Warning: Undefined array key "mm" in /www/wwwroot/www.ai-bt.com/si.php on line 10 Deprecated: trim(): Passing null to parameter #1 ($string) of type string is deprecated in /www/wwwroot/www.ai-bt.com/si.php on line 10 Barbarians at the Gate: Consumer-Driven Health Data Commons and the Transformation of Citizen Science.

Literature DB >> 29086656

Barbarians at the Gate: Consumer-Driven Health Data Commons and the Transformation of Citizen Science.

Abstract

"The expression 'barbarians at the gate' was … used by the Romans to describe foreign attacks against their empire." 1 "[It] is often used in contemporary English within a sarcastic, or ironic context, when speaking about a perceived threat from a rival group of people, often deemed to be less capable or somehow 'primitive.'" 2.

Entities: Chemical Disease Gene Species

Mesh：

Year: 2016 PMID： 29086656 PMCID： PMC5664944 DOI： 10.1177/0098858817700245

Source DB: PubMed Journal: Am J Law Med ISSN： 0098-8588

27 in total

1. Research vs. public health practice: when does a study require IRB review?

Authors: Paul J Amoroso; John P Middaugh
Journal: Prev Med Date: 2003-02 Impact factor: 4.018

2. Potential effect of authorization bias on medical record research.

Authors: S J Jacobsen; Z Xia; M E Campion; C H Darby; M F Plevak; K D Seltman; L J Melton
Journal: Mayo Clin Proc Date: 1999-04 Impact factor: 7.616

3. Rationalizing risk assessment in human subject research.

Authors: Carl H Coleman
Journal: Ariz Law Rev Date: 2004

4. Disclosing individual results of clinical research: implications of respect for participants.

Authors: David I Shalowitz; Franklin G Miller
Journal: JAMA Date: 2005-08-10 Impact factor: 56.272

5. Ownership of medical information.

Authors: Mark A Hall; Kevin A Schulman
Journal: JAMA Date: 2009-03-25 Impact factor: 56.272

6. A globally optimal k-anonymity method for the de-identification of health data.

Authors: Khaled El Emam; Fida Kamal Dankar; Romeo Issa; Elizabeth Jonker; Daniel Amyot; Elise Cogo; Jean-Pierre Corriveau; Mark Walker; Sadrul Chowdhury; Regis Vaillancourt; Tyson Roffey; Jim Bottomley
Journal: J Am Med Inform Assoc Date: 2009-06-30 Impact factor: 4.497

7. Disentangling privacy from property: toward a deeper understanding of genetic privacy.

Authors: Sonia M Suter
Journal: George Washington Law Rev Date: 2004-04

8. Selection bias from requiring patients to give consent to examine data for health services research.

Authors: S H Woolf; S F Rothemich; R E Johnson; D W Marsland
Journal: Arch Fam Med Date: 2000 Nov-Dec

9. Impracticability of informed consent in the Registry of the Canadian Stroke Network.

Authors: Jack V Tu; Donald J Willison; Frank L Silver; Jiming Fang; Janice A Richards; Andreas Laupacis; Moira K Kapral
Journal: N Engl J Med Date: 2004-04-01 Impact factor: 91.245

10. Selection bias resulting from the requirement for prior consent in observational research: a community cohort of people with ischaemic heart disease.

Authors: Brian Buckley; Andrew W Murphy; Molly Byrne; Liam Glynn
Journal: Heart Date: 2007-05-13 Impact factor: 5.994

15 in total

9. THE GENETIC INFORMATION NONDISCRIMINATION ACT AT AGE 10: GINA'S CONTROVERSIAL ASSERTION THAT DATA TRANSPARENCY PROTECTS PRIVACY AND CIVIL RIGHTS.

Authors: Barbara J Evans
Journal: William Mary Law Rev Date: 2019

10. Developing and Evaluating Digital Interventions to Promote Behavior Change in Health and Health Care: Recommendations Resulting From an International Workshop.

Authors: Susan Michie; Lucy Yardley; Robert West; Kevin Patrick; Felix Greaves
Journal: J Med Internet Res Date: 2017-06-29 Impact factor: 5.428

Barbarians at the Gate: Consumer-Driven Health Data Commons and the Transformation of Citizen Science.

1. Research vs. public health practice: when does a study require IRB review?

2. Potential effect of authorization bias on medical record research.

3. Rationalizing risk assessment in human subject research.

4. Disclosing individual results of clinical research: implications of respect for participants.

5. Ownership of medical information.

6. A globally optimal k-anonymity method for the de-identification of health data.

7. Disentangling privacy from property: toward a deeper understanding of genetic privacy.

8. Selection bias from requiring patients to give consent to examine data for health services research.

9. Impracticability of informed consent in the Registry of the Canadian Stroke Network.

10. Selection bias resulting from the requirement for prior consent in observational research: a community cohort of people with ischaemic heart disease.

1. Response to Dreyfus and Sobel.

2. The Role of Participants in a Medical Information Commons.

3. Advancing nursing participation in user-centred design.

4. Special Collection Editorial: The digital movement in nursing.

5. Health Research with Big Data: Time for Systemic Oversight.

6. Trust and Expectations of Researchers and Public Health Departments for the Use of HIV Molecular Epidemiology.

7. Power to the People: Data Citizens in the Age of Precision Medicine.

Review 8. Sharing data under the 21st Century Cures Act.

9. THE GENETIC INFORMATION NONDISCRIMINATION ACT AT AGE 10: GINA'S CONTROVERSIAL ASSERTION THAT DATA TRANSPARENCY PROTECTS PRIVACY AND CIVIL RIGHTS.

10. Developing and Evaluating Digital Interventions to Promote Behavior Change in Health and Health Care: Recommendations Resulting From an International Workshop.