Literature DB >> 14747435

A study of public opinion on the use of tissue samples from living subjects for clinical research.

M L Goodson1, B G Vernon.   

Abstract

AIMS: To assess public opinion on the use of tissue samples from living adults and children for clinical research.
METHODS: A questionnaire study of 100 healthy volunteers (100% response rate) from a Newcastle NHS dental practice. The issues investigated were the types of tissues that individuals were prepared to donate for research, the type of research donors would be prepared to consent to, and attitudes to research on children's tissues.
RESULTS: Eighteen per cent of the participants said that they would not give consent for research to be carried out on their tissues, 50% would not give consent for the donation of a child's tissues. Only 26% of subjects said that they would give consent for research on genetic cloning compared with 82% for cancer research. Sex differences existed in the responses.
CONCLUSIONS: Greater research attention needs to be given to public opinion on the use of tissue from living subjects for medical research to facilitate drafting of new legislation.

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach

Mesh:

Year:  2004        PMID: 14747435      PMCID: PMC1770207     

Source DB:  PubMed          Journal:  J Clin Pathol        ISSN: 0021-9746            Impact factor:   3.411


  4 in total

1.  What's wrong with "retained organs"? Some personal reflections in the afterglow of "Alder Hey".

Authors:  H M Evans
Journal:  J Clin Pathol       Date:  2001-11       Impact factor: 3.411

2.  The Alder Hey affair: implications for pathology practice.

Authors:  J L Burton; M Wells
Journal:  J Clin Pathol       Date:  2001-11       Impact factor: 3.411

Review 3.  No consent should be needed for using leftover body material for scientific purposes. For.

Authors:  Paul J van Diest
Journal:  BMJ       Date:  2002-09-21

4.  Ownership and uses of human tissue: does the Nuffield bioethics report accord with opinion of surgical inpatients?

Authors:  R D Start; W Brown; R J Bryant; M W Reed; S S Cross; G Kent; J C Underwood
Journal:  BMJ       Date:  1996-11-30
  4 in total
  20 in total

1.  Public opinion on the use of tissue samples.

Authors:  D M Berney; M L Goodson; B G Vernon
Journal:  J Clin Pathol       Date:  2004-07       Impact factor: 3.411

2.  Neither as harmful as feared by critics nor as empowering as promised by providers: risk information offered direct to consumer by personal genomics companies.

Authors:  Anders Nordgren
Journal:  J Community Genet       Date:  2012-04-05

3.  Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.

Authors:  George Gaskell; Herbert Gottweis; Johannes Starkbaum; Monica M Gerber; Jacqueline Broerse; Ursula Gottweis; Abbi Hobbs; Ilpo Helén; Maria Paschou; Karoliina Snell; Alexandra Soulier
Journal:  Eur J Hum Genet       Date:  2012-06-06       Impact factor: 4.246

4.  Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects.

Authors:  Heidi C Howard; Bartha Maria Knoppers; Pascal Borry
Journal:  EMBO Rep       Date:  2010-07-16       Impact factor: 8.807

5.  Hypothetical and factual willingness to participate in biobank research.

Authors:  Linus Johnsson; Gert Helgesson; Thorunn Rafnar; Ingibjorg Halldorsdottir; Kee-Seng Chia; Stefan Eriksson; Mats G Hansson
Journal:  Eur J Hum Genet       Date:  2010-07-21       Impact factor: 4.246

Review 6.  One-time general consent for research on biological samples.

Authors:  David Wendler
Journal:  BMJ       Date:  2006-03-04

Review 7.  Biobanking residual tissues.

Authors:  Peter H J Riegman; Evert-Ben van Veen
Journal:  Hum Genet       Date:  2011-08-04       Impact factor: 4.132

8.  Biobanks and the phantom public.

Authors:  Herbert Gottweis; Haidan Chen; Johannes Starkbaum
Journal:  Hum Genet       Date:  2011-07-20       Impact factor: 4.132

9.  Development and validation of the biobanking attitudes and knowledge survey (BANKS).

Authors:  Kristen J Wells; Mariana Arevalo; Cathy D Meade; Clement K Gwede; Gwendolyn P Quinn; John S Luque; Gloria San Miguel; Dale Watson; Rebecca Phillips; Carmen Reyes; Margarita Romo; Jim West; Paul B Jacobsen
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2014-03       Impact factor: 4.254

10.  Impact of non-welfare interests on willingness to donate to biobanks: an experimental survey.

Authors:  Michele C Gornick; Kerry A Ryan; Scott Y H Kim
Journal:  J Empir Res Hum Res Ethics       Date:  2014-08-11       Impact factor: 1.742

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.