Literature DB >> 20634807

Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects.

Heidi C Howard1, Bartha Maria Knoppers, Pascal Borry.   

Abstract

Mesh：

Year:  2010        PMID： 20634807      PMCID： PMC2920435          DOI： 10.1038/embor.2010.105

Source DB:  PubMed          Journal:  EMBO Rep        ISSN： 1469-221X            Impact factor:   8.807


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  10 in total

1.  Genetics. Genomic research and human subject privacy.

Authors:  Zhen Lin; Art B Owen; Russ B Altman
Journal:  Science       Date:  2004-07-09       Impact factor: 47.728

2.  Building a foundation for biobanking: the 2009 OECD guidelines on human biobanks and genetic research databases (HBGRDs).

Authors:  Jane Kaye
Journal:  Eur J Health Law       Date:  2010-03

3.  Genetics. No longer de-identified.

Authors:  Amy L McGuire; Richard A Gibbs
Journal:  Science       Date:  2006-04-21       Impact factor: 47.728

Review 4.  The current landscape for direct-to-consumer genetic testing: legal, ethical, and policy issues.

Authors:  Stuart Hogarth; Gail Javitt; David Melzer
Journal:  Annu Rev Genomics Hum Genet       Date:  2008       Impact factor: 8.929

5.  Statement of the ESHG on direct-to-consumer genetic testing for health-related purposes.

Authors: 
Journal:  Eur J Hum Genet       Date:  2010-08-25       Impact factor: 4.246

6.  Consent to the use of stored DNA for genetics research: a survey of attitudes in the Jewish population.

Authors:  M D Schwartz; K Rothenberg; L Joseph; J Benkendorf; C Lerman
Journal:  Am J Med Genet       Date:  2001-02-01

7.  A study of public opinion on the use of tissue samples from living subjects for clinical research.

Authors:  M L Goodson; B G Vernon
Journal:  J Clin Pathol       Date:  2004-02       Impact factor: 3.411

8.  Patients' views on identifiability of samples and informed consent for genetic research.

Authors:  Sara Chandros Hull; Richard R Sharp; Jeffrey R Botkin; Mark Brown; Mark Hughes; Jeremy Sugarman; Debra Schwinn; Pamela Sankar; Dragana Bolcic-Jankovic; Brian R Clarridge; Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2008-10       Impact factor: 11.229

9.  Public access to genome-wide data: five views on balancing research with privacy and protection.

Authors:  George Church; Catherine Heeney; Naomi Hawkins; Jantina de Vries; Paula Boddington; Jane Kaye; Martin Bobrow; Bruce Weir
Journal:  PLoS Genet       Date:  2009-10-02       Impact factor: 5.917

10.  Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.

Authors:  Nils Homer; Szabolcs Szelinger; Margot Redman; David Duggan; Waibhav Tembe; Jill Muehling; John V Pearson; Dietrich A Stephan; Stanley F Nelson; David W Craig
Journal:  PLoS Genet       Date:  2008-08-29       Impact factor: 5.917
  10 in total
  17 in total

1.  Users' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories.

Authors:  Yeyang Su; Heidi C Howard; Pascal Borry
Journal:  J Community Genet       Date:  2011-05-28

2.  Is there a doctor in the house? : The presence of physicians in the direct-to-consumer genetic testing context.

Authors:  Heidi Carmen Howard; Pascal Borry
Journal:  J Community Genet       Date:  2011-09-06

3.  Legislation on direct-to-consumer genetic testing in seven European countries.

Authors:  Pascal Borry; Rachel E van Hellemondt; Dominique Sprumont; Camilla Fittipaldi Duarte Jales; Emmanuelle Rial-Sebbag; Tade Matthias Spranger; Liam Curren; Jane Kaye; Herman Nys; Heidi Howard
Journal:  Eur J Hum Genet       Date:  2012-01-25       Impact factor: 4.246

4.  Neither as harmful as feared by critics nor as empowering as promised by providers: risk information offered direct to consumer by personal genomics companies.

Authors:  Anders Nordgren
Journal:  J Community Genet       Date:  2012-04-05

5.  Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?

Authors:  Heidi Carmen Howard; Denise Avard; Pascal Borry
Journal:  Eur J Hum Genet       Date:  2011-06-01       Impact factor: 4.246

Review 6.  Closure of population biobanks and direct-to-consumer genetic testing companies.

Authors:  Ma'n H Zawati; Pascal Borry; Heidi Carmen Howard
Journal:  Hum Genet       Date:  2011-06-26       Impact factor: 4.132

Review 7.  Direct-to-consumer personalized genomic testing.

Authors:  Cinnamon S Bloss; Burcu F Darst; Eric J Topol; Nicholas J Schork
Journal:  Hum Mol Genet       Date:  2011-08-09       Impact factor: 6.150

8.  The sense of responsibility in the context of professional activities in Medical Genetics.

Authors:  Natália Oliva-Teles
Journal:  Med Health Care Philos       Date:  2011-11

9.  The 'thousand-dollar genome': an ethical exploration.

Authors:  Wybo J Dondorp; Guido M W R de Wert
Journal:  Eur J Hum Genet       Date:  2013-06       Impact factor: 4.246

Review 10.  "The Google of Healthcare": enabling the privatization of genetic bio/databanking.

Authors:  Kayte Spector-Bagdady
Journal:  Ann Epidemiol       Date:  2016-06-01       Impact factor: 3.797
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