Literature DB >> 25015409

Patient-Reported Outcomes Measurement Information System (PROMIS): efficient, standardized tools to measure self-reported health and quality of life.

Margaret Bevans1, Alyson Ross2, David Cella3.   

Abstract

All nurses are interested in the effects of diseases and treatments on individuals. Patient-reported outcome (PRO) measures are used to obtain self-reported information about symptoms, function, perceptions, and experiences. However, there are challenges to their use, including multiple measures of the same concept, widely varying quality, excessive length and complexity, and difficulty comparing findings across studies and conditions. To address these challenges, the National Institutes of Health funded the Patient-Reported Outcomes Measurement Information System (PROMIS), a web-based repository of valid and reliable PRO measures of health concepts relevant to clinician and researchers. Through the PROMIS Assessment Center, clinicians and researchers can access PRO measures, administer computerized adaptive tests, collect self-report data, and report instant health assessments. The purpose of this article was to summarize the development and validation of the PROMIS measures and to describe its current functionality as it relates to nursing science. Published by Elsevier Inc.

Entities:  

Keywords:  Item response theory; Measurements; Patient-centered outcomes; Web-based data collection

Mesh:

Year:  2014        PMID: 25015409      PMCID: PMC4179871          DOI: 10.1016/j.outlook.2014.05.009

Source DB:  PubMed          Journal:  Nurs Outlook        ISSN: 0029-6554            Impact factor:   3.250


  34 in total

Review 1.  Item response theory in affective instrument development: an illustration.

Authors:  C T Beck; R K Gable
Journal:  J Nurs Meas       Date:  2001 Spring-Summer

2.  Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS).

Authors:  Bryce B Reeve; Ron D Hays; Jakob B Bjorner; Karon F Cook; Paul K Crane; Jeanne A Teresi; David Thissen; Dennis A Revicki; David J Weiss; Ronald K Hambleton; Honghu Liu; Richard Gershon; Steven P Reise; Jin-shei Lai; David Cella
Journal:  Med Care       Date:  2007-05       Impact factor: 2.983

3.  A 7-item version of the fatigue severity scale has better psychometric properties among HIV-infected adults: an application of a Rasch model.

Authors:  Anners Lerdal; Anders Kottorp; Caryl Gay; Bradley E Aouizerat; Carmen J Portillo; Kathryn A Lee
Journal:  Qual Life Res       Date:  2011-03-10       Impact factor: 4.147

4.  Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial.

Authors:  Symone B Detmar; Martin J Muller; Jan H Schornagel; Lidwina D V Wever; Neil K Aaronson
Journal:  JAMA       Date:  2002-12-18       Impact factor: 56.272

5.  Impact of the Patient-Reported Outcomes Management Information System (PROMIS) upon the design and operation of multi-center clinical trials: a qualitative research study.

Authors:  Eric L Eisenstein; Lawrence W Diener; Meredith Nahm; Kevin P Weinfurt
Journal:  J Med Syst       Date:  2010-01-23       Impact factor: 4.460

6.  Health care providers underestimate symptom intensities of cancer patients: a multicenter European study.

Authors:  Eivor A Laugsand; Mirjam A G Sprangers; Kristin Bjordal; Frank Skorpen; Stein Kaasa; Pål Klepstad
Journal:  Health Qual Life Outcomes       Date:  2010-09-21       Impact factor: 3.186

Review 7.  Recommendations for incorporating patient-reported outcomes into clinical comparative effectiveness research in adult oncology.

Authors:  Ethan Basch; Amy P Abernethy; C Daniel Mullins; Bryce B Reeve; Mary Lou Smith; Stephen Joel Coons; Jeff Sloan; Keith Wenzel; Cynthia Chauhan; Wayland Eppard; Elizabeth S Frank; Joseph Lipscomb; Stephen A Raymond; Merianne Spencer; Sean Tunis
Journal:  J Clin Oncol       Date:  2012-10-15       Impact factor: 44.544

8.  Difference in method of administration did not significantly impact item response: an IRT-based analysis from the Patient-Reported Outcomes Measurement Information System (PROMIS) initiative.

Authors:  Jakob B Bjorner; Matthias Rose; Barbara Gandek; Arthur A Stone; Doerte U Junghaenel; John E Ware
Journal:  Qual Life Res       Date:  2013-07-23       Impact factor: 4.147

9.  Monitoring population health for Healthy People 2020: evaluation of the NIH PROMIS® Global Health, CDC Healthy Days, and satisfaction with life instruments.

Authors:  John P Barile; Bryce B Reeve; Ashley Wilder Smith; Matthew M Zack; Sandra A Mitchell; Rosemarie Kobau; David F Cella; Cecily Luncheon; William W Thompson
Journal:  Qual Life Res       Date:  2012-08-18       Impact factor: 4.147

Review 10.  A systematic review of the impact of routine collection of patient reported outcome measures on patients, providers and health organisations in an oncologic setting.

Authors:  Jack Chen; Lixin Ou; Stephanie J Hollis
Journal:  BMC Health Serv Res       Date:  2013-06-11       Impact factor: 2.655

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  49 in total

1.  Visualizing the Patient-Reported Outcomes Measurement Information System (PROMIS) Measures for Clinicians and Patients.

Authors:  Lisa V Grossman; Elliot G Mitchell
Journal:  AMIA Annu Symp Proc       Date:  2018-04-16

2.  Prediction of Oswestry Disability Index (ODI) using PROMIS-29 in a national sample of lumbar spine surgery patients.

Authors:  Jacquelyn S Pennings; Clinton J Devin; Inamullah Khan; Mohamad Bydon; Anthony L Asher; Kristin R Archer
Journal:  Qual Life Res       Date:  2019-06-06       Impact factor: 4.147

3.  The Effect of the "Great Village" on Psychological Outcomes, Burden, and Mastery in African American Caregivers of Persons Living With Dementia.

Authors:  Glenna S Brewster; Fayron Epps; Clinton E Dye; Kenneth Hepburn; Melinda K Higgins; Monica L Parker
Journal:  J Appl Gerontol       Date:  2019-09-19

4.  Leveraging Patient-Reported Outcomes Using Data Visualization.

Authors:  Lisa V Grossman; Steven K Feiner; Elliot G Mitchell; Ruth M Masterson Creber
Journal:  Appl Clin Inform       Date:  2018-08-01       Impact factor: 2.342

Review 5.  Patient-reported outcomes in the Translational Breast Cancer Research Consortium.

Authors:  Deborah J Bowen; Eileen H Shinn; Sophie Gregrowski; Gretchen Kimmick; Laura S Dominici; Elizabeth S Frank; Karen Lisa Smith; Gabrielle Rocque; Kathryn J Ruddy; Teri Pollastro; Michelle Melisko; Tarah J Ballinger; Oluwadamilola M Fayanju; Antonio C Wolff
Journal:  Cancer       Date:  2019-11-19       Impact factor: 6.860

6.  The REDCap consortium: Building an international community of software platform partners.

Authors:  Paul A Harris; Robert Taylor; Brenda L Minor; Veida Elliott; Michelle Fernandez; Lindsay O'Neal; Laura McLeod; Giovanni Delacqua; Francesco Delacqua; Jacqueline Kirby; Stephany N Duda
Journal:  J Biomed Inform       Date:  2019-05-09       Impact factor: 6.317

7.  The association between witnessing patient death and mental health outcomes in frontline COVID-19 healthcare workers.

Authors:  Mariela Mosheva; Raz Gross; Nimrod Hertz-Palmor; Ilanit Hasson-Ohayon; Rachel Kaplan; Rony Cleper; Yitshak Kreiss; Doron Gothelf; Itai M Pessach
Journal:  Depress Anxiety       Date:  2021-02-05       Impact factor: 6.505

8.  Relative Prevalence of Anxiety and Depression in Patients With Upper Extremity Conditions.

Authors:  Casey M Beleckas; Melissa Wright; Heidi Prather; Aaron Chamberlain; Jason Guattery; Ryan P Calfee
Journal:  J Hand Surg Am       Date:  2018-02-01       Impact factor: 2.230

9.  Patient-reported outcomes of pain and physical functioning in neurofibromatosis clinical trials.

Authors:  Pamela L Wolters; Staci Martin; Vanessa L Merker; James H Tonsgard; Sondra E Solomon; Andrea Baldwin; Amanda L Bergner; Karin Walsh; Heather L Thompson; Kathy L Gardner; Cynthia M Hingtgen; Elizabeth Schorry; William N Dudley; Barbara Franklin
Journal:  Neurology       Date:  2016-08-16       Impact factor: 9.910

10.  Older Adults Can Successfully Monitor Symptoms Using an Inclusively Designed Mobile Application.

Authors:  Meghan Reading Turchioe; Lisa V Grossman; Dawon Baik; Christopher S Lee; Mathew S Maurer; Parag Goyal; Monika M Safford; Ruth M Masterson Creber
Journal:  J Am Geriatr Soc       Date:  2020-03-10       Impact factor: 5.562

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