Literature DB >> 23740041

International guidelines on biobank research leave researchers in ambiguity: why is this so?

Joanna Stjernschantz Forsberg1, Mats G Hansson, Kathinka Evers.   

Abstract

Mesh：

Year:  2013        PMID： 23740041     DOI： 10.1007/s10654-013-9815-x

Source DB:  PubMed          Journal:  Eur J Epidemiol        ISSN： 0393-2990            Impact factor:   8.082


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  16 in total

1.  Data storage and DNA banking for biomedical research: technical, social and ethical issues.

Authors: 
Journal:  Eur J Hum Genet       Date:  2003-12       Impact factor: 4.246

Review 2.  Biobanking: international norms.

Authors:  Bartha Maria Knoppers
Journal:  J Law Med Ethics       Date:  2005       Impact factor: 1.718

Review 3.  Should donors be allowed to give broad consent to future biobank research?

Authors:  Mats G Hansson; Joakim Dillner; Claus R Bartram; Joyce A Carlson; Gert Helgesson
Journal:  Lancet Oncol       Date:  2006-03       Impact factor: 41.316

Review 4.  From genetic privacy to open consent.

Authors:  Jeantine E Lunshof; Ruth Chadwick; Daniel B Vorhaus; George M Church
Journal:  Nat Rev Genet       Date:  2008-05       Impact factor: 53.242

5.  Is deidentification sufficient to protect health privacy in research?

Authors:  Mark A Rothstein
Journal:  Am J Bioeth       Date:  2010-09       Impact factor: 11.229

Review 6.  Human genetic research: emerging trends in ethics.

Authors:  Bartha Maria Knoppers; Ruth Chadwick
Journal:  Nat Rev Genet       Date:  2005-01       Impact factor: 53.242

7.  Sample bias among women with retained DNA samples for future genetic studies.

Authors:  Kjersti Aagaard-Tillery; Baha Sibai; Catherine Y Spong; Valerija Momirova; George Wendel; Katharine Wenstrom; Philip Samuels; Margaret Cotroneo; Atef Moawad; Yoram Sorokin; Menachem Miodovnik; Paul Meis; Mary J O'Sullivan; Deborah Conway; Ronald J Wapner
Journal:  Obstet Gynecol       Date:  2006-11       Impact factor: 7.661

8.  Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: convention on human rights and biomedicine (adopted by the Committee of Ministers on 19 November 1996). Council of Europe Convention of Biomedicine.

Authors: 
Journal:  Hum Reprod       Date:  1997-09       Impact factor: 6.918

9.  Trends in ethical and legal frameworks for the use of human biobanks.

Authors:  A Cambon-Thomsen; E Rial-Sebbag; B M Knoppers
Journal:  Eur Respir J       Date:  2007-08       Impact factor: 16.671

10.  Participation bias and its impact on the assembly of a genetic specimen repository for a myocardial infarction cohort.

Authors:  Adelaide M Arruda-Olson; Susan A Weston; Brooke L Fridley; Jill M Killian; Ellen E Koepsell; Véronique L Roger
Journal:  Mayo Clin Proc       Date:  2007-10       Impact factor: 7.616
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  3 in total

1.  The Rotterdam Study: 2016 objectives and design update.

Authors:  Albert Hofman; Guy G O Brusselle; Sarwa Darwish Murad; Cornelia M van Duijn; Oscar H Franco; André Goedegebure; M Arfan Ikram; Caroline C W Klaver; Tamar E C Nijsten; Robin P Peeters; Bruno H Ch Stricker; Henning W Tiemeier; André G Uitterlinden; Meike W Vernooij
Journal:  Eur J Epidemiol       Date:  2015-09-19       Impact factor: 8.082

2.  The EuroBioBank Network: 10 years of hands-on experience of collaborative, transnational biobanking for rare diseases.

Authors:  Marina Mora; Corrado Angelini; Fabrizia Bignami; Anne-Mary Bodin; Marco Crimi; Jeanne-Hélène Di Donato; Alex Felice; Cécile Jaeger; Veronika Karcagi; Yann LeCam; Stephen Lynn; Marija Meznaric; Maurizio Moggio; Lucia Monaco; Luisa Politano; Manuel Posada de la Paz; Safaa Saker; Peter Schneiderat; Monica Ensini; Barbara Garavaglia; David Gurwitz; Diana Johnson; Francesco Muntoni; Jack Puymirat; Mojgan Reza; Thomas Voit; Chiara Baldo; Franca Dagna Bricarelli; Stefano Goldwurm; Giuseppe Merla; Elena Pegoraro; Alessandra Renieri; Kurt Zatloukal; Mirella Filocamo; Hanns Lochmüller
Journal:  Eur J Hum Genet       Date:  2014-12-24       Impact factor: 4.246

Review 3.  Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.

Authors:  Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2016-03-03       Impact factor: 8.929
  3 in total

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