Literature DB >> 20526683

Is there a duty to remain in ignorance?

Iain Brassington1.   

Abstract

Questions about information inform many debates in bioethics. One of the reasons for this is that at least some level of information is taken by many to be a prerequisite of valid consent. For others, autonomy in the widest sense presupposes information, because one cannot be in control of one's life without at least some insight into what it could turn out to contain. Yet not everyone shares this view, and there is a debate about whether or not there is a right to remain in ignorance of one's medical, and especially genetic, information. It is notable, though, that this debate leaves unexamined the assumption that, if a person wants information, he is entitled to it. This paper examines the assumption, specifically in relation to genetics, where learning facts about oneself may reveal facts about other people, particularly one's close relatives. This may be taken as a violation of their privacy, and since privacy is something that we normally think should be respected, it is worth asking whether one ought to abjure the opportunity to obtain genetic information for the sake of privacy. In effect, there may be an argument to be made not just for a right to remain in ignorance, but for a duty to do so.

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Year:  2011        PMID: 20526683     DOI: 10.1007/s11017-010-9145-x

Source DB:  PubMed          Journal:  Theor Med Bioeth        ISSN: 1386-7415


  6 in total

1.  Genetic ignorance and reasonable paternalism.

Authors:  T Takala
Journal:  Theor Med Bioeth       Date:  2001-09

2.  Genetic privacy: orthodoxy or oxymoron?

Authors:  A Sommerville; V English
Journal:  J Med Ethics       Date:  1999-04       Impact factor: 2.903

Review 3.  Genetics and the interpersonal elaboration of ethics.

Authors:  M Parker
Journal:  Theor Med Bioeth       Date:  2001-09

4.  The right not to know and preimplantation genetic diagnosis for Huntington's disease.

Authors:  E Asscher; B-J Koops
Journal:  J Med Ethics       Date:  2010-01       Impact factor: 2.903

5.  Who should know about our genetic makeup and why?

Authors:  T Takala; H A Gylling
Journal:  J Med Ethics       Date:  2000-06       Impact factor: 2.903

Review 6.  Ignorance, information and autonomy.

Authors:  J Harris; K Keywood
Journal:  Theor Med Bioeth       Date:  2001-09
  6 in total
  2 in total

1.  Challenges of genetic testing in adolescents with cardiac arrhythmia syndromes.

Authors:  Lilian Liou Cohen; Marina Stolerman; Christine Walsh; David Wasserman; Siobhan M Dolan
Journal:  J Med Ethics       Date:  2011-09-27       Impact factor: 2.903

2.  Genetic information: making a just world strange.

Authors:  Iain Brassington
Journal:  Theor Med Bioeth       Date:  2014-06
  2 in total

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