Literature DB >> 22830179

Informational risk, institutional review, and autonomy in the proposed changes to the common rule.

Megan Allyse1, Katrina Karkazis, Sandra Soo-Jin Lee, Sara L Tobin, Henry T Greely, Mildred K Cho, David Magnus.   

Abstract

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Year:  2012        PMID： 22830179      PMCID： PMC6824263     

Source DB:  PubMed          Journal:  IRB        ISSN： 0193-7758


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  7 in total

1.  Tearoom trade: means and ends in social research.

Authors:  Donald P Warwick
Journal:  Stud Hastings Cent       Date:  1973-04

Review 2.  Should donors be allowed to give broad consent to future biobank research?

Authors:  Mats G Hansson; Joakim Dillner; Claus R Bartram; Joyce A Carlson; Gert Helgesson
Journal:  Lancet Oncol       Date:  2006-03       Impact factor: 41.316

3.  Broadening consent--and diluting ethics?

Authors:  B Hofmann
Journal:  J Med Ethics       Date:  2009-02       Impact factor: 2.903

4.  Newborn blood collections. Science gold mine, ethical minefield.

Authors:  Jennifer Couzin-Frankel
Journal:  Science       Date:  2009-04-10       Impact factor: 47.728

5.  Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.

Authors:  Richard R Fabsitz; Amy McGuire; Richard R Sharp; Mona Puggal; Laura M Beskow; Leslie G Biesecker; Ebony Bookman; Wylie Burke; Esteban Gonzalez Burchard; George Church; Ellen Wright Clayton; John H Eckfeldt; Conrad V Fernandez; Rebecca Fisher; Stephanie M Fullerton; Stacey Gabriel; Francine Gachupin; Cynthia James; Gail P Jarvik; Rick Kittles; Jennifer R Leib; Christopher O'Donnell; P Pearl O'Rourke; Laura Lyman Rodriguez; Sheri D Schully; Alan R Shuldiner; Rebecca K F Sze; Joseph V Thakuria; Susan M Wolf; Gregory L Burke
Journal:  Circ Cardiovasc Genet       Date:  2010-12

Review 6.  Managing incidental findings in human subjects research: analysis and recommendations.

Authors:  Susan M Wolf; Frances P Lawrenz; Charles A Nelson; Jeffrey P Kahn; Mildred K Cho; Ellen Wright Clayton; Joel G Fletcher; Michael K Georgieff; Dale Hammerschmidt; Kathy Hudson; Judy Illes; Vivek Kapur; Moira A Keane; Barbara A Koenig; Bonnie S Leroy; Elizabeth G McFarland; Jordan Paradise; Lisa S Parker; Sharon F Terry; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

7.  Elevator talk: observational study of inappropriate comments in a public space.

Authors:  P A Ubel; M M Zell; D J Miller; G S Fischer; D Peters-Stefani; R M Arnold
Journal:  Am J Med       Date:  1995-08       Impact factor: 4.965
  7 in total
  4 in total

1.  Assessing Researcher Needs for a Virtual Biobank.

Authors:  Jenna van Draanen; Pamela Davidson; Helene Bour-Jordan; LeeAnna Bowman-Carpio; David Boyle; Steve Dubinett; Brian Gardner; Jachael Gardner; Courtney McFall; Dan Mercola; Terry Nakazono; Stephanie Soares; Hubert Stoppler; Margaret Tempero; Scott Vandenberg; Yu Jui Wan; Sarah Dry
Journal:  Biopreserv Biobank       Date:  2016-12-08       Impact factor: 2.300

2.  23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent.

Authors:  Megan Allyse
Journal:  Trends Biotechnol       Date:  2012-12-11       Impact factor: 19.536

3.  Procedure versus process: ethical paradigms and the conduct of qualitative research.

Authors:  Kristian Pollock
Journal:  BMC Med Ethics       Date:  2012-09-27       Impact factor: 2.652

4.  Privacy, Trust, and Data Sharing in Web-Based and Mobile Research: Participant Perspectives in a Large Nationwide Sample of Men Who Have Sex With Men in the United States.

Authors:  H Jonathon Rendina; Brian Mustanski
Journal:  J Med Internet Res       Date:  2018-07-04       Impact factor: 5.428
  4 in total

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