Literature DB >> 20075316

Privacy versus public health: the impact of current confidentiality rules.

Daniel Wartenberg1, W Douglas Thompson.   

Abstract

Public health research and practice often have been facilitated through the evaluation and study of population-based data collected by local, state, and federal governments. However, recent concerns about identify theft, confidentiality, and patient privacy have led to increasingly restrictive policies on data access, often preventing researchers from using these valuable data. We believe that these restrictions, and the research impeded or precluded by their implementation and enforcement, have had a significant negative impact on important public health research. Members of the public health community should challenge these policies through their professional societies and by lobbying legislators and health officials to advocate for changes that establish a more appropriate balance between privacy concerns and the protection of public health.

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Year:  2010        PMID: 20075316      PMCID: PMC2820076          DOI: 10.2105/AJPH.2009.166249

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  44 in total

Review 1.  Particulate air pollution and fetal health: a systematic review of the epidemiologic evidence.

Authors:  Svetlana V Glinianaia; Judith Rankin; Ruth Bell; Tanja Pless-Mulloli; Denise Howel
Journal:  Epidemiology       Date:  2004-01       Impact factor: 4.822

2.  Air pollution and daily mortality: associations with particulates and acid aerosols.

Authors:  D W Dockery; J Schwartz; J D Spengler
Journal:  Environ Res       Date:  1992-12       Impact factor: 6.498

Review 3.  A summary of recent findings on birth outcomes and developmental effects of prenatal ETS, PAH, and pesticide exposures.

Authors:  F P Perera; V Rauh; R M Whyatt; D Tang; W Y Tsai; J T Bernert; Y H Tu; H Andrews; D B Barr; D E Camann; D Diaz; J Dietrich; A Reyes; P L Kinney
Journal:  Neurotoxicology       Date:  2005-08       Impact factor: 4.294

4.  A microcomputer-based vital records data base with interactive graphic assessment for states and localities.

Authors:  D Wartenberg; V J Agamennone; D Ozonoff; R J Berry
Journal:  Am J Public Health       Date:  1989-11       Impact factor: 9.308

5.  Making environmental data accessible for public health aims. The Massachusetts Environmental Database project.

Authors:  C A Paulu; D M Ozonoff; P Coogan; D Wartenberg
Journal:  Public Health Rep       Date:  1995 Nov-Dec       Impact factor: 2.792

6.  The epidemiologist's lament.

Authors:  K J Rothman
Journal:  Am J Public Health       Date:  1981-12       Impact factor: 9.308

Review 7.  Potential health effects associated with residential proximity to freeways and primary roads: review of scientific literature, 1999-2006.

Authors:  Vickie L Boothe; Derek G Shendell
Journal:  J Environ Health       Date:  2008-04       Impact factor: 1.179

Review 8.  Syndromic surveillance and bioterrorism-related epidemics.

Authors:  James W Buehler; Ruth L Berkelman; David M Hartley; Clarence J Peters
Journal:  Emerg Infect Dis       Date:  2003-10       Impact factor: 6.883

Review 9.  Ambient air pollution and pregnancy outcomes: a review of the literature.

Authors:  Radim J Srám; Blanka Binková; Jan Dejmek; Martin Bobak
Journal:  Environ Health Perspect       Date:  2005-04       Impact factor: 9.031

10.  Increased rate of hospitalization for diabetes and residential proximity of hazardous waste sites.

Authors:  Maria Kouznetsova; Xiaoyu Huang; Jing Ma; Lawrence Lessner; David O Carpenter
Journal:  Environ Health Perspect       Date:  2007-01       Impact factor: 9.031

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  27 in total

1.  Reframing the influence of the Health Insurance Portability and Accountability Act on research.

Authors:  Carol Bova; Deborah Drexler; Susan Sullivan-Bolyai
Journal:  Chest       Date:  2012-03       Impact factor: 9.410

2.  Geospatial cryptography: enabling researchers to access private, spatially referenced, human subjects data for cancer control and prevention.

Authors:  Geoffrey M Jacquez; Aleksander Essex; Andrew Curtis; Betsy Kohler; Recinda Sherman; Khaled El Emam; Chen Shi; Andy Kaufmann; Linda Beale; Thomas Cusick; Daniel Goldberg; Pierre Goovaerts
Journal:  J Geogr Syst       Date:  2017-05-11

3.  Informational privacy, public health, and state laws.

Authors:  Jean O'Connor; Gene Matthews
Journal:  Am J Public Health       Date:  2011-08-18       Impact factor: 9.308

4.  The risks of absolute medical confidentiality.

Authors:  M A Crook
Journal:  Sci Eng Ethics       Date:  2011-05-25       Impact factor: 3.525

5.  Privacy by Design at Population Data BC: a case study describing the technical, administrative, and physical controls for privacy-sensitive secondary use of personal information for research in the public interest.

Authors:  Caitlin Pencarrick Hertzman; Nancy Meagher; Kimberlyn M McGrail
Journal:  J Am Med Inform Assoc       Date:  2012-08-30       Impact factor: 4.497

Review 6.  A decade of environmental public health tracking (2002-2012): progress and challenges.

Authors:  Gregory D Kearney; Gonza Namulanda; Judith R Qualters; Evelyn O Talbott
Journal:  J Public Health Manag Pract       Date:  2015 Mar-Apr

7.  Recruitment of representative samples for low incidence cancer populations: do registries deliver?

Authors:  Tara Clinton-McHarg; Mariko Carey; Rob Sanson-Fisher; Elizabeth Tracey
Journal:  BMC Med Res Methodol       Date:  2011-01-16       Impact factor: 4.615

8.  Is deidentification sufficient to protect health privacy in research?

Authors:  Mark A Rothstein
Journal:  Am J Bioeth       Date:  2010-09       Impact factor: 11.229

9.  Public preferences about secondary uses of electronic health information.

Authors:  David Grande; Nandita Mitra; Anand Shah; Fei Wan; David A Asch
Journal:  JAMA Intern Med       Date:  2013-10-28       Impact factor: 21.873

10.  Missed opportunities to advance knowledge on traffic safety: Accessibility of driver licensing and crash data for scientific research.

Authors:  Meghan E Carey; Evan D Anderson; Rania Mansour; Jason Sloan; Allison E Curry
Journal:  Accid Anal Prev       Date:  2020-03-18
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