Literature DB >> 11808682

Genetic ignorance and reasonable paternalism.

T Takala1.   

Abstract

The question concerning an individual's right to remain in ignorance regarding her own genetic makeup is central to debates about genetic information. Whatever is decided on this matter has a weighty bearing on all of the related third-party issues, such as whether family members or employers should be told about an individual's genetic makeup. Those arguing that no right to genetic ignorance exists tend to argue from a viewpoint I have called in this paper reasonable paternalism. It is an appealing position which rests on widely shared intuitions on reasonable choices, but which, in the end, smuggles paternalism back to medical practice.

Keywords:  Genetics and Reproduction; Legal Approach

Mesh：

Year:  2001        PMID： 11808682     DOI： 10.1023/a:1013019120277

Source DB:  PubMed          Journal:  Theor Med Bioeth        ISSN： 1386-7415


  6 in total

1.  Response to "abortion and assent" by Rosamond Rhodes (CQ Vol 8, No 4) and "abortion, disability, assent, and consent" by Matti Häyry (CQ Vol 10, No 1). Assent and selective abortion: a response to Rhodes and Häyry.

Authors:  S Vehmas
Journal:  Camb Q Healthc Ethics       Date:  2001       Impact factor: 1.284

Review 2.  Just ignore it? Parents and genetic information.

Authors:  S Vehmas
Journal:  Theor Med Bioeth       Date:  2001-09

Review 3.  Antenatal genetic testing and the right to remain in ignorance.

Authors:  R Bennett
Journal:  Theor Med Bioeth       Date:  2001-09

4.  Genetic links, family ties, and social bonds: rights and responsibilities in the face of genetic knowledge.

Authors:  R Rhodes
Journal:  J Med Philos       Date:  1998-02

5.  Who should know about our genetic makeup and why?

Authors:  T Takala; H A Gylling
Journal:  J Med Ethics       Date:  2000-06       Impact factor: 2.903

6.  The right to genetic ignorance confirmed.

Authors:  Tuija Takala
Journal:  Bioethics       Date:  1999-07       Impact factor: 1.898
  6 in total
  9 in total

Review 1.  Genetic information, rights, and autonomy.

Authors:  M Häyry; T Takala
Journal:  Theor Med Bioeth       Date:  2001-09

2.  Giving and withholding of information following genomic screening: challenges identified in a study of primary care physicians in Estonia.

Authors:  Liis Leitsalu; Laura Hercher; Andres Metspalu
Journal:  J Genet Couns       Date:  2011-12-08       Impact factor: 2.537

3.  Overcritical, overfriendly? A dialogue between a sociologist and a philosopher on genetic technology and its applications.

Authors:  Mairi Levitt; Matti Häyry
Journal:  Med Health Care Philos       Date:  2005

4.  Questioning the consensus: managing carrier status results generated by newborn screening.

Authors:  Fiona Alice Miller; Jason Scott Robert; Robin Z Hayeems
Journal:  Am J Public Health       Date:  2008-12-04       Impact factor: 9.308

5.  Ethical considerations when making exceptions to "rules" in psychiatry.

Authors:  Edmund Howe
Journal:  Innov Clin Neurosci       Date:  2014-01

6.  Communicating genetic information in the family: enriching the debate through the notion of integrity.

Authors:  Paula Boddington; Maggie Gregory
Journal:  Med Health Care Philos       Date:  2008-04-09

7.  Is there a duty to remain in ignorance?

Authors:  Iain Brassington
Journal:  Theor Med Bioeth       Date:  2011-04

8.  Incidental findings of uncertain significance: To know or not to know--that is not the question.

Authors:  Bjørn Hofmann
Journal:  BMC Med Ethics       Date:  2016-02-13       Impact factor: 2.652

9.  Ethical values supporting the disclosure of incidental and secondary findings in clinical genomic testing: a qualitative study.

Authors:  Marlies Saelaert; Heidi Mertes; Tania Moerenhout; Elfride De Baere; Ignaas Devisch
Journal:  BMC Med Ethics       Date:  2020-01-30       Impact factor: 2.652
  9 in total

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