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Literature DB >> 20818545

Is deidentification sufficient to protect health privacy in research?

Mark A Rothstein¹.

Abstract

Entities: Disease Gene Species

Mesh：

Year: 2010 PMID： 20818545 PMCID： PMC3032399 DOI： 10.1080/15265161.2010.494215

Source DB: PubMed Journal: Am J Bioeth ISSN： 1526-5161 Impact factor: 11.229

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22 in total

1. How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems.

Authors: Bradley Malin; Latanya Sweeney
Journal: J Biomed Inform Date: 2004-06 Impact factor: 6.317

Review 2. Biobanking: international norms.

Authors: Bartha Maria Knoppers
Journal: J Law Med Ethics Date: 2005 Impact factor: 1.718

Review 3. Harnessing the benefits of biobanks.

Authors: Lori B Andrews
Journal: J Law Med Ethics Date: 2005 Impact factor: 1.718

4. Privacy versus public health: the impact of current confidentiality rules.

Authors: Daniel Wartenberg; W Douglas Thompson
Journal: Am J Public Health Date: 2010-01-14 Impact factor: 9.308

5. Evaluating re-identification risks with respect to the HIPAA privacy rule.

Authors: Kathleen Benitez; Bradley Malin
Journal: J Am Med Inform Assoc Date: 2010 Mar-Apr Impact factor: 4.497

6. Re-examining respect for human research participants.

Authors: Neal W Dickert
Journal: Kennedy Inst Ethics J Date: 2009-12

7. Human experimentation and human rights.

Authors: Jay Katz
Journal: St Louis Univ Law J Date: 1993

Review 8. Informed consent for genetic research on stored tissue samples.

Authors: E W Clayton; K K Steinberg; M J Khoury; E Thomson; L Andrews; M J Kahn; L M Kopelman; J O Weiss
Journal: JAMA Date: 1995-12-13 Impact factor: 56.272

9. Patients' views on identifiability of samples and informed consent for genetic research.

Authors: Sara Chandros Hull; Richard R Sharp; Jeffrey R Botkin; Mark Brown; Mark Hughes; Jeremy Sugarman; Debra Schwinn; Pamela Sankar; Dragana Bolcic-Jankovic; Brian R Clarridge; Benjamin S Wilfond
Journal: Am J Bioeth Date: 2008-10 Impact factor: 11.229

8. Where should we draw the line between quality of care and other ethical concerns related to medical registries and biobanks?

Authors: Mats Hansson
Journal: Theor Med Bioeth Date: 2012-08

9. Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?

Authors: Susan Brown Trinidad; Stephanie M Fullerton; Julie M Bares; Gail P Jarvik; Eric B Larson; Wylie Burke
Journal: AJOB Prim Res Date: 2012-06-19

10. Power to the People: Data Citizens in the Age of Precision Medicine.

Authors: Barbara J Evans
Journal: Vanderbilt J Entertain Technol Law Date: 2017

Is deidentification sufficient to protect health privacy in research?

1. How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems.

Review 2. Biobanking: international norms.

Review 3. Harnessing the benefits of biobanks.

4. Privacy versus public health: the impact of current confidentiality rules.

5. Evaluating re-identification risks with respect to the HIPAA privacy rule.

6. Re-examining respect for human research participants.

7. Human experimentation and human rights.

Review 8. Informed consent for genetic research on stored tissue samples.

9. Patients' views on identifiability of samples and informed consent for genetic research.

10. The role of race and trust in tissue/blood donation for genetic research.

1. Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel.

Review 2. Ethics and neuropsychiatric genetics: a review of major issues.

3. International guidelines on biobank research leave researchers in ambiguity: why is this so?

4. Barbarians at the Gate: Consumer-Driven Health Data Commons and the Transformation of Citizen Science.

5. Ethical Implications of Clinical Genomic Information, Records Research, and Informed Consent.

6. Chronic Pancreatitis Patients Who Leave Against Medical Advice: Prevalence, Trend, and Predictors.

7. Ethical issues in health research with novel online sources.

8. Where should we draw the line between quality of care and other ethical concerns related to medical registries and biobanks?

9. Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?

10. Power to the People: Data Citizens in the Age of Precision Medicine.