Literature DB >> 14682354

Psychosocial genetic counseling in the post-nondirective era: a point of view.

Jon Weil1.   

Abstract

For three decades nondirectiveness has served as the central ethos for genetic counseling. It has evolved from narrow definitions defining what should not be done to broad definitions that promote active counseling skills in support of client autonomy and informed decision making. As broad definitions have been formulated, the term "nondirective" has become largely irrelevant to their content; it persists primarily as a historic relic. It has thus become an impediment to creative theory and clinical practice. I propose that nondirectiveness be replaced as the central ethos, while relevant components (providing balanced information, not imposing the counselor's values) are retained as elements of practice and ethics. This raises the question of what principle(s) should be adopted as a new guiding ethos. To promote a discussion of that issue I propose that the central ethos of genetic counseling should be to bring the psychosocial component into every aspect of the work.

Entities:  

Keywords:  Genetics and Reproduction

Mesh:

Year:  2003        PMID: 14682354     DOI: 10.1023/a:1023234802124

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  33 in total

1.  Shared decision making and non-directiveness in genetic counselling.

Authors:  G Elwyn; J Gray; A Clarke
Journal:  J Med Genet       Date:  2000-02       Impact factor: 6.318

2.  Psychological aspects of genetic counseling: XII. More on counseling skills.

Authors:  Seymour Kessler
Journal:  J Genet Couns       Date:  1998-06       Impact factor: 2.537

3.  "Respect for autonomy" in genetic counseling: an analysis and a proposal.

Authors:  Mary Terrell White
Journal:  J Genet Couns       Date:  1997-09       Impact factor: 2.537

4.  Eugenics and nondirectiveness in genetic counseling.

Authors:  Robert G Resta
Journal:  J Genet Couns       Date:  1997-06       Impact factor: 2.537

5.  Is non-directive genetic counselling possible?

Authors:  A Clarke
Journal:  Lancet       Date:  1991-10-19       Impact factor: 79.321

6.  Genetic Counseling-Stress, Coping, and the Empowerment Perspective.

Authors:  A McConkie-Rosell; J A Sullivan
Journal:  J Genet Couns       Date:  1999-12       Impact factor: 2.537

7.  Supervision for Practicing Genetic Counselors: An Overview of Models.

Authors:  A L Kennedy
Journal:  J Genet Couns       Date:  2000-10       Impact factor: 2.537

8.  Nondirectiveness in prenatal genetics: patients read between the lines.

Authors:  G Anderson
Journal:  Nurs Ethics       Date:  1999-03       Impact factor: 2.874

9.  Empowering primary care health professionals in medical genetics: how soon? How fast? How far?

Authors:  K Greendale; R E Pyeritz
Journal:  Am J Med Genet       Date:  2001

10.  Categorizing genetic tests to identify their ethical, legal, and social implications.

Authors:  W Burke; L E Pinsky; N A Press
Journal:  Am J Med Genet       Date:  2001
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  45 in total

1.  Genetic counselors: translating genomic science into clinical practice.

Authors:  Robin L Bennett; Heather L Hampel; Jessica B Mandell; Joan H Marks
Journal:  J Clin Invest       Date:  2003-11       Impact factor: 14.808

2.  Genetic counseling and the ethical issues around direct to consumer genetic testing.

Authors:  Alice K Hawkins; Anita Ho
Journal:  J Genet Couns       Date:  2012-06       Impact factor: 2.537

3.  What do genetic counselors learn on the job? A qualitative assessment of professional development outcomes.

Authors:  Marie Runyon; Kimberly W Zahm; Patricia McCarthy Veach; Ian M Macfarlane; Bonnie S Leroy
Journal:  J Genet Couns       Date:  2010-03-19       Impact factor: 2.537

4.  Genetic counseling as a tool for type 2 diabetes prevention: a genetic counseling framework for common polygenetic disorders.

Authors:  Jessica L Waxler; Kelsey E O'Brien; Linda M Delahanty; James B Meigs; Jose C Florez; Elyse R Park; Barbara R Pober; Richard W Grant
Journal:  J Genet Couns       Date:  2012-10       Impact factor: 2.537

5.  From constraints to opportunities? Provision of psychosocial support in portuguese oncogenetic counseling services.

Authors:  Alvaro Mendes; Liliana Sousa; Milena Paneque
Journal:  J Genet Couns       Date:  2013-08-30       Impact factor: 2.537

6.  A practical account of autonomy: why genetic counseling is especially well suited to the facilitation of informed autonomous decision making.

Authors:  Jan Hodgson; Merle Spriggs
Journal:  J Genet Couns       Date:  2005-04       Impact factor: 2.537

Review 7.  Sterilized in the name of public health: race, immigration, and reproductive control in modern California.

Authors:  Alexandra Minna Stern
Journal:  Am J Public Health       Date:  2005-07       Impact factor: 9.308

8.  Exploring genetic counseling communication patterns: the role of teaching and counseling approaches.

Authors:  Lee Ellington; Bonnie J Baty; Jamie McDonald; Vickie Venne; Adrian Musters; Debra Roter; William Dudley; Robert T Croyle
Journal:  J Genet Couns       Date:  2006-06       Impact factor: 2.537

9.  Parents' perceptions of functioning in families having a child with a genetic condition.

Authors:  Kathleen A Knafl; George J Knafl; Agatha M Gallo; Denise Angst
Journal:  J Genet Couns       Date:  2007-02-23       Impact factor: 2.537

10.  Women's satisfaction with genetic counseling for hereditary breast-ovarian cancer: psychological aspects.

Authors:  Kenneth P Tercyak; Tiffani A Demarco; Bryn D Mars; Beth N Peshkin
Journal:  Am J Med Genet A       Date:  2004-11-15       Impact factor: 2.802

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