experience.

Authors:  Anne Marie Tassé; Isabelle Budin-Ljøsne; Bartha Maria Knoppers; Jennifer R Harris
Journal:  Eur J Hum Genet       Date:  2010-03-24       Impact factor: 4.246

2.  Regulating biobanking with children's tissue: a legal analysis and the experts' view.

Authors:  Elcke J Kranendonk; M Corrette Ploem; Raoul C M Hennekam
Journal:  Eur J Hum Genet       Date:  2015-04-15       Impact factor: 4.246

Review 3.  Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries.

Authors:  Nola M Ries; Jane LeGrandeur; Timothy Caulfield
Journal:  BMC Med Ethics       Date:  2010-03-23       Impact factor: 2.652

Review 4.  The Bio-PIN: a concept to improve biobanking.

Authors:  J J Nietfeld; Jeremy Sugarman; Jan-Eric Litton
Journal:  Nat Rev Cancer       Date:  2011-03-17       Impact factor: 60.716

5.  Practical guidance on informed consent for pediatric participants in a biorepository.

Authors:  Kyle B Brothers; John A Lynch; Sharon A Aufox; John J Connolly; Bruce D Gelb; Ingrid A Holm; Saskia C Sanderson; Jennifer B McCormick; Janet L Williams; Wendy A Wolf; Armand H M Antommaria; Ellen W Clayton
Journal:  Mayo Clin Proc       Date:  2014-09-26       Impact factor: 7.616

Review 6.  Reconsidering the Need for Reconsent at 18.

Authors:  Benjamin E Berkman; Dana Howard; David Wendler
Journal:  Pediatrics       Date:  2018-07-06       Impact factor: 7.124

7.  Parental consent: Guarding children's genetic privacy.

Authors:  Jeantine E Lunshof; David Gurwitz
Journal:  Nature       Date:  2013-02-28       Impact factor: 49.962

8.  The 'thousand-dollar genome': an ethical exploration.

Authors:  Wybo J Dondorp; Guido M W R de Wert
Journal:  Eur J Hum Genet       Date:  2013-06       Impact factor: 4.246

9.  Researchers' Perspectives on Informed Consent and Ethical Review of Biobank Research in South Africa: A Cross-Sectional Study.

Authors:  Erisa Mwaka; Lyn Horn
Journal:  J Empir Res Hum Res Ethics       Date:  2019-08-05       Impact factor: 1.742

10.  Biobanking in the Pediatric Critical Care Setting: Adolescent/Young Adult Perspectives.

Authors:  Erin D Paquette; Sabrina F Derrington; Avani Shukla; Neha Sinha; Sarah Oswald; Lauren Sorce; Kelly N Michelson
Journal:  J Empir Res Hum Res Ethics       Date:  2018-06-14       Impact factor: 1.742
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