Literature DB >> 26140825

Genetic Counseling-Stress, Coping, and the Empowerment Perspective.

A McConkie-Rosell1, J A Sullivan.   

Abstract

Historically one of the basic foundations of the genetic counseling process has been nondirectiveness; however, its definition and utility continues to be in question. There remains a need to develop genetic counseling interventions in order to qualify, quantify, measure, and enhance the genetic counseling process as well as to delineate the complex interactions of education and counseling that occur. We propose a framework for genetic counseling interventions utilizing an empowerment perspective and Lazarus and Folkman's adaptation of the theory of stress and coping. This model frames the genetic counseling process as one that promotes the autonomy of the individual by providing the individual with the tools required to make their own decisions and enhances coping and adjustment to the outcome of those decisions through control and mastery.

Year:  1999        PMID: 26140825     DOI: 10.1023/A:1022919325772

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  27 in total

1.  Clarifying the goals of nondirective genetic counseling.

Authors:  Robert Wachbroit; David Wasserman
Journal:  Rep Inst Philos Public Policy       Date:  1995 Spring-Summer

2.  Value neutrality and nondirectiveness: comments on "Future directions in genetic counseling.

Authors:  Sonia M Suter
Journal:  Kennedy Inst Ethics J       Date:  1998-06

3.  "Respect for autonomy" in genetic counseling: an analysis and a proposal.

Authors:  Mary Terrell White
Journal:  J Genet Couns       Date:  1997-09       Impact factor: 2.537

4.  Eugenics and nondirectiveness in genetic counseling.

Authors:  Robert G Resta
Journal:  J Genet Couns       Date:  1997-06       Impact factor: 2.537

5.  The role of beneficence in clinical genetics: non-directive counseling reconsidered.

Authors:  M Yarborough; J A Scott; L K Dixon
Journal:  Theor Med       Date:  1989-06

6.  A crossroads in genetic counseling and ethics.

Authors:  G McGee; M Arruda
Journal:  Camb Q Healthc Ethics       Date:  1998       Impact factor: 1.284

7.  Empirical evidence that genetic counseling is directive: where do we go from here?

Authors:  B A Bernhardt
Journal:  Am J Hum Genet       Date:  1997-01       Impact factor: 11.025

8.  Genetic counseling, non-directiveness, and clients' values: is what clients say, what they mean?

Authors:  B S Wilfond; D Baker
Journal:  J Clin Ethics       Date:  1995

9.  Personal control and stress and coping processes: a theoretical analysis.

Authors:  S Folkman
Journal:  J Pers Soc Psychol       Date:  1984-04

Review 10.  Coping, problem solving and stress: a framework for intervention strategies.

Authors:  A Ostell
Journal:  Br J Med Psychol       Date:  1991-03
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  14 in total

1.  Psychosocial genetic counseling in the post-nondirective era: a point of view.

Authors:  Jon Weil
Journal:  J Genet Couns       Date:  2003-06       Impact factor: 2.537

2.  Genetic counselors: translating genomic science into clinical practice.

Authors:  Robin L Bennett; Heather L Hampel; Jessica B Mandell; Joan H Marks
Journal:  J Clin Invest       Date:  2003-11       Impact factor: 14.808

3.  A practical account of autonomy: why genetic counseling is especially well suited to the facilitation of informed autonomous decision making.

Authors:  Jan Hodgson; Merle Spriggs
Journal:  J Genet Couns       Date:  2005-04       Impact factor: 2.537

4.  Coming full circle: a reciprocal-engagement model of genetic counseling practice.

Authors:  Patricia McCarthy Veach; Dianne M Bartels; Bonnie S Leroy
Journal:  J Genet Couns       Date:  2007-10-13       Impact factor: 2.537

5.  Back to the Future of Genetic Counseling: Commentary on "Psychosocial Genetic Counseling in the Post-Nondirective Era".

Authors:  Barbara Bowles Biesecker
Journal:  J Genet Couns       Date:  2003-06       Impact factor: 2.537

6.  The genome empowerment scale: An assessment of parental empowerment in families with undiagnosed disease.

Authors:  Allyn McConkie-Rosell; Kelly Schoch; Jennifer Sullivan; Heidi Cope; Rebecca Spillmann; Christina G S Palmer; Loren Pena; Yong-Hui Jiang; Nicole Daniels; Nicole Walley; Khoon G Tan; Stephen R Hooper; Vandana Shashi
Journal:  Clin Genet       Date:  2019-10-08       Impact factor: 4.438

7.  Not the End of the Odyssey: Parental Perceptions of Whole Exome Sequencing (WES) in Pediatric Undiagnosed Disorders.

Authors:  Allyn McConkie Rosell; Loren D M Pena; Kelly Schoch; Rebecca Spillmann; Jennifer Sullivan; Stephen R Hooper; Yong-Hui Jiang; Nicolas Mathey-Andrews; David B Goldstein; Vandana Shashi
Journal:  J Genet Couns       Date:  2016-02-12       Impact factor: 2.537

8.  Why Do Parents Want to Know their Child's Carrier Status? A Qualitative Study.

Authors:  Danya F Vears; Clare Delany; John Massie; Lynn Gillam
Journal:  J Genet Couns       Date:  2016-05-19       Impact factor: 2.537

9.  Genetic risk communication: experiences of adolescent girls and young women from families with fragile X syndrome.

Authors:  Allyn McConkie-Rosell; Elizabeth Melvin Heise; Gail A Spiridigliozzi
Journal:  J Genet Couns       Date:  2009-03-11       Impact factor: 2.537

10.  Mainstreaming genetics in palliative care: barriers and suggestions for clinical genetic services.

Authors:  A Dearing; N Taverner
Journal:  J Community Genet       Date:  2017-11-20
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