Literature DB >> 15959640

A practical account of autonomy: why genetic counseling is especially well suited to the facilitation of informed autonomous decision making.

Jan Hodgson1, Merle Spriggs.   

Abstract

In genetic counseling, facilitation of autonomous decision-making is seen as a primary aim and respect for autonomy is used to justify a nondirective counseling approach whereby clients are free to make their own choices after being given all necessary information. However in the genetic counseling literature, autonomy as a concept appears to be interpreted variably and often narrowly. We offer a practical account of autonomy that is coherent, consistent and philosophically defensible for the genetic counseling setting. At the same time we demonstrate how nondirective counseling may serve to frustrate rather than facilitate client autonomy. We suggest that promoting purposeful dialogue rather than counseling that is nondirective is more conducive to client autonomy.

Keywords:  Genetics and Reproduction

Mesh:

Year:  2005        PMID: 15959640     DOI: 10.1007/s10897-005-4067-x

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  25 in total

Review 1.  The future of genetic counselling: an international perspective.

Authors:  B Bowles Biesecker; T M Marteau
Journal:  Nat Genet       Date:  1999-06       Impact factor: 38.330

2.  Shared decision making and non-directiveness in genetic counselling.

Authors:  G Elwyn; J Gray; A Clarke
Journal:  J Med Genet       Date:  2000-02       Impact factor: 6.318

3.  "Respect for autonomy" in genetic counseling: an analysis and a proposal.

Authors:  Mary Terrell White
Journal:  J Genet Couns       Date:  1997-09       Impact factor: 2.537

4.  The role of beneficence in clinical genetics: non-directive counseling reconsidered.

Authors:  M Yarborough; J A Scott; L K Dixon
Journal:  Theor Med       Date:  1989-06

5.  Is non-directive genetic counselling possible?

Authors:  A Clarke
Journal:  Lancet       Date:  1991-10-19       Impact factor: 79.321

6.  Autonomy in the face of a devastating diagnosis.

Authors:  M Spriggs
Journal:  J Med Ethics       Date:  1998-04       Impact factor: 2.903

7.  Empirical evidence that genetic counseling is directive: where do we go from here?

Authors:  B A Bernhardt
Journal:  Am J Hum Genet       Date:  1997-01       Impact factor: 11.025

8.  Genetic Counseling-Stress, Coping, and the Empowerment Perspective.

Authors:  A McConkie-Rosell; J A Sullivan
Journal:  J Genet Couns       Date:  1999-12       Impact factor: 2.537

9.  Psychological aspects of genetic counseling: analysis of a transcript.

Authors:  S Kessler
Journal:  Am J Med Genet       Date:  1981

10.  Genetic counseling: provision and reception of information.

Authors:  A Lippman-Hand; F C Fraser
Journal:  Am J Med Genet       Date:  1979
View more
  20 in total

1.  What do genetic counselors learn on the job? A qualitative assessment of professional development outcomes.

Authors:  Marie Runyon; Kimberly W Zahm; Patricia McCarthy Veach; Ian M Macfarlane; Bonnie S Leroy
Journal:  J Genet Couns       Date:  2010-03-19       Impact factor: 2.537

2.  Women's preferences for and experiences with prenatal genetic testing decision making: Sociodemographic disparities in preference-concordant decision making.

Authors:  Fabiola Molina; Christine Dehlendorf; Steven E Gregorich; Miriam Kuppermann
Journal:  Patient Educ Couns       Date:  2018-10-29

3.  "Testing times, challenging choices": an Australian study of prenatal genetic counseling.

Authors:  Jan M Hodgson; Lynn H Gillam; Margaret A Sahhar; Sylvia A Metcalfe
Journal:  J Genet Couns       Date:  2009-10-02       Impact factor: 2.537

4.  Practice guidelines for communicating a prenatal or postnatal diagnosis of Down syndrome: recommendations of the national society of genetic counselors.

Authors:  Kathryn B Sheets; Blythe G Crissman; Cori D Feist; Susan L Sell; Lisa R Johnson; Kelly C Donahue; Diane Masser-Frye; Gail S Brookshire; Amanda M Carre; Danielle Lagrave; Campbell K Brasington
Journal:  J Genet Couns       Date:  2011-05-27       Impact factor: 2.537

5.  Respecting autonomous decision making among Filipinos: a re-emphasis in genetic counseling.

Authors:  Jonathan Diego Cura
Journal:  J Genet Couns       Date:  2015-02-10       Impact factor: 2.537

6.  A Report on Ten Asia Pacific Countries on Current Status and Future Directions of the Genetic Counseling Profession: The Establishment of the Professional Society of Genetic Counselors in Asia.

Authors:  Mercy Y Laurino; Kathleen A Leppig; Peter James Abad; Breana Cham; Yoyo Wing Yiu Chu; Saahil Kejriwal; Juliana M H Lee; Darci L Sternen; Jennifer K Thompson; Matthew J Burgess; Shu Chien; Niby Elackatt; Jiin Ying Lim; Thanyachai Sura; Sultana Faradz; Carmencita Padilla; Eva Cutiongco de-la Paz; Donny Nauphar; Khanh Ngoc Nguyen; Olya Zayts; Dung Chi Vu; Meow-Keong Thong
Journal:  J Genet Couns       Date:  2017-07-11       Impact factor: 2.537

7.  Enhancing family communication about genetics: ethical and professional dilemmas.

Authors:  Jan Hodgson; Clara Gaff
Journal:  J Genet Couns       Date:  2012-07-26       Impact factor: 2.537

8.  Genetic Counseling for Indigenous Australians: an Exploratory Study from the Perspective of Genetic Health Professionals.

Authors:  Emma Kowal; Lyndon Gallacher; Ivan Macciocca; Margaret Sahhar
Journal:  J Genet Couns       Date:  2014-10-28       Impact factor: 2.537

9.  Talking about disability in prenatal genetic counseling: a report of two interactive workshops.

Authors:  Jan Hodgson; Jon Weil
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

10.  "It's challenging on a personal level"--exploring the 'lived experience' of Australian and Canadian prenatal genetic counselors.

Authors:  Melody A Menezes; Jan M Hodgson; Margaret A Sahhar; Maryanne Aitken; Sylvia A Metcalfe
Journal:  J Genet Couns       Date:  2010-07-24       Impact factor: 2.537

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.