Literature DB >> 17318451

Parents' perceptions of functioning in families having a child with a genetic condition.

Kathleen A Knafl1, George J Knafl, Agatha M Gallo, Denise Angst.   

Abstract

In a study of families having a child with a genetic condition, patterns of family functioning were identified through cluster analysis of families with two spouses. Patterns were based on both parents' assessments of family satisfaction and hardiness, as measured respectively by the Family APGAR and Family Hardiness Index. The validity and clinical significance of the clusters were supported by demonstrating that cluster membership distinguished between parental reports of their own quality of life and their child's functional status, as measured by the Quality of Life Index and the Functional Status II, respectively. The clusters were non-categorical in the sense that they did not depend on the type of genetic condition. These findings point to the importance of addressing family functioning as part of genetic counseling.

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Year:  2007        PMID: 17318451     DOI: 10.1007/s10897-006-9084-x

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  38 in total

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Journal:  Multivariate Behav Res       Date:  1981-07-01       Impact factor: 5.923

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Journal:  Res Nurs Health       Date:  1992-02       Impact factor: 2.228

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Authors:  Agatha M Gallo; Denise Angst; Kathleen A Knafl; Emily Hadley; Carrol Smith
Journal:  J Pediatr Health Care       Date:  2005 Sep-Oct       Impact factor: 1.812

6.  Parent relationships and compliance in cystic fibrosis.

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Journal:  J Pediatr Health Care       Date:  1998 Jul-Aug       Impact factor: 1.812

7.  Controlling for general and disease-specific effects in child and family adjustment to chronic childhood illness.

Authors:  E W Holden; D Chmielewski; C C Nelson; V A Kager; L Foltz
Journal:  J Pediatr Psychol       Date:  1997-02

8.  Family functioning when children have cystic fibrosis.

Authors:  E H Sawyer
Journal:  J Pediatr Nurs       Date:  1992-10       Impact factor: 2.145

9.  A prospective study of the relationship over time of behavior problems, intellectual functioning, and family functioning in children with sickle cell disease: a report from the Cooperative Study of Sickle Cell Disease.

Authors:  Robert J Thompson; F Daniel Armstrong; Carol L Link; Charles H Pegelow; Franklin Moser; Winfred C Wang
Journal:  J Pediatr Psychol       Date:  2003 Jan-Feb

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Authors:  J H Fanos; J P Johnson
Journal:  Am J Hum Genet       Date:  1995-08       Impact factor: 11.025

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  4 in total

1.  Patterns of family management of childhood chronic conditions and their relationship to child and family functioning.

Authors:  Kathleen A Knafl; Janet A Deatrick; George J Knafl; Agatha M Gallo; Margaret Grey; Jane Dixon
Journal:  J Pediatr Nurs       Date:  2013-04-19       Impact factor: 2.145

2.  Decisions about testing and termination of pregnancy for different fetal conditions: a qualitative study of European White and Pakistani mothers of affected children.

Authors:  Shenaz Ahmed; Jenny Hewison; Josephine M Green; Howard S Cuckle; Janet Hirst; Jim G Thornton
Journal:  J Genet Couns       Date:  2008-10-09       Impact factor: 2.537

3.  Parent Coping and the Behavioural and Social Outcomes of Children Diagnosed with Inherited Metabolic Disorders.

Authors:  Amy Brown; Louise Crowe; Avihu Boneh; Vicki Anderson
Journal:  JIMD Rep       Date:  2016-03-24

4.  Parental perceptions of the outcome and meaning of normalization.

Authors:  Kathleen A Knafl; Blair G Darney; Agatha M Gallo; Denise B Angst
Journal:  Res Nurs Health       Date:  2010-04       Impact factor: 2.228

  4 in total

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