Literature DB >> 31078660

The REDCap consortium: Building an international community of software platform partners.

Paul A Harris1, Robert Taylor2, Brenda L Minor2, Veida Elliott2, Michelle Fernandez2, Lindsay O'Neal2, Laura McLeod2, Giovanni Delacqua2, Francesco Delacqua2, Jacqueline Kirby2, Stephany N Duda3.   

Abstract

The Research Electronic Data Capture (REDCap) data management platform was developed in 2004 to address an institutional need at Vanderbilt University, then shared with a limited number of adopting sites beginning in 2006. Given bi-directional benefit in early sharing experiments, we created a broader consortium sharing and support model for any academic, non-profit, or government partner wishing to adopt the software. Our sharing framework and consortium-based support model have evolved over time along with the size of the consortium (currently more than 3200 REDCap partners across 128 countries). While the "REDCap Consortium" model represents only one example of how to build and disseminate a software platform, lessons learned from our approach may assist other research institutions seeking to build and disseminate innovative technologies.
Copyright © 2019 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Clinical research; Electronic data capture; Medical informatics; Translational research

Mesh:

Year:  2019        PMID: 31078660      PMCID: PMC7254481          DOI: 10.1016/j.jbi.2019.103208

Source DB:  PubMed          Journal:  J Biomed Inform        ISSN: 1532-0464            Impact factor:   6.317


  45 in total

1.  Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.

Authors:  Paul A Harris; Robert Taylor; Robert Thielke; Jonathon Payne; Nathaniel Gonzalez; Jose G Conde
Journal:  J Biomed Inform       Date:  2008-09-30       Impact factor: 6.317

2.  Advancing methodologies in Clinical Research Informatics (CRI): foundational work for a maturing field.

Authors:  Peter J Embi; Philip R O Payne
Journal:  J Biomed Inform       Date:  2014-12       Impact factor: 6.317

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Authors:  Rebecca S Etz; Karissa A Hahn; Martha M Gonzalez; Benjamin F Crabtree; Kurt C Stange
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4.  A framework for evaluating the appropriateness of clinical decision support alerts and responses.

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Journal:  J Am Med Inform Assoc       Date:  2011-08-17       Impact factor: 4.497

5.  Patient-Reported Outcomes Measurement Information System (PROMIS): efficient, standardized tools to measure self-reported health and quality of life.

Authors:  Margaret Bevans; Alyson Ross; David Cella
Journal:  Nurs Outlook       Date:  2014-06-12       Impact factor: 3.250

6.  Academic medical product development: an emerging alliance of technology transfer organizations and the CTSA.

Authors:  Lynn M Rose; Maaike Everts; Caren Heller; Christine Burke; Nathaniel Hafer; Scott Steele
Journal:  Clin Transl Sci       Date:  2014-06-19       Impact factor: 4.689

7.  PhenX RISING: real world implementation and sharing of PhenX measures.

Authors:  Catherine A McCarty; Wayne Huggins; Allison E Aiello; Robert M Bilder; Ahmad Hariri; Terry L Jernigan; Erik Newman; Dharambir K Sanghera; Timothy J Strauman; Yi Zeng; Erin M Ramos; Heather A Junkins
Journal:  BMC Med Genomics       Date:  2014-03-20       Impact factor: 3.063

8.  A comparative effectiveness trial of postoperative management for lumbar spine surgery: changing behavior through physical therapy (CBPT) study protocol.

Authors:  Kristin R Archer; Rogelio A Coronado; Christine M Haug; Susan W Vanston; Clinton J Devin; Christopher J Fonnesbeck; Oran S Aaronson; Joseph S Cheng; Richard L Skolasky; Lee H Riley; Stephen T Wegener
Journal:  BMC Musculoskelet Disord       Date:  2014-10-01       Impact factor: 2.362

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Authors:  Michael P Sheetz
Journal:  Mol Biol Cell       Date:  2014-11-01       Impact factor: 4.138

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Journal:  J Am Med Inform Assoc       Date:  2014-05-12       Impact factor: 4.497

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  2000 in total

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Authors:  Patrick J Sylvester; Jonathon Stewart; Austin Schoeffler; Joshua Aalberg; Katherine M Hunold; Jeffrey M Caterino; Jason J Bischof
Journal:  J Emerg Med       Date:  2020-06-24       Impact factor: 1.484

2.  Psychological mechanisms associated with food security status and BMI in adults: a mixed methods study.

Authors:  Candice A Myers; Robbie A Beyl; Corby K Martin; Stephanie T Broyles; Peter T Katzmarzyk
Journal:  Public Health Nutr       Date:  2020-06-29       Impact factor: 4.022

3.  Goals of care discussions: perceptions of radiation and medical oncologists.

Authors:  Daniel Hong; Lauren C Das; Ellen Daily; Stacie K Levine; Olwen M Hahn; Stanley L Liauw; Daniel W Golden; Christina H Son
Journal:  Support Care Cancer       Date:  2021-05-25       Impact factor: 3.603

4.  A preliminary validation of the adolescent e-cigarette consequences questionnaire.

Authors:  Julie V Cristello; Matthew T Sutherland; Elisa M Trucco
Journal:  Drug Alcohol Depend       Date:  2020-06-12       Impact factor: 4.492

5.  A baseline assessment of enhanced recovery protocol implementation at pediatric surgery practices performing inflammatory bowel disease operations.

Authors:  Jonathan Vacek; Teaniese Davis; Benjamin T Many; Sharron Close; Sarah Blake; Yue-Yung Hu; Jane L Holl; Julie Johnson; Jennifer Strople; Mehul V Raval
Journal:  J Pediatr Surg       Date:  2020-06-27       Impact factor: 2.545

6.  Age, Sex, and Depot-Specific Differences in Adipose-Tissue Estrogen Receptors in Individuals with Obesity.

Authors:  Jay W Porter; Jillian L Barnas; Rebecca Welly; Nicole Spencer; James Pitt; Victoria J Vieira-Potter; Jill A Kanaley
Journal:  Obesity (Silver Spring)       Date:  2020-07-31       Impact factor: 5.002

7.  The Impact of a Clonidine Transition Protocol on Dexmedetomidine Withdrawal in Critically Ill Pediatric Patients.

Authors:  JiTong Liu; Jessica Miller; Michael Ferguson; Sandra Bagwell; Jonathan Bourque
Journal:  J Pediatr Pharmacol Ther       Date:  2020

8.  Real-time clinical note monitoring to detect conditions for rapid follow-up: A case study of clinical trial enrollment in drug-induced torsades de pointes and Stevens-Johnson syndrome.

Authors:  Sarah DeLozier; Peter Speltz; Jason Brito; Leigh Anne Tang; Janey Wang; Joshua C Smith; Dario Giuse; Elizabeth Phillips; Kristina Williams; Teresa Strickland; Giovanni Davogustto; Dan Roden; Joshua C Denny
Journal:  J Am Med Inform Assoc       Date:  2021-01-15       Impact factor: 4.497

9.  Immunogenicity and safety of the CoronaVac inactivated vaccine in patients with autoimmune rheumatic diseases: a phase 4 trial.

Authors:  Ana C Medeiros-Ribeiro; Nadia E Aikawa; Carla G S Saad; Emily F N Yuki; Tatiana Pedrosa; Solange R G Fusco; Priscila T Rojo; Rosa M R Pereira; Samuel K Shinjo; Danieli C O Andrade; Percival D Sampaio-Barros; Carolina T Ribeiro; Giordano B H Deveza; Victor A O Martins; Clovis A Silva; Marta H Lopes; Alberto J S Duarte; Leila Antonangelo; Ester C Sabino; Esper G Kallas; Sandra G Pasoto; Eloisa Bonfa
Journal:  Nat Med       Date:  2021-07-30       Impact factor: 53.440

10.  Parent-adolescent relationship characteristics and adolescent cannabis use: A growth curve analysis.

Authors:  Sarah A Thomas; Leslie Ann Brick; Lauren Micalizzi; Jennifer C Wolff; Elisabeth A Frazier; Hannah Graves; Christianne Esposito-Smythers; Anthony Spirito
Journal:  Am J Drug Alcohol Abuse       Date:  2020-09-15       Impact factor: 3.829

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