Literature DB >> 18644013

Alternative consent models for biobanks: the new Spanish law on biomedical research.

Antonio Casado da Rocha1, José Antonio Seoane.   

Abstract

This article provides an overview of recent contributions to the debate on the ethical use of previously collected biobank samples, as well as a country report about how this issue has been regulated in Spain by means of the new Biomedical Research Act, enacted in the summer of 2007. By contrasting the Spanish legal situation with the wider discourse of international bioethics, we identify and discuss a general trend moving from the traditional requirements of informed consent towards new models more favourable to research in a post-genomic context.

Mesh:

Year:  2008        PMID: 18644013     DOI: 10.1111/j.1467-8519.2008.00673.x

Source DB:  PubMed          Journal:  Bioethics        ISSN: 0269-9702            Impact factor:   1.898


  7 in total

Review 1.  The Bio-PIN: a concept to improve biobanking.

Authors:  J J Nietfeld; Jeremy Sugarman; Jan-Eric Litton
Journal:  Nat Rev Cancer       Date:  2011-03-17       Impact factor: 60.716

2.  The ethics of biobanking: key issues and controversies.

Authors:  Heather Widdows; Sean Cordell
Journal:  Health Care Anal       Date:  2011-09

3.  Public support and consent preference for biomedical research and biobanking in Jordan.

Authors:  Mamoun Ahram; Areej Othman; Manal Shahrouri
Journal:  Eur J Hum Genet       Date:  2012-09-12       Impact factor: 4.246

4.  Withdrawal from biobank research: considerations and the way forward.

Authors:  Kristina Hug; Göran Hermerén; Mats Johansson
Journal:  Stem Cell Rev Rep       Date:  2012-12       Impact factor: 5.739

Review 5.  Personal genome testing: test characteristics to clarify the discourse on ethical, legal and societal issues.

Authors:  Eline M Bunnik; Maartje H N Schermer; A Cecile J W Janssens
Journal:  BMC Med Ethics       Date:  2011-06-14       Impact factor: 2.652

Review 6.  Ethical aspects of human biobanks: a systematic review.

Authors:  Danijela Budimir; Ozren Polasek; Ana Marusić; Ivana Kolcić; Tatijana Zemunik; Vesna Boraska; Ana Jeroncić; Mladen Boban; Harry Campbell; Igor Rudan
Journal:  Croat Med J       Date:  2011-06       Impact factor: 1.351

7.  A novel metadata management model to capture consent for record linkage in longitudinal research studies.

Authors:  Christiana McMahon; Spiros Denaxas
Journal:  Inform Health Soc Care       Date:  2017-11-06       Impact factor: 2.439

  7 in total

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