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Literature DB >> 16627725

Genetics. No longer de-identified.

Amy L McGuire¹, Richard A Gibbs.

Abstract

Mesh：

Year: 2006 PMID： 16627725 DOI： 10.1126/science.1125339

Source DB: PubMed Journal: Science ISSN： 0036-8075 Impact factor: 47.728

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Cited

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75 in total

1. Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.

Authors: Amy L McGuire; Melissa Basford; Lynn G Dressler; Stephanie M Fullerton; Barbara A Koenig; Rongling Li; Cathy A McCarty; Erin Ramos; Maureen E Smith; Carol P Somkin; Carol Waudby; Wendy A Wolf; Ellen Wright Clayton
Journal: Genome Res Date: 2011-06-01 Impact factor: 9.043

2. Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel.

Authors: Stephanie M Fullerton; Sandra S-J Lee
Journal: BMC Med Ethics Date: 2011-09-26 Impact factor: 2.652

3. Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects.

Authors: Heidi C Howard; Bartha Maria Knoppers; Pascal Borry
Journal: EMBO Rep Date: 2010-07-16 Impact factor: 8.807

Genetics. No longer de-identified.

1. Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.

2. Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel.

3. Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects.

4. ASHG Presidential Address: Who is under the umbrella--and why are we here?

Review 5. Ethical issues in stem cell research.

6. Ethical, legal, and social considerations in conducting the Human Microbiome Project.

Review 7. Informed consent in genomics and genetic research.

8. Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers.

Review 9. Evolving approaches to the ethical management of genomic data.

10. Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?