Literature DB >> 19359558

Newborn blood collections. Science gold mine, ethical minefield.

Jennifer Couzin-Frankel.   

Abstract

Mesh:

Year:  2009        PMID: 19359558     DOI: 10.1126/science.324.5924.166

Source DB:  PubMed          Journal:  Science        ISSN: 0036-8075            Impact factor:   47.728


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  16 in total

1.  Newborn screening education on the internet: a content analysis of North American newborn screening program websites.

Authors:  Makda H Araia; Beth K Potter
Journal:  J Community Genet       Date:  2011-04-15

2.  Public attitudes regarding the use of residual newborn screening specimens for research.

Authors:  Jeffrey R Botkin; Erin Rothwell; Rebecca Anderson; Louisa Stark; Aaron Goldenberg; Michelle Lewis; Matthew Burbank; Bob Wong
Journal:  Pediatrics       Date:  2012-01-16       Impact factor: 7.124

3.  Newborn screening.

Authors:  James J Pitt
Journal:  Clin Biochem Rev       Date:  2010-05

Review 4.  Newborn bloodspot screening policy framework for Australia.

Authors:  Peter O'Leary; Susannah Maxwell
Journal:  Australas Med J       Date:  2015-09-30

5.  Storage and use of Newborn Screening Blood Specimens for Research: Assessing Public Opinion in Illinois.

Authors:  Alexa Hart; Michael Petros; Joel Charrow; Claudia Nash; Catherine Wicklund
Journal:  J Genet Couns       Date:  2014-11-20       Impact factor: 2.537

6.  'Cool! and creepy': engaging with college student stakeholders in Michigan's biobank.

Authors:  Tevah Platt; Jodyn Platt; Daniel B Thiel; Nicole Fisher; Sharon L R Kardia
Journal:  J Community Genet       Date:  2014-06-12

7.  Education and parental involvement in decision-making about newborn screening: understanding goals to clarify content.

Authors:  Beth K Potter; Holly Etchegary; Stuart G Nicholls; Brenda J Wilson; Samantha M Craigie; Makda H Araia
Journal:  J Genet Couns       Date:  2014-11-18       Impact factor: 2.537

8.  Patients' attitudes toward the donation of biological materials for the derivation of induced pluripotent stem cells.

Authors:  Ishan Dasgupta; Juli Bollinger; Debra J H Mathews; Neil M Neumann; Abbas Rattani; Jeremy Sugarman
Journal:  Cell Stem Cell       Date:  2014-01-02       Impact factor: 24.633

9.  'Born in Michigan? You're in the biobank': engaging population biobank participants through Facebook advertisements.

Authors:  J E Platt; T Platt; D Thiel; S L R Kardia
Journal:  Public Health Genomics       Date:  2013-06-21       Impact factor: 2.000

10.  Informational risk, institutional review, and autonomy in the proposed changes to the common rule.

Authors:  Megan Allyse; Katrina Karkazis; Sandra Soo-Jin Lee; Sara L Tobin; Henry T Greely; Mildred K Cho; David Magnus
Journal:  IRB       Date:  2012 May-Jun
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