Literature DB >> 20443449

Building a foundation for biobanking: the 2009 OECD guidelines on human biobanks and genetic research databases (HBGRDs).

Jane Kaye1.   

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Year:  2010        PMID: 20443449     DOI: 10.1163/157180910x12665776638821

Source DB:  PubMed          Journal:  Eur J Health Law        ISSN: 0929-0273


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  16 in total

1.  Stem cell banking: between traceability and identifiability.

Authors:  Bartha M Knoppers; Rosario Isasi
Journal:  Genome Med       Date:  2010-10-05       Impact factor: 11.117

2.  Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects.

Authors:  Heidi C Howard; Bartha Maria Knoppers; Pascal Borry
Journal:  EMBO Rep       Date:  2010-07-16       Impact factor: 8.807

3.  The value of using top-down and bottom-up approaches for building trust and transparency in biobanking.

Authors:  Eric M Meslin
Journal:  Public Health Genomics       Date:  2010-04-15       Impact factor: 2.000

Review 4.  Return of individual research results and incidental findings: facing the challenges of translational science.

Authors:  Susan M Wolf
Journal:  Annu Rev Genomics Hum Genet       Date:  2013-07-15       Impact factor: 8.929

5.  Paediatric research and the communication of not-so incidental findings.

Authors:  Bartha Maria Knoppers
Journal:  Paediatr Child Health       Date:  2012-04       Impact factor: 2.253

Review 6.  Development and progress of Ireland's biobank network: Ethical, legal, and social implications (ELSI), standardized documentation, sample and data release, and international perspective.

Authors:  Blanaid Mee; Eoin Gaffney; Sharon A Glynn; Simona Donatello; Paul Carroll; Elizabeth Connolly; Sarah Mc Garrigle; Terry Boyle; Delia Flannery; Francis J Sullivan; Paul McCormick; Mairead Griffin; Cian Muldoon; Joanna Fay; Tony O'Grady; Elaine Kay; Joe Eustace; Louise Burke; Asim A Sheikh; Stephen Finn; Richard Flavin; Francis J Giles
Journal:  Biopreserv Biobank       Date:  2013-02       Impact factor: 2.300

7.  Bridging consent: from toll bridges to lift bridges?

Authors:  Isabelle Budin-Ljøsne; Anne Marie Tassé; Bartha Maria Knoppers; Jennifer R Harris
Journal:  BMC Med Genomics       Date:  2011-10-04       Impact factor: 3.063

8.  Clarifying assent in pediatric research.

Authors:  Noor A A Giesbertz; Annelien L Bredenoord; Johannes J M van Delden
Journal:  Eur J Hum Genet       Date:  2013-06-12       Impact factor: 4.246

9.  Inclusion of residual tissue in biobanks: opt-in or opt-out?

Authors:  Noor A A Giesbertz; Annelien L Bredenoord; Johannes J M van Delden
Journal:  PLoS Biol       Date:  2012-08-07       Impact factor: 8.029

10.  Toward a roadmap in global biobanking for health.

Authors:  Jennifer R Harris; Paul Burton; Bartha Maria Knoppers; Klaus Lindpaintner; Marianna Bledsoe; Anthony J Brookes; Isabelle Budin-Ljøsne; Rex Chisholm; David Cox; Mylène Deschênes; Isabel Fortier; Pierre Hainaut; Robert Hewitt; Jane Kaye; Jan-Eric Litton; Andres Metspalu; Bill Ollier; Lyle J Palmer; Aarno Palotie; Markus Pasterk; Markus Perola; Peter H J Riegman; Gert-Jan van Ommen; Martin Yuille; Kurt Zatloukal
Journal:  Eur J Hum Genet       Date:  2012-06-20       Impact factor: 4.246

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