Literature DB >> 11808676

Genetic information, rights, and autonomy.

M Häyry1, T Takala.   

Abstract

Rights, autonomy, privacy, and confidentiality are concepts commonly used in discussions concerning genetic information. When these concepts are thought of as denoting absolute norms and values which cannot be overriden by other considerations, conflicts among them naturally occur. In this paper, these and related notions are examined in terms of the duties and obligations medical professionals and their clients can have regarding genetic knowledge. It is suggested that while the prevailing idea of autonomy is unhelpful in the analysis of these duties, and the ensuing rights, an alternative reading of personal self-determination can provide a firmer basis for ethical guidelines and policies in this field.

Keywords:  Analytical Approach; Genetics and Reproduction; Professional Patient Relationship

Mesh:

Year:  2001        PMID: 11808676     DOI: 10.1023/a:1013097617552

Source DB:  PubMed          Journal:  Theor Med Bioeth        ISSN: 1386-7415


  19 in total

1.  Abortion and assent.

Authors:  R Rhodes
Journal:  Camb Q Healthc Ethics       Date:  1999       Impact factor: 1.284

2.  The privacy of Tutankhamen--utilising the genetic information in stored tissue samples.

Authors:  S Holm
Journal:  Theor Med Bioeth       Date:  2001-09

3.  Respect for persons, informed consent and the assessment of infectious disease risks in xenotransplantation.

Authors:  J H Barker; L Polcrack
Journal:  Med Health Care Philos       Date:  2001

4.  In defence of ignorance: genetic information and the right not to know.

Authors:  Graeme T Laurie
Journal:  Eur J Health Law       Date:  1999-06

Review 5.  Making responsible decisions. An interpretive ethic for genetic decisionmaking.

Authors:  M T White
Journal:  Hastings Cent Rep       Date:  1999 Jan-Feb       Impact factor: 2.683

Review 6.  Genetics and the interpersonal elaboration of ethics.

Authors:  M Parker
Journal:  Theor Med Bioeth       Date:  2001-09

7.  Genetic links, family ties, and social bonds: rights and responsibilities in the face of genetic knowledge.

Authors:  R Rhodes
Journal:  J Med Philos       Date:  1998-02

Review 8.  Value neutrality in genetic counseling: an unattained ideal.

Authors:  C A Rentmeester
Journal:  Med Health Care Philos       Date:  2001

9.  The right to genetic ignorance confirmed.

Authors:  Tuija Takala
Journal:  Bioethics       Date:  1999-07       Impact factor: 1.898

10.  Commercialisation of genetic diagnostic services.

Authors:  R Hoedemaekers; H ten Have
Journal:  Med Health Care Philos       Date:  1998
View more
  11 in total

1.  Overcritical, overfriendly? A dialogue between a sociologist and a philosopher on genetic technology and its applications.

Authors:  Mairi Levitt; Matti Häyry
Journal:  Med Health Care Philos       Date:  2005

2.  Communicating genetic information in the family: enriching the debate through the notion of integrity.

Authors:  Paula Boddington; Maggie Gregory
Journal:  Med Health Care Philos       Date:  2008-04-09

3.  Consent to epistemic interventions: a contribution to the debate on the right (not) to know.

Authors:  Niels Nijsingh
Journal:  Med Health Care Philos       Date:  2016-03

4.  Policy recommendations for carrier testing and predictive testing in childhood: a distinction that makes a real difference.

Authors:  Susan Hogben; Paula Boddington
Journal:  J Genet Couns       Date:  2005-08       Impact factor: 2.537

5.  AUTONOMY, LIBERTY, AND MEDICAL DECISION-MAKING.

Authors:  John Coggon; José Miola
Journal:  Camb Law J       Date:  2011-11

6.  The relative importance of undesirable truths.

Authors:  Lisa Bortolotti
Journal:  Med Health Care Philos       Date:  2013-11

7.  Incidental findings of uncertain significance: To know or not to know--that is not the question.

Authors:  Bjørn Hofmann
Journal:  BMC Med Ethics       Date:  2016-02-13       Impact factor: 2.652

8.  Rethinking the "open future" argument against predictive genetic testing of children.

Authors:  Jeremy R Garrett; John D Lantos; Leslie G Biesecker; Janet E Childerhose; Wendy K Chung; Ingrid A Holm; Barbara A Koenig; Jean E McEwen; Benjamin S Wilfond; Kyle Brothers
Journal:  Genet Med       Date:  2019-03-21       Impact factor: 8.822

9.  The right not to know and the obligation to know.

Authors:  Ben Davies
Journal:  J Med Ethics       Date:  2020-04-29       Impact factor: 5.926

10.  The Right Not to Know: some Steps towards a Compromise.

Authors:  Ben Davies; Julian Savulescu
Journal:  Ethical Theory Moral Pract       Date:  2020-10-29
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