Literature DB >> 30275779

Ethical Implications of Clinical Genomic Information, Records Research, and Informed Consent.

Susannah W Lee1.   

Abstract

Year:  2018        PMID： 30275779      PMCID： PMC6162134          DOI： 10.31486/toj.18.0052

Source DB:  PubMed          Journal:  Ochsner J        ISSN： 1524-5012


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  14 in total

1.  Research on medical records without informed consent.

Authors:  Franklin G Miller
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

Review 2.  From genetic privacy to open consent.

Authors:  Jeantine E Lunshof; Ruth Chadwick; Daniel B Vorhaus; George M Church
Journal:  Nat Rev Genet       Date:  2008-05       Impact factor: 53.242

3.  Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research.

Authors:  Holly K Tabor; Benjamin E Berkman; Sara Chandros Hull; Michael J Bamshad
Journal:  Am J Med Genet A       Date:  2011-10-28       Impact factor: 2.802

4.  Is deidentification sufficient to protect health privacy in research?

Authors:  Mark A Rothstein
Journal:  Am J Bioeth       Date:  2010-09       Impact factor: 11.229

5.  Attitudes Toward Risk and Informed Consent for Research on Medical Practices: A Cross-sectional Survey.

Authors:  Mildred K Cho; David Magnus; Melissa Constantine; Sandra Soo-Jin Lee; Maureen Kelley; Stephanie Alessi; Diane Korngiebel; Cyan James; Ellen Kuwana; Thomas H Gallagher; Douglas Diekema; Alexander M Capron; Steven Joffe; Benjamin S Wilfond
Journal:  Ann Intern Med       Date:  2015-05-19       Impact factor: 25.391

Review 6.  Patient Portals and Patient Engagement: A State of the Science Review.

Authors:  Taya Irizarry; Annette DeVito Dabbs; Christine R Curran
Journal:  J Med Internet Res       Date:  2015-06-23       Impact factor: 5.428

Review 7.  Ethical, legal, and social implications of incorporating genomic information into electronic health records.

Authors:  Ribhi Hazin; Kyle B Brothers; Bradley A Malin; Barbara A Koenig; Saskia C Sanderson; Mark A Rothstein; Marc S Williams; Ellen W Clayton; Iftikhar J Kullo
Journal:  Genet Med       Date:  2013-09-12       Impact factor: 8.822

8.  Unique in the Crowd: The privacy bounds of human mobility.

Authors:  Yves-Alexandre de Montjoye; César A Hidalgo; Michel Verleysen; Vincent D Blondel
Journal:  Sci Rep       Date:  2013       Impact factor: 4.379

9.  Modeling 3D facial shape from DNA.

Authors:  Peter Claes; Denise K Liberton; Katleen Daniels; Kerri Matthes Rosana; Ellen E Quillen; Laurel N Pearson; Brian McEvoy; Marc Bauchet; Arslan A Zaidi; Wei Yao; Hua Tang; Gregory S Barsh; Devin M Absher; David A Puts; Jorge Rocha; Sandra Beleza; Rinaldo W Pereira; Gareth Baynam; Paul Suetens; Dirk Vandermeulen; Jennifer K Wagner; James S Boster; Mark D Shriver
Journal:  PLoS Genet       Date:  2014-03-20       Impact factor: 5.917

Review 10.  Genetic-based prediction of disease traits: prediction is very difficult, especially about the future.

Authors:  Steven J Schrodi; Shubhabrata Mukherjee; Ying Shan; Gerard Tromp; John J Sninsky; Amy P Callear; Tonia C Carter; Zhan Ye; Jonathan L Haines; Murray H Brilliant; Paul K Crane; Diane T Smelser; Robert C Elston; Daniel E Weeks
Journal:  Front Genet       Date:  2014-06-02       Impact factor: 4.599
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  1 in total

1.  Inclusiveness and ethical considerations for observational, translational, and clinical cancer health disparity research.

Authors:  Michael Behring; Kevin Hale; Bunyamin Ozaydin; William E Grizzle; Stephen O Sodeke; Upender Manne
Journal:  Cancer       Date:  2019-09-10       Impact factor: 6.860
  1 in total

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