Literature DB >> 11808680

Antenatal genetic testing and the right to remain in ignorance.

R Bennett1.   

Abstract

As knowledge increases about the human genome, prenatal genetic testing will become cheaper, safer and more comprehensive. It is likely that there will be a great deal of support for making prenatal testing for a wide range of genetic disorders a routine part of antenatal care. Such routine testing is necessarily coercive in nature and does not involve the same standard of consent as is required in other health care settings. This paper asks whether this level of coercion is ethically justifiable in this case, or whether pregnant women have a right to remain in ignorance of the genetic make-up of the fetus they are carrying. While information gained by genetic testing may be useful for pregnant women when making decisions about their pregnancy, it does not prevent harm to future children. It is argued that as this kind of testing provides information in the interests of the pregnant women and not in the interests of any future child, the same standards of consent that are normally required for genetic testing should be required in this instance.

Entities:  

Keywords:  Analytical Approach; Genetics and Reproduction

Mesh:

Year:  2001        PMID: 11808680     DOI: 10.1023/a:1013015019369

Source DB:  PubMed          Journal:  Theor Med Bioeth        ISSN: 1386-7415


  11 in total

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3.  GMS's advice in Serious Communicable Diseases. Is consent to testing necessary for tuberculosis in the same way as for HIV infection?

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Journal:  BMJ       Date:  2000-06-24

Review 4.  Technical report: perinatal human immunodeficiency virus testing and prevention of transmission. Committee on Pediatric Aids.

Authors:  L M Mofenson
Journal:  Pediatrics       Date:  2000-12       Impact factor: 7.124

5.  US specialists object to AMA's call for mandatory HIV testing.

Authors:  J Rovner
Journal:  Lancet       Date:  1996-08-03       Impact factor: 79.321

6.  Genetic links, family ties, and social bonds: rights and responsibilities in the face of genetic knowledge.

Authors:  R Rhodes
Journal:  J Med Philos       Date:  1998-02

7.  Who should know about our genetic makeup and why?

Authors:  T Takala; H A Gylling
Journal:  J Med Ethics       Date:  2000-06       Impact factor: 2.903

8.  The right to genetic ignorance confirmed.

Authors:  Tuija Takala
Journal:  Bioethics       Date:  1999-07       Impact factor: 1.898

9.  Reduction of maternal-infant transmission of human immunodeficiency virus type 1 with zidovudine treatment. Pediatric AIDS Clinical Trials Group Protocol 076 Study Group.

Authors:  E M Connor; R S Sperling; R Gelber; P Kiselev; G Scott; M J O'Sullivan; R VanDyke; M Bey; W Shearer; R L Jacobson
Journal:  N Engl J Med       Date:  1994-11-03       Impact factor: 91.245

10.  Risk factors for mother-to-child transmission of HIV-1.

Authors: 
Journal:  Lancet       Date:  1992-04-25       Impact factor: 79.321

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  7 in total

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Authors:  T Takala
Journal:  Theor Med Bioeth       Date:  2001-09

Review 2.  Genetic information, rights, and autonomy.

Authors:  M Häyry; T Takala
Journal:  Theor Med Bioeth       Date:  2001-09

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Journal:  Med Health Care Philos       Date:  2008-04-09

Review 4.  Homeostasis and function of regulatory T cells in HIV/SIV infection.

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Journal:  J Virol       Date:  2012-07-18       Impact factor: 5.103

Review 5.  Newborn screening for cystic fibrosis: a lesson in public health disparities.

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Review 6.  Too much, too soon?: Commercial provision of noninvasive prenatal screening for subchromosomal abnormalities and beyond.

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Journal:  Genet Med       Date:  2015-03-19       Impact factor: 8.822

7.  Is routine prenatal screening and testing fundamentally incompatible with a commitment to reproductive choice? Learning from the historical context.

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Journal:  Med Health Care Philos       Date:  2020-10-30
  7 in total

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